Dr appt today - med change - your input... Please

Hey Girlie!

I'm not sure if I'm reading your post right. Did your doc put you on Ceftin & Biaxin in order to treat Bart? Or were you saying you were also discussing something else (like Rifampin) for Bart?

I think Biaxin and Ceftin are some of the more powerful ones I thought LP said before. At least he's changing around your protocol and not sticking you on the same stuff for long periods of time.

Hi Girlie, Ceftin is a really good Lyme drug and perhaps one of the best we have available.  It is effective in it's mechanism of action where it punctures holes in the spirochetes.  I think Dr. B got rid of his Lyme with ceftin... and so did Opugirl on here. 

It also kills spirochetes regardless if they are dividing or not.  Much more effectively than other drugs like amoxi or biaxin. 

It also get's into the brain and fluid compartments of the body quite well. 

The only thing is, will you be able to tolerate it?  I took my first dose recommended by my Dr. which was 1 gram of ceftin (2 x 500 mg pills), plus 500 mg of biaxin, plus 100 mg mino.  It was like everything in my entire digestive tract died and so I was advised to stay off of it.  It could be that the medication just doesn't agree with me?  Or maybe 1 gram dose was simply to high for me. 

I hope it works for you!  Some people are allergic, some people have a bad reaction ( like me), and some people can tolerate it easy! 

Also I think we talked about varying toxicities between different antibiotics before?  Or we touched on it.  I think ceftin is more towards the less toxic side compared to many other abx.  But everyone of course reacts to these meds differently. 

I hear Ceftin is very powerful. In Pamela Weintraub's book, "Cure Unknown", she discusses how Dr. B says he cured himself by pulsing with Ceftin. Pamela seemed to have good results too.

I'm on ceftin, tindamax and planquil daily and all at once. I feel better than I did on a low dose of doxy. Ceftin is an easy drug for me by comparison

Runner girl - The ceftin added to my biaxin is to continue to treat lyme.
Regarding bart: I told him I am interested in trying rifampin but could I be on it for only one to two months as I had read you need to be on it for 4-6 months and being it is hard on the liver, I am wary of taking it that long. He said if I wanted to be on it short term it might work if I was on herbal treatment for bart. Since I am starting a different med for lyme this week, we won't start the rifampin, but we decided I would start sida acuta for bart and he also wants me to start the cryptolepis (sp?) although it's usually for babesia, he said its good in general for the other co's too. We didn't discuss the houttyunia- (sorry for the wrong spelling). I am to continue with JK and CC.

Ceftin is for lyme.

Runner girl - If something is effective for lyme, no it isn't automatically effective for the co's. Some meds are effective for more than one bacteria. Example- doxy - it is used for lyme and it is effective for a few other things - I think enrichlia (spelled wrong) and maybe even mycoplasma.

LP - So since biaxin and ceftin are strong meds - are you saying I will get a yeastie...lol.
Sorry that was a private joke between LP and myself.

Post Edited (Girlie) : 11/17/2014 6:51:17 PM (GMT-7)

Mike - Cryptolepis is in Buhner's protocol for babesia. I hope I don't herx too badly- I haven't ordered it so by the time it gets here hopefully I will be finished with the ceftin herxing.

Good to know some of you have found ceftin to be tolerable/helpful.
Not sure I like the idea of awful burp taste. Biaxin already gives me an awful aftertaste so this should be interesting.

Ok time to turn off auto correct - having to correct the auto correct too often...

The Biaxin will also help treat Bart, but you probably need something stronger for the knockout punch, like Houttuynia or Rifampin. Ceftin is probably a good complement to keeping Lyme at bay.

I heard Dr. Burrascano saying that 600 mg of Omnicef (which is like Ceftin, another of the oral Rocephin-type ABX) twice a day was the recommended dosage, but my LLMD has me on only 300 mg twice a day, and

I wondered why the low dosage. But I will say that I've taken it over 5 months and had no adverse reactions, only some die-off symptoms, no Herxes I would attribute to it, and it seems to be working. I've

had some massive Herxes during that time period, but based on the timing I attributed them to either Flagyl, the IV Rocephin, or Zithromax being pulsed, or the A-Bab (for Babesia) or Houttuynia Leaf and Lakato Bark (for Bartonella).

But I think the Omnicef or Ceftin really helps everything else, and I think the new ILADS guidelines do have it at 300 mg twice a day, so maybe the Ceftin would work well in a little lower dose complementing other ABX too.

I was like you, wanting to hit it hard and go at it when I started. I didn't know much about Omnicef, just that it wasn't giving me much of a Herx, which I thought meant it isn't working. When I asked my LLMD

the next time I saw him he said that it works differently than the ones we'll be pulsing in, where you're looking out for the serious Herxing, and

that we would be working those in, but that this was one of the most effective ABX to rely on during a long term late stage Lyme treatment plan.

I couldn't take being sick anymore either. Even though I guess I probably had a mostly dormant infection for over 15 years, all of the health problems that came up I fought through, took some pain pills, steroids, bi-polar meds for a while, anti-inflammatories, had my gall-bladder removed, took ulcer medication

(not typical things for someone in their teens and 20's), but accepted what the docs said (I didn't even know what Lyme was), and fought hard to stay strong and healthy

as I could. I think I was in the best shape of my life when the new infection popped up 2-1/2 years ago, and they diagnosed me with Lyme. After 3 weeks of Doxy I thought I could forget about this weird infection and move on.

I remembered the doc that had given me the clinical diagnosis with the bull's eye rash said that if the initial course of ABX didn't work I might have to live with Chronic Lyme the rest of my life. It seemed a bit

weird that he was so excited to see the distinctive rash, said he had heard this was starting to show up in Florida but had never seen one, and asked if I would mind if he could call all the nurses in to take a look,

like he had done some research on this but finally saw it in front of him. But when I had taken a quick look at the first thing I saw when I googled it, I think the CDC's website, they said there is no such thing and Post-Lyme Syndrome might occur, rarely, but its really no big deal and there's nothing you can do about it.

Then it came back. And it came back again. And with each flare-up the severe fatigue was worse than anything than I ever experienced in my life, and it kept getting worse and staying longer each time, so I started

really doing my own research on this thing. I was in shock at all I found out, and I've probably learned more about the field of medicine as it relates to Lyme than some specialists have learned about their own field of study-lol

After nearly 2 years of flare-ups I couldn't take it any more and got my a** to an LLMD.