How long did it take you to notice improvement?

Just ballpark- did you feel better after a month or two of treatment or closer to like 6 months? 2 years?

What was your biggest hurdle- adrenal, thyroid, immune....etc.

I'm 4 months in, and have no improvements. I have read that some people will never improve. I hope that I am not one of them. My lack of progress so far, has me worried.

for me I was sick for 3 long months all while treating, not really that noticeably better, just sick. Then I went on the minocycline + septra DS + plaquenil + tinidazole and I'm not even kidding in just 6 weeks I was like 90%-95% my former self with few symptoms at all, I just felt fatigued and that was pretty much all. Then I continued that for another 6 weeks to make sure the lyme was gone. But I don't think it made much difference.

But in all honesty I've probably only been 90% well since then. Darn bartonella keeps coming back. Now I'm going all out on bart for 6 months, and I'm hoping treatment will be done by that time. After that I probably have to treat yeast for a year! lol, it's never ending it seems.

Utah gal I hope none of us are in that 10%!! I really really think you have the potential to heal. Don't let pessimism get the best of you girl!! You have to believe in your bodies ability to heal, I just don't think you've found what works for you yet. Same with me, I just haven't found the right tool yet.

We have to keep on trying and keep an open mind. Keep fighting and you will eventually figure it out. We all will. For pirouette it was fungal issues, traveler couldn't detox properly. When we do figure out the key to unlock our bodies we can help other people too.

I won't tell you to stay positive, I hate when people tell me thst! But stay open and don't put on the brakes just yet. We've just started, and your symptoms aren't easy ones to live with. Desperation hardly captures what it really feels like to be so sick and to try and try and not feel better.

I'll keep letting you know when I find little tricks and I hope you can do the same for me.

I love the way you explained that! please keep me posted! Like I said I think we have a lot of similar problems, I like to keep tabs on you hahaha

I'm several months in and have no improvement yet. But I'm not worried. We're still figuring out the right way to attack it. If I'm any better in 6 months or a year I'll be happy.

Utah-

I was bitten by a tick spring/summer 2013. For about a year, I had no glaringly obvious symptoms. I had some edema in my lower legs and right foot, night sweats for a few months (I thought this was hormonal) and no matter how many times a day I worked out and how few calories I ate, I could not lose the last 15 lbs I wanted to lose. In hindsight, I think one of two things was going on...1, Either my immune system was fighting the good fight and holding down the fort enough that I didn't realize how serious the situation was or 2, Lyme and co were evading my immune system hiding out somewhere.

By May of 2014 the wheels started coming off. Debilitating fatigue, agitation, brain fog, weird rashes that lasted for weeks, mysterious joint pain. By November, I started developing food allergies. December I finally got a diagnosis. Either my immune system was becoming overwhelmed by this point, or lyme and co was no longer hiding out and the immune system was finally aware there were invaders.

I stated Doxy by mid-Dec. Herxing was horrible but I was also without thyroid support. By New Years I had strep throat and got on 10 days of amoxy. This is also when I got serious about detoxing. Then back on Doxy, herxing was very minimal but I had also started thyroid glandular. And then the UTI hit. 3 days of Cipro, herxed pretty good on this stuff! During all of this time, I also started Buhner's protocol for Babs and lyme, started some anti-parasitic herbs, in addition to other supplements and vitamins. After I was done with Cipro, I started Monolaurin and biofibrin along with the remainder of the Doxy. Herxed mildly for about 3 days. And here I sit today, about 7 weeks from when I first started treatments.

I am to the point now where I can herx mildly to something new that is introduced to my regimen. But soon thereafter, I am feeling about 70% of my old self. I have motivation to get things done that I have put off for months, I have enough energy that I don't need a nap even if I didn't get quality sleep the night before. I have integrated walking to my exercise routine, but I am considering trying some harder workouts, albeit going slow.

I don't know that I am really doing anything any differently than others on this forum, but I have found some things that worked for me, at least for the time being. I am curious to see how I handle new abx that I should be starting soon. If I get a good herx that lasts a while, then I will know that previous regimens had limited effectiveness.

IHL-
about 7 weeks until I began to feel noticeable improvement. Thyroid supplementation has HUGE for me. I tried backing off this once I started treatment and that was a big mistake. I had very dark depression set in, and my body felt like I had been hit by a truck day in and day out. Also, I could sleep long hours in addition to naps and still felt exhausted.

I also think the anti-parasitic herbs gave me a little edge on helping to detox. It was like I had to address those before my detoxing pathways could really be effective on clearing out the lyme and co die-off.

It was about 6 months before I noticed improvement.

Improvements are slow, especially if you have co-infections which many of us here have.

I had some improvements in my first 3 months with my first LLMD then plateaued, and changed LLMD for more aggressive treatment of co's. During that time I got much worse with Babs treatment for 5 months, then attacking Bart for three months. After that I started 16 months on IV that got me to 50%. Then another Bart protocol got me to 80% as I hit my 4th year of treatment.

I'm now approaching 5 years of treatment and at 90%. Maybe this will be as good as it gets and been weaning off ABX. Hopefully done ABX by March/April, and staying with herbals and Colloidal Hydrosol for maintenance. Rotate protocols often.

I'm interested too! Keep em comin!