Very COLD Feet/Hands....Advice or Remedy PLZ

Hey guys, so I have a new symptom that in the last few years I havent experienced with lyme and its kinda worrying me to be honest. My hands and feet (esp. my feet!) are SOOO COLD. They are also going numb on/off. Gosh just when one thing subsides....buh buh but wait...here comes ANOTHER! *Sigh

Normally I have found some good methods to all this madness/remedies, but I dont know what to do for this. I put on lots of socks and put my feet in front of a space heater but they are still cold.


Can anyone tell me if they have experienced this and what it was likely due to?

Also, do you know any remedy for it?


Thanks in advance-Courtney

Courtney - do you have bartonella along with the lyme?

The reason I ask...is my hands are cold, too..and I've never had this (prior to lyme).
But, the reason I'm thinking maybe bart could be causing this is because it affects the circulatory system. On occasion I have "venous pooling" ( my LLND's words) showing up on the tops of my feet - which I think could be from bart.

I just try to keep my hands warm and exercise.
I don't know if you're feeling strong enough to do exercise.

Cold hands and feet is a HUGE thyroid issue. You may need thyroid hormone.

Do you have: hair loss, weight gain, brain fog, low body temp, irregular periods, depression, trouble sleeping??

I have low body temp and can feel it. But its MUtCH worse when my thyroid is more hypO.

I just upped my thyroid med and I feel obviously warmer. Dont need gloves on a frozen steering wheel as much as last month when I was hypo.

Okay thanks a bunch guys :) Its comforting to know quite a few others have experienced this as well. As long as I dont lose complete loss of feeling in my feet & hands I guess I just have to kinda deal until I get to the finish line. I was thinking def nerves too since my whole nervous system just seems to be hit extra hard by lyme considering all the numbness, burning, etc. Ive dealt with. I take the diff B vitamins and ALA (maybe some others for nerves too but cant remember specifically).

If it is to do with thyroid, I think more 'hypo' is possibly correct. Ive been losing weight more than anything lately and I always hear people with thyroid problems gain weight and find it hard to lose.

Another possibility, Im just gonna throw this out there...is I think I possibly exposed my babesia. I think I might be at that "layer of the onion" now. Im on an abx vacation at moment but I had recently did a lyme targeted treatment and since then I had alot of symptoms subside but some other weird ones have popped up. I.E. bouts of sweating, chest tightness, bouts of my heart beating fast/heart palps, tinnitus, head pressure. I actually tested positive for babesia through labcorp so I know I have it. Regarding bart, we're on the fence the whether I have that or not!

All the symptoms I originally thought were bart (burning, rib pain,) could very well be lyme itself. Alot of people say the rib pain is bart but rib pain is actually more specific of lyme from diff symptom lists. Also, the burning can be lyme! For awhile I was attibuting it all to bart! I dont have a positive bart test but I know that dont mean anything. This lyme & co mess is so confusing! This reminds me though, I have a good symptom list saved that another member had posted months ago that I love that is from a reputable source. I am going to re-post it for any members that havent seen it....

Also, I hope its okay to post a link to info I read from another forum that I stumbled upon on the internet (if not, Mods plz let me know and I will edit my post). But this guy is a success story. He is member name "Squeezy". I had stumbled on his posts while researching 'fast heartbeat lyme' and he was experiencing alot of stuff that I am. He was treated by Dr H in NY (I would love to go see him!) and once he was treated for his babesia he states "he is feeling the best shape of his life". I clicked on his actual profile and read all his last posts but here are a couple in case anyone wants to check out.

Success story ;) !! (scroll down to member Squeezy) .....
www.mdjunction.com/forums/lyme-disease-support-forums/general-support/680238-rebabesia-treatment/limitstart/10#2811926

This is how my heart has been beating-like his was doing!
www.mdjunction.com/forums/lyme-disease-support-forums/general-support/574365-fast-heartbeat


Sooo I guess its a toss up between my nerves, hypo-thyroid, or the infections themselves causing.

All in all, hot showers & that heating pad sound like a plan for my freezing cold feet!

Thanks again everybody


-Courtney

Post Edited (orchid_rain) : 2/11/2015 9:40:00 AM (GMT-7)

I used to have the popsicle feet also. For me, fresh grated ginger in a tea (about half a tablespoons worth) and japanese knotweed did the trick. Look up what to do for poor circulation. I only occasionally get this issue since I've been healed from lyme, maybe about once a month and it usually is when I've been sitting for long periods.

Hope you get it resolved soon, it can be worse in the winter!

Thx Daisysmom & Opugirl....at least I know im not alone then! Also wow.. "Popsicle Feet" sums it up pretty good Opugirl!! I almost bought ginger at the grocery store last night...now I wish I wouldve! I have thick socks but I dont think I have any wool...maybe its time to invest in some ;-)

-Courtney

It's Raynaud's and probably the other stuff too. FOR hands: Mittens are much warmer than gloves. They are a must. Get some disposable hand warmers. FOR feet: use a hot water bottle in bed; better and healthier than a heating bad. Slip hand warmers in socks. Feet are harder than hands. Cold and painful hands are the only problem for me.

Thick blood (hypercoagulation) can be the cause of this; especially with Babesia.

I had a major increase in cold hands and feet, head pressure, chest pain, palpatations and neck pain when I began treatment for Babesia (Duncani) with a-bab and Malarone.

I take nattokinase to thin the blood, and I take gingko biloba to increase circulation to the brain and reduce head pressure. I find the head pressure and neck pain may actually be due to the thickening of the blood and the inability for the blood to circulate to the head.

I rarely get this now although I am treating Babesia still. I was still struggling with the head pressure but I really upped my artemesinin and did some research and added back in the gingko biloba that Stephen Buhner recommends for hypoperfusion and I felt better (no head pressure) after taking the gingko.

lastly, not sure if I read correct but just an fyi that hypo (meaning underactive) thyroid would lead to weight gain whereas hyper (overactive) thyroid would lead to weight loss.

Best!

Post Edited (SLML) : 2/13/2015 4:24:48 PM (GMT-7)

I have this problem, sounds like thyroid, my doc just started me on kelp