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Posted 2/22/2015 6:45 PM (GMT 0)
Hello everyone, I was just wondering if anyone has symptoms similar to mine.I was clinically diagnosed with having lyme disease and my symptoms are mainly neurological.I have muscle twitching(faciculations), crawling sensations, electric like tingling, buzzing sensations all over my body.A novocaine like numbness in my skin all over.static like floaters across my entire visual field, ringing in my ears (tinnitus),vertigo,motion sickness, senitivity to noise and light, anxiety, panic attacks (for no reason). I have developed depersonalization and derealization .I feel like im am constantly in a dream state, like nothing is real.The derealization is the symptom that bothers me the most.I hope it goes away when I get treatment.I also have something I like to call"robot voice"I think because of the constant ringing in my ears, It makes me perceive noise like its broken up ,everyone sounds like Daleks or robotic like.Weird or what? Oh, and my nervous system is stuck in fight or flight mode.
Posted 2/22/2015 6:59 PM (GMT 0)
Hi LayTee - I had or have the muscle twitching, crawling sensations, buzzing sensations, anxiety, panic attacks, and the fight or flight mode - little unexpected sounds and i would jump like someone shot a gun!!

I haven't heard of the 'robot voice' yet...but with Lyme disease almost anything is possible...as it can harbour into any body part...and wreak havoc.

Have you started treatment yet?
Do you see a LLMD?
Posted 2/22/2015 7:30 PM (GMT 0)

Girlie said...
Hi LayTee - I had or have the muscle twitching, crawling sensations, buzzing sensations, anxiety, panic attacks, and the fight or flight mode - little unexpected sounds and i would jump like someone shot a gun!!

I haven't heard of the 'robot voice' yet...but with Lyme disease almost anything is possible...as it can harbour into any body part...and wreak havoc.

Have you started treatment yet?
Do you see a LLMD?

I haven't started treatment yet.I do have a LLMD but he is outside of my insurance network and the cost for the medication is $8000 that I cant afford. I'll probably start the Buhner Protocol and see if it will help any.
Posted 2/22/2015 8:06 PM (GMT 0)
The buhner protocol is not expensive - especially when you first start out.

I am doing Buhner alongside the antibiotics.

Remember when you start Buhner, go low and slow. Start with one low dose....and after several days, add in the second one, low dose...etc. When you're at all of the herbs low dose and tolerating it, then raise the first one, wait several days, and raise the next one...etc.

I originally thought to start with one low dose and increase to full before adding the second one...but Rowingmom (who has had success) advised that getting all the herbs in at a low dose is the way to do it, and then start to increase one at a time.
Posted 2/22/2015 8:44 PM (GMT 0)
Ok, I will start off slow with low doses. Because I don't want to have a severe herx reaction like I did when I used the zapper.

Girlie said...
The buhner protocol is not expensive - especially when you first start out.

I am doing Buhner alongside the antibiotics.

Remember when you start Buhner, go low and slow. Start with one low dose....and after several days, add in the second one, low dose...etc. When you're at all of the herbs low dose and tolerating it, then raise the first one, wait several days, and raise the next one...etc.

I originally thought to start with one low dose and increase to full before adding the second one...but Rowingmom (who has had success) advised that getting all the herbs in at a low dose is the way to do it, and then start to increase one at a time.

Posted 2/22/2015 10:56 PM (GMT 0)
Please know that you can start off with as little as one drop.
Posted 2/22/2015 11:51 PM (GMT 0)
Hi Laytee, I experienced all the symptoms you are describing. Certain frequencies of sound would make a broken speaker noise in my ear. The first time it happened I thought I had a bug in my ear. You're right, the depersonalization was by far the hardest thing I had to deal with. I literally felt like I was in someone elses body...ever seen Being John Malkovich? In the beginning before my diagnosis, my primary care doctor treated me for anxiety even though I knew there was something else going on. Eventually the depersonalization stopped happening but I would still have random panic attacks for no apparent reason. I'm 3 months into treatment from my LLMD and I am doing quite well. Honestly, I never imagined I would feel this normal again.
Posted 2/23/2015 1:32 AM (GMT 0)
I was diagnosed with having generalized anxiety disorder to, but my psychiatrist did admit she thought there was something physical causing my problems. I never saw the movie Being John Malkovich, Imma have to check that out.Im glad that you are feeling better. I hope that I will feel better to with treatment.

ToTheTop said...
Hi Laytee, I experienced all the symptoms you are describing. Certain frequencies of sound would make a broken speaker noise in my ear. The first time it happened I thought I had a bug in my ear. You're right, the depersonalization was by far the hardest thing I had to deal with. I literally felt like I was in someone elses body...ever seen Being John Malkovich? In the beginning before my diagnosis, my primary care doctor treated me for anxiety even though I knew there was something else going on. Eventually the depersonalization stopped happening but I would still have random panic attacks for no apparent reason. I'm 3 months into treatment from my LLMD and I am doing quite well. Honestly, I never imagined I would feel this normal again.

cry
Posted 2/23/2015 1:57 AM (GMT 0)
Depersonalization is awful!
I have not been diagnosed with Lyme, but have just recently gone to my 1st LLMD and am awaiting test results and a follow up visit.
At the start of my physical symptoms (tinnitus, muscle twitching all over, burning headaches, tingling & numbness in my arms and legs, anxiety, and more...) the worst by far was the depersonalization, or, dissociation. I lived in this state nearly 24/7 for 3 months and by the 3rd month began feeling suicidal.
I VERY much can relate it to the Being John Malkovich movie. It still happens some (a lot less often) and I've always said it's like being trapped in my head or behind my eyes.
It took a lot of work to manage it - meditation, yoga, journaling, therapy and the occasional Xanax.
You aren't alone!
Hang in there
Posted 2/23/2015 6:29 AM (GMT 0)

ToTheTop said...
Hi Laytee, I experienced all the symptoms you are describing. Certain frequencies of sound would make a broken speaker noise in my ear. The first time it happened I thought I had a bug in my ear. You're right, the depersonalization was by far the hardest thing I had to deal with. I literally felt like I was in someone elses body...ever seen Being John Malkovich? In the beginning before my diagnosis, my primary care doctor treated me for anxiety even though I knew there was something else going on. Eventually the depersonalization stopped happening but I would still have random panic attacks for no apparent reason. I'm 3 months into treatment from my LLMD and I am doing quite well. Honestly, I never imagined I would feel this normal again.


Tothetop, would you mind sharing what abx your llmd has been treating you with the last 3 mnths? Do you know if you have any co-infections?

-Courtney
Posted 2/23/2015 6:46 PM (GMT 0)
http://www.tiredoflyme.com/bizarre-hearing-symptoms-of-lyme-disease.html#.VOt1o4Eo7qB
This website has an accurate description of my lyme hearing symptoms. .it better explains what "robot voice" is
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