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Symptoms, can ANYBODY relate?!?!? CHICAGOLAND AREA

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Lyme Disease
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Posted 4/10/2015 1:49 PM (GMT 0)
I was wondering if anyone has experienced headaches, pressure in the head, soft/tender spots (that move around), joint pain, muscle weakness/twitching, palpatations/tachycardia, bells palsy, aching all over my body and vertigo/dizziness with lyme. I have so many other symptoms, but those are the ones that are the most frustrating. I have an appointment with a LLMD on Monday so I'm anxious to meet him. He has ordered a basic Lyme panel for me and co-infection panel and is sending the blood work through IGenex. I only had a ELISA test with my neurologist and it came back "negative" and she told me to "get Lyme out of my head because that's not what's wrong with me" (even tho she can't explain what's happening to me). I've seen my neurologist (numerous times), I've had multiple CT scans, MRI's and blood work which has come back ok (except elevated ANA levels and I guess an artery in my brain is slightly narrow but the neuro said I was born with it and it shouldn't affect anything). I'm just frustrated because I'm having so many doctors tell me "you're ok", "you're a young healthy girl, it's all in your head" and "go get some help with your head". I was exposed to ticks in 2011 when I was pregnant and again in summer of 2014 (I pulled a lot off of my dog and he sleeps in my bed as well as finding a BUNCH in my house). Im frustrated and hoping this LLMD can help in my road to recovery. I have an almost 4 year old son and I'm so exhausted all day every day.

Post Edited (Alyrose2) : 4/10/2015 8:27:55 AM (GMT-6)

Posted 4/10/2015 4:38 PM (GMT 0)
Hi Alyrose,

Those symptoms all sound very typical of Lyme. It is great that you're getting in to see an LLMD! Unfortunately, many are told that it is all in their heads when it is not. Lyme is very real.

If doctors can't see anything physically wrong with you and testing comes back normal, that is an all too often conclusion. Many can't produce the antibodies to show on Lyme tests due to compromised immune systems. It is very sad.

You're on the right track. If you have not already done so, check out the "New to Lyme" thread for tons of great info. You can start detoxing now, which will help a lot.

The LLMD will not tell you it's in your head. He or she will try to help you figure out if you have Lyme and treat you accordingly. A good LLMD will also look at the whole picture and try to figure out what else could be going on. Many times, Lyme causes a number of other conditions too.

Good luck! Let us know how your appointment goes.
Posted 4/10/2015 4:53 PM (GMT 0)
Yes, I have had all of those symptoms. The good news is that they have all been resolved with treatment.

I am so glad you are seeing a doctor who can help you! I think you'll get a great sense of relief talking to someone who understands Lyme.
Posted 4/13/2015 12:52 PM (GMT 0)
I felt the same as you when I was going through the diagnosis process. It could be so many awful things that you freak yourself out and even after you find out it's Lyme you still have thoughts in the back of your mind that it may not be Lyme but something else.

I went to every type of doctor under the sun and none of them even thought of the possibility it's Lyme. I had to research it myself and go to an LLMD and came back CDC positive for Lyme and Bart.

Your symptoms for Lyme. I experienced some of them and also some that you did not mention but everyone's body reacts different.

I hope you feel better and heal quickly. Just remind yourself that there is a higher probability it's Lyme than anything else.
Posted 4/13/2015 7:19 PM (GMT 0)
Yes i have heart palpitations,shaky,twitchy at night,fatigue,body aches sounds like my symptoms just diagnosed with bart hugs
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