Nobody Else with Speech / Tongue / Mouth symptoms?

Lyme is not shy in presenting a laundry list of symptoms and I have had quite a bit of them but when I post about mouth related and speech / tongue related symptoms I don't seem to get many people that identify and experience similar symptoms.

Is this not common? It's on the list of known symptoms but I really want to gauge if other people are experiencing this or not.

Please share if you've had any mouth/tongue/speech related symptoms. I am panicking a bit over here.

I have had speech problems and was wondering the same thing. Some days others can't understand a thing I say.

When I saw the first Lyme doc last year, and i told him about it, he said the same thing as my second Lyme doc. He said "I don't like that". Apparently it's when the spirochetes go "deep". One doc said "I can't bring it back, but I'll keep it from getting worse". PS it improved after 6 months of rocephin. But, long story short, I had to pull the PICC and it really got worse after a few weeks while I was gearing up for another PICC. I am back on rocephin and hoping I will sound like myself again in the fall. I feel like my tongue is too big for my mouth, and my muscles in my mouth aren't really working too well (like the rest of my body).

It's definitely worse at night, and considerably worse if i eat gluten. Between that and the severe balance issues (and plenty more) people think I am drunk all time!

I would welcome other people's input. Not that I wish this bizarre symptom on anyone, but it's comforting to know I am not alone with this problem.

Hang in there because it can improve. It's a long haul...

Happy33, you had the "extra saliva" too? I get that and I sort of feel like I am drooling a bit, but no one else notices (I've asked people I know well to tell me if they notice a symptom with me so I can tell when it's improving). At least 4 people said they understood me better before i went off meds.

May I ask what meds you are on?

It often feels difficult to move my tongue the way I want it to, as if it is stiff and swollen. At those times I find it difficult to speak. It twitches too, and I have what they call a geographical tongue.
I have the extra saliva too, or is it rather having difficulties to keep a normal quantity of saliva in my mouth?
Husband looks at me as if I'm nuts when I drool when speaking (this is not constant LOL, I don't leave a trace).

I was diagnosed with burning mouth syndrome and another similar pain condition that affects the mouth nerves. I was also diagnosed with severe tmj and they wanted to break my jaw. Nice huh. I have lots of issues with my throat, mouth and jaw

I have the tongue/mouth issues (tingling, burning, swollen and sluggish tongue) as well as throat pain/irritation, swallowing difficulties. I was doing better with these symptoms until work stress came into play in the last couple of weeks. They are very annoying and can be scary.

my tongue has been so thick since getting sick, and a few years before i knew what was wrong, i was producing too much saliva on one side of my mouth, and it happened at work often, which was in 2007

which was embarrassing, but had no idea what was causing this

sorry you all are going through this, thanks for sharing ,

Post Edited (dorifish1) : 4/13/2015 8:19:46 PM (GMT-6)

My son had this. Sometimes he would just let his tongue hang out and couldn't speak. Other times he would say he could not swallow pills. His tongue sometimes looked fat or swollen. It was a source of great anxiety for him (and me).

I do wish you luck Happy33! My son hasn't had those mouth problems in awhile and we don't miss them. Hope yours go aways soon too!

I often get the feeling that my tongue is swollen. Because of horrendous foot, ankle and shin pain and night sweats I am now also on Zithromax. Began Friday evening and feel like I got hit by a truck today. More pain in feet, shins, hands, ribs and back. Also have nausea and dry heaves. This sucks in plain English.

Happy33 said...
Thank you everyone on this thread. I am always overwhelmed by how kind, caring and engaged everyone is on this site.

Traveler, you are fantastic and always know what to say to ease my anxiety and fear.

I am moving to a fully herbal protocol after 4 months of standard antibiotics and a few weeks of no treatment at all. I am going to kick this lyme and feel 100% again. I'm determined and focused.

I will probably be back for more reassurance as symptoms scare me back to thinking this could all be part of a scary 3 letter acronym disease but for now...wish me luck!!

Thanks again everyone!

Yeah, I love this forum!!

And thank you for your kind words - I'm glad that what I went through helps others to understand!!! It gives something back to me, as if I didn't go through it just to see if I could! LOL!!

And do please come back any time you have questions or concerns!! We are all in this together!!

Go get 'em!! Stay determine and focused on your healing!!!

My husband was diagnosed with a weak tongue which is causing a slurred speech. This happened overnight but now the dr feels he has ALS. He has severe TMJ which causes pain in his jaw and makes it hard to chew in turn tiring out his jaw.

I'll have stiffness around my mouth sometimes like muscles are stiff and makes it more difficult to talk clearly or fast. Have a strange thing now that when I stick my tongue out, it curves to the right. I think I do have neurolyme pretty bad. I've had tingling and numbness around the outside of my mouth also.

UnsightlyCygnet🌠 said...

ElizKA26 said...
You're not alone. I have a tingling cold tongue, sometimes it twitches. Sometimes I get nasal pressure so heavy it slurs my speech, not always, but here and there, that's related to Sjogren's drying out my nose. I'm told that's a complication of Bartonella.

Oh the Sjogren's on the nose is horrific! I've got to use steroid nasal drops for now. Then a nasal spray. I'm just terrified of the symptoms coming back, I literally cannot breathe and the nasal pressure feels like airs getting to my brain.
It's not even so much that it's dry, but it's inflamed which is causing the issues.

.

Isn't it? Be careful though with the steroids. I'm told that can reactivate Lyme and co-infections. No, that whole part of my face and nerves are affected to an extent. Not glad you have it, but glad to know someone knows what I'm talking about.