Untreated Lyme

Colin:
Welcome! I didn't have arthritic pain either and I had a positive western blot. My children tested negative through Elisa regular lab. My son tested positive for both Lyme and bartonella through igenex. Regular labs are unreliable because they test for only one species of borrelia. It is known that there are over 300 species!!! Find an LLMD. Test through Igenex. Anxiety/panic attacks/chest pain may be caused by barto. Chest pressure may be from babesia. A llmd will know what to do with you. Read the "new to Lyme" thread ASAP and start healing.

Based on your symptoms you likely have Lyme and very probable a co-infection as well.

Hi colin, welcome to the forum!

Yes, it sounds very much like Lyme and most likely a co-infection with it. You can see symptom lists in the "New to Lyme?" thread for Lyme and some co-infections.

You will want to find a Lyme Literate Doctor who is associated with ILADS, the International Lyme and Associated Disease Society. You can go to their site and get recommendations for doctors.

Another thing you can do is start a new thread entitled "Looking for LLMD near (state your nearest big city). Our members will then email you doctors' names. You will have to enable the email option in your profile so they can do that.

Looking on line for an LLMD is problematic. Most LLMD's don't advertise themselves (there has been a problem with their getting in trouble for helping Lyme patients). And please be aware that there are some unscrupulous doctors offering quick treatments for ridiculous amounts of money.

With Lyme imitating so many diseases, it is very easy to get drawn to being diagnosed with any one of them, but with your history of a tick bite and rash, it is pretty much a sure bet.

As for how long before you see a resolution of your neurological symptoms, that is quite impossible to say. It depends on whether you do, in fact, have a co-infection, how you respond to treatment, and if your body is able to move toxins out.

Anyway, glad you found us!

Hi Colin!
Welcome to our community!! I'm so glad you found us!

I would encourage you to look further into Lyme treatments as well. The symptoms you list are very much in line with having Lyme, and the MS drugs will set you backwards in your healing if you actually have Lyme.

And no one can tell you how long you will need to be in treatment as it differs for each of us. I healed very quickly for someone who had these infections for over 40 years, others need to be in treatment longer for many reasons.

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.​

For more information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ LLMD in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your location.​

You can also email the Tick-Borne Disease Alliance at​[​​url]​[email protected]​ for LLMD referrals and you can go to ​tbdalliance.org/​​ to learn more about these infections.


​ You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your Lyme journey.​​www.ilads.org/lyme/ILADS_Guidelines.pdf​​

6 people that's unheard of. But mine are pretty much all neurological affecting different parts of the nervous system just thought it is strange that I've been untreated for years without joint pain. Thanks for your response I'll find someone soon.