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ID doctor told me IGenex isn't an accredited lab.Smh

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Posted 5/2/2015 2:29 PM (GMT 0)
I recently went to an infectious disease doctor with an iv rocephin prescription from my LLMD. I also showed her my IGenex test results( thinking she would help me).I knew beforehand, that her ignorance about lyme would get the best of her.she told me that IGenex isn't FDA approved.disregarded the part where it says, if IND's are present it could be medical significant.I already have a clinical diagnosis from a LLMD,but he's expensive and outside of my insurance network. (that's why I went to her) She told me that I need to give up on the whole lyme disease thing and find another answer to my problems.There is no other answer. I had thousands of tests and the only thing that came up was a positive ELISA test and medical significant WB.So she then tells me that she is going to refer me to a neurologist. I already been to two who couldnt find anything wrong and sent me away. She really made me angry. I'm not going to anymore doctors who aren't Lyme Literate. That was the straw that broke the camels back..
Posted 5/2/2015 2:34 PM (GMT 0)
I'm so sorry, LayTee, but that's exactly why we actually discourage members from going to ID doc. You're experience is so very typical. I'm sorry that you had to endure that though.

I too wish that LLMD's weren't so expensive, but it's doc's like that ID doc that keep a lot of the LLMD's from accepting insurance - the insurance companies turn in the LLMD's for not following the same guidelines that the ID docs follow - so they can't take insurance.
Posted 5/2/2015 3:46 PM (GMT 0)
It was a pretty humiliating experience. I guess I will just give cat's claw another try,and then try to find some place that does vitamin c IV's..see if that helps any.
Posted 5/2/2015 3:55 PM (GMT 0)
Can I ask why you aren't using a "full" protocol? Buhner's is a reliable protocol to trust, and so is Cowden's.

Can you not go back to the LLMD that you saw?
Posted 5/3/2015 12:12 AM (GMT 0)
My system is sooo sensative to everything. Even certain vitamins make me sick.I haven't really looked at the protocol yet.I only tried cat's claw, and that gave me such a bad reaction that I didn't want to try herbs anymore after that.I herxed so bad and was in bed for 2 weeks.. unable to move or do anything.
Posted 5/3/2015 12:43 AM (GMT 0)
What size dose did you start off with? You should start off with a really low dose - 1 drop if necessary- and build up slowly from there - and detox like there's no tomorrow! LOL! Seriously, you need to be detoxing well and for some of us that means taking binders and doing everything we can to help our bodies deal with the sudden increase in toxins from killing off the bacteria.
Posted 5/3/2015 12:43 PM (GMT 0)
I started off with 2 full droppers. ..I know I need detoxing because I feel toxic lol.What kinds of binders do you use? I heard about activated charcoal and read that food grade Diatomaceous is good for binding toxins and parasite removal. I bought some Diatomaceous earth but haven't used it yet.Sometimes I wonder if ihave mold or heavy metal poisoning as well.I wonder are my mercury fillings causing me problems too....I have a script from my LLMD for heavy metal testing but the ID doctor wouldn't test me for that either.
Posted 5/3/2015 1:33 PM (GMT 0)
I would encourage you to get the heavy metal testing done, as that can really play a part with issues in trying to heal from these infections,

I prefer activated charcoal, but that's because the Diatomaceous Earth causes massive constipation for me. blush I can keep up with the extra water needs with the activated charcoal, but not D.E.

I would definitely encourage you to try the Cat's Claw again - only this time start off with a much smaller dose - like maybe only the 1 drop and raise your dose slowly until you start having symptoms increase - then hold there and do all you can to reduce your symptoms by detoxing, but you can always lower your dose back down by a couple of drops until you get the increased symptoms (herxing) back under control and then carry on again.

But, you will need more than just cat's claw to take care of the infection. Do you have a protocol chosen that you wish to follow?
Posted 5/4/2015 2:59 AM (GMT 0)
I will probably do the Buhner's Protocol. And I will use the Cat's claw again soon, but this time in small doses. Then afterwards I will detox and see if any of my symptoms improve.
Posted 5/4/2015 11:57 AM (GMT 0)
You should be detoxing before, during AND after using the protocols. The bacteria put off toxins that overload our systems as they die, driving our symptoms. That's why you herxed so bad - your system was overloaded with too many toxins.
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