HealingWell
Search Close Search
☰

Hello again everyone. Been absent a few years. Ill be back around. Hope everyone is well. Hey Cajun!

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/10/2015 6:50 PM (GMT 0)
Its been about 4 years since Ive been around. And boy have I been through a lot. I have a little girl. She is 7. I lost a baby bot at 5 months of pregnancy 2 years ago. And I lost my mother to murder a year ago.

A little bit of depression has been a big set back for my health so I am coming back for support and to give support as I used to.

I am also very interested in recieving new political information... It seems as though people I used to speak to in my life that I decided to become silent about the topic with......Are now coming to me saying things like Veronica I met these Lyme advocates and Im begining to realize you were right. Lol lol Its like Alllelulia. And there are new doctors and specialist popping up in the cleveland clinic area. Im an hour away from Cleveland Ohio.

Happy Mother's day everyone. Ill be seeing you, Love to you all,

~Veronica
Posted 5/10/2015 7:02 PM (GMT 0)
Oh Veronica, I am deeply sorry about your mom and your unborn baby...
I am glad that you have come for support. I know that you already know this, but everybody here is awsome!
Welcome back... You know that no matter what, we never give up hope.
It is a constant fight, and WE will win.
Posted 5/10/2015 7:13 PM (GMT 0)
Hello Elmesanoya!

Thank you so much for the welcome. We will win! Im interested in getting to knoe all of the new members. Like you. Happy to be seeing some old names still here. Like Dejavu and Cajun. Its very nive to meet you Elmesanoya! Have a wonderful day.
Posted 5/10/2015 8:03 PM (GMT 0)
Likewise Veronica, nice to meet you... And you are very welcome.
:-)
Posted 5/10/2015 9:01 PM (GMT 0)
Hi Veronica!! I remember you! Quite the feat some days to remember people!!! LOL!

I am incredibly sorry to hear about the loss of your Mom and of the little boy - I too lost a little boy at 5 months.


Congratulations on your little girl!! What a joy girls can be. My girl (now 31) is here with me today and is my very best friend.

We were definitely ahead of things back when you and I first joined this forum and it's taken a long time for even just this little bit of awareness to come about - and hard won - but there is still so much more that needs to be done.

We are very much still here for support for you!! Welcome back!! :-)
Posted 5/11/2015 4:47 AM (GMT 0)
I just saw this post.. Im happy you remember me Traveler! I think I remember you now also. My daughter is 7 now. Thank you.

Im so sorry to hear that you also lost a boy at 5 months. That is such a coincidence. Do you feel like it was the Lyme or a coinfection that caused your loss? I couldnt get them to do any elborate testing to see. But they said it presented as a sudden rapid infection which starved the uterus of Oxygen.
But yeah!! You said it.. We sooo were ahead of things. Ugh it felt so lonely lol. Well except for talking here. <3

One of the hardest things was actually treating my daughter for a while. She seemed to be suffering at one point. As I look back it was after a Vaccine... Which I do not allow anymore for her. NO more Vaccines.

But tell me what you would do.... She would wake up everyday and lay on the couch for at least an hour or more. She had a great sleep schedule. And normally had to much energy. Usually woke up and was happy to be awake and playing all around. So this couch behavior began. And then she just began to have frequent flu like symptoms. So I treated her for about 6 months..she was doing much better when it became hard to keep the gut bacteria balance healthy. She does well now. And thank God she naturally is a very healthy eater.

But lately she has been telling me that her knees are hurting sometimes. So Im going to have to keep an eye on her. She is my little mini me. And like you said about yours...as young as my little Mia is, she is my best friend also. She communicates sooo well. I really feel as if she is just naturally that way..but I did the baby sign language with her and I feel like it really enhanced her communication skills.

Im interested to hear what politically is going on. Because there seems to be some sort of Lyme concerned Docs in Cleveland now.... I havnt researched if they are credible at all. But have heard that they are there. And when I saw a rheumatologist at the Cleveland Clinic 6 years ago, I know they didnt exist at that time.

Post Edited (veromia333) : 5/10/2015 10:51:08 PM (GMT-6)

Posted 5/11/2015 4:49 AM (GMT 0)
Oh and I heard that I think it was 6? States passed laws protecting the Lyme docs rights to prescribe the long term ABX.
Posted 5/11/2015 12:50 PM (GMT 0)
Hi Veromia,

I remember you as well... I am so sorry for all that you have been through, goodness, how horrible..

I'm glad you are posting again and please feel free to e-mail me okay? We are here to give you support!!

Big hugs,
Denise
Posted 5/11/2015 1:51 PM (GMT 0)
Hi Veronica,

If you would like, my email is available. I lost two babies 4/5 months each and both of my parents in the space of 7 months. As an only child, it was hard. Around those same years, we had house problems and had to have our foundation dug out and move out 5 months, my husband's job at the Fort moved to another state - he now works there and commutes, home a few days then there. My boys got lyme in 2010 and one became completely psychotic on 2013 when it "came back" after being undertreated in 2010.

I have much empathy for you and don't know how we get through the days sometimes.

Please send me a note if you want to. I'm sure you will have enough support up here.

I have not been on much in a week or two - just not up to it.

Congrats on your baby, hope you are in remission and well.
Posted 5/11/2015 3:13 PM (GMT 0)
Thank you Lovemychildren Mom, my baby girl is 7 now. I am sorry to hear of your losses as well. The struggle is real. And I am sooo sorry to hear about the boys. I hope things are getting better. I am the opposite of in remission lol... but Im ready to learn about all of the ABX alternatives. And give this another go at healing. I am here for you also. Ive been a little out of the game..but I am a very fast learner. And I always loved helping here. It sounds like you have been through sooo much. My empathy is strong for you too. Thank you for the welcome back my dolling. Ill be seeing you. ;o) <3 to you.
Posted 5/11/2015 3:17 PM (GMT 0)
Hello Denise! Happy to see you again also. Thank you for the continued support. Its been a long and winding road...but Im very proud of how I have handled things. I try not to impose my heartache on anyone including myself lol. And Ill be seeing you too love. Thank you!
Posted 5/11/2015 3:24 PM (GMT 0)
Oh and Lovemychildren Mom, Have you ever tried stabilized oxygen for yourself and the boys? AKA, MMS original. Its cheap and will last a long time and it really helps behavioural stability , mental stability. In light doses everyday. It also detoxes without side effects if taken in light doses. Really clears you out so you have to take it at different times if you are taking abx or something. At night is a very good time to take it. And in the morning before anything else.
Posted 5/11/2015 3:43 PM (GMT 0)
Veromia, Hi and welcome back. I am sorry to hear of your losses. It is a hard road to hall. We are here for you. Good luck with your future.

Lovemychildren, I did not know that you lost both of your parents so close together. I am also an only child and can relate to how hard it must have been for you. I can't even think about losing my parents. I hope you are doing well with you boy and taking care of yourself. My son is also sick with a chronic issue. I feel for you, it is so hard some days! E-mail me if you ever want to. I am not sure if my e-mail is on or not, but if it is not, tell me and I will turn it on.
✚ New Topic ✚ Reply