I really need help!!

So I will start off with all my results that I got back earlier this year. um jan.6/15

Before you read all this I am from Canada so show a little love for the heart break I have been through..

B Burgdorferi 40 <40 negative 40 equivocal = or > 80 positive

IGM Igenex Positive
CDC Positive
18 +
23-25 +
28 -
30 +
31 -
34 -
39 ++
41 IND
45 -
58 -
66 -
83-93 -

IGG Igenex Negative
CDC Negative
18 -
23-25 -
28 +
30 -
31 IND
34 -
39 IND
41 ++
45 -
58 -
66 -
83-93 -

CD57 NK cells 44 <40 low 40-98 borderline >98 normal

1.52 <2.26 low 2.26 to 4.65 borderline > 4.65 normal

sorry if messy my brain is just not here anymore

This might be long but I will try to type my story short and try to include much as I can I am sure I will miss things.

So I have been sick for around 10-15 years I am not sure if it was all from lyme or what, I have been through around 8 different doctors now ranging from GP to endo's to urologists you name it I have seen them.. except a neuro... Around 4 years ago I told my GP I am so tired I can't handle it anymore so exhausted and fatigued and so much pain all the time in my body. Told her my fingers are numb tingling my legs are swollen I just can't wake up for the life of me.
So she runs a bunch of tests and says you are completely healthy and I should stop complaining, ok fired next. Next doctor decided he would test for my testosterone, I was 23 at the time. I was like that is weird but sure why not. Ran the test came back 2.9!! from a range of 11-29, it took 11 months to see my endo after I got those results, in the end I had 46 xx male testicular disorder with sry positive. So basically I am all male but I produce no testosterone or very little and I can not have kids.
I was like good now I can fix my tiredness and fatigue, we started androgel didn't work fingers hurt more, went to shots my testosterone wouldn't go up, tried that stick stuff? sucked so much. So I said lets try max dose on the shot. My lvl right now is a steady 13-14 ish and my now urologist is happy with that. But my fatigue and all my symptoms are still there seriously the T made no difference to me at all.

Fine lets try something else, start researching into thyroid conditions because it has to be something right? Doctor refuses to test my TSH levels, I found another doctor that would but he only tested base TSH and t4's we did 3 tests of them it bounced from 1.01 to 4.34 and he said thats normal because if under 5 he is happy with it....

OK WHATEVER NEXT by this time it is about a year and half ago, my fatigue my bone pain my chest pain my brain fog it is so bad I can hardly work anymore. I do construction taping so you can imagine.
So I start researching online all my symptoms etc and boom their it is Lyme disease, I seriously spent weeks researching it. Asked my doctor to test me for it she refused (3rd gp now)

So I look into natural paths and found 1 here in Calgary and she had 1 of those biomerdian machines? I don't know how much I believe them but sure why not. So first visit I see her she does a huge test thing and checks how my nerves or something react with one another? It came out with a few things like cat scratch candida mono (I never told her but I caught mono about 6 years ago) lyme and 1 of the co infections.
I didn't trust the machines so she asked me to do the test to I genex and those are the results I got.

So with a big smile on my face I walk into my doctors office and said here look at this positive for lyme, she looks at me and said I refuse to read these it isn't from a Canada authorized lab, my jaw dropped I am like #$@!$! she goes you are perfectly healthy maybe you are depressed. *fired*

So I found this doctor about a 2 months ago in Calgary that I just finished now 3 months of antibiotics he is nice but doesn't know much about Lyme, I had amoxicillin then doxy now rifampin I just finished. And seriously no change, maybe too low of a dose?

I found this LLMD here in Calgary I won't post his name but my general doctor referred me to him and he told me I would be seen asap because of how poor my condition is, I was also offered disability which I refuse I just want to be healthy and be happy. This new doctors receptionist are such A holes it is unbelievable.

I called 4 weeks after he sent the referral in didn't get a call back, called a week later nope no call back. So I went down to the hospital and went to see them. They got the referral that day and said he is on vacation for another month. Said I would get a call back next week for an appointment (this was 2 months ago) So I called ago no answer, my fiance is getting tired of this so she calls nothing. Next day they call my home and my fiance answers, the receptionist said STOP CALLING I talked to you today and if your boyfriend .. is threatening to kill himself go to the emergency we will not be answering anymore of your calls and the doctor will not see you, you are booked off from the system and hangs up. My fiance stunned tried to call back because she couldn't speak and they don't answer.. funny thing is she didn't talk to anymore there so they mixed her up with someone else.. and I am getting messed over for this how? I am not suicidal sure I am royally pissed off.
They will not answer my calls and they refused to talk to me when I went to the hospital.

So I told my general doctor this about 3 weeks ago and he said he emailed them to boost me up, I have not heard back from them.

I am at the point of going is this a joke? honestly? seriously? I don't know what else to type because I am getting very upset just thinking about everything I have been through and knowing how other people are struggling also.

I don't know what to do that is the only LLMD that I know of that is even reasonably close to me. I am tired of this pain I am tired of this fatigue I am tired of my mood and my anger I am tired of being Tired.

I have read 4 different books on lyme, I am always watching youtube for more vids, I watch horowitz talk or cowden. I listen to everyone's stories and always checking for upload dates for new 1's. EVERYDAY I am researching hoping their is a change something I can do about it.

I am just so sad living like this no one should live like this, I have so much negativity around me but it is really hard to even get out of bed. I work like 3-4 days a week 5-6 hour days because I just can't do anymore, and I clean the house I take care of everything I pay the bills, I have no energy for anything else. I want to go fishing I want to go camping I want to go for a bike ride but I just can't do it. I push to hard I am screwed the next day. I already take some supplements to deal with herxs etc

I guess writing this I am looking for help, someone I can talk to or turn to someone to put me on a path I can go for.
I have been to the emergency too many times to count, I get IV's for pain and swelling and it just doesn't work, they say feel better? I am like nope, last time I went they gave me ketorolac's and told me only for severe pain so I took 1 ha did nothing. Living with this pain trying to be a good fiance trying to manage working and a house and my disease is very stressful and I don't have a lot of support at home, everyone compares and goes O YOU HAVE PROBLEMS? man even my fiances doesn't think I do enough... I am just sad... I do as much as I can with being so tired blah sorry just rambling.

Thanks for reading sorry for making it messy.

Hi Sany - fellow Canadian!

Ok - so you have Lyme disease. The Dr that gave you the antibiotics - are you still seeing him? Will he be giving you more?

Are you able to go to Richmond, BC? Before you say "no - it's too far" - hear me out....lol.

There is a LLND in Richmond that is licensed to prescribe antibiotics. 80% of his practice is treating Lyme disease. He is my Dr.

I'm thinking that it's probably about 10 hours by car from Calgary to Richmond (outside of Vancouver ). After the initial in person consult, he will do phone or skype appts for several months.

That is an option you could consider.

There is a LLND in Alberta, too. I will try and find the website and post a link for you. I don't know of anyone that has gone to her though.
This forum is a great place for support. Keep coming back here!

We can help you through this.

Also - if you want to do an herbal treatment - we can help you with that, too.

Hi Girlie, I would be willing to travel anywhere it money really is no object to me as long as I get some where with treatment. I really want an LLMD I tried the LLND route but I want something strong to kill it I been on herbal for about 7 months with adrenal support with not much effect.

This is the link to my LLND in Richmond, BC.



www.pannaturopathic.com

Thanks Hoshie for the information!

Do you know anyone that has gone there and has had results?

hey at girlie! I'm from the Vancouver area as well. I don't have Lyme diagnosis, but have many of the symptoms. How did you discover your Lyme?

helpmeheal - How did I discover I had lyme disease?

Well, for over a year, I had symptoms that just kept piling up. My GP did scads of blood tests, scans, etc. Went to another GP, two endocrinologists, a neurologist, a physiatrist, two naturopaths, and also consulted with a GP (over the phone) in Vancouver.

Then I tested for Lyme, here in Canada....negative.

Then I joined this forum...and learned that Igenex was the best test to use...along with questioning members if my symptoms were consistent with lyme disease.

Igenex - positive.

that's my story.