Extremely hot skin?

I have the same skin on fire experience, mostly on my face, chest and arms w/ normal or low body temp, but it's not consistent.

AND I have the same pounding when I lay my head on my pillow, which is pretty consistent. I always thought this one was normal.

But sorry, I have no idea which infection it is from.

p

Hot skin is one of my strangest (among many strange) symptoms...my doctor suggested it may be due to babesia, but it manifests for me differently than you describe. Nearly every day between 3:30 - 5:00 p.m. (I know that sounds crazy, but it's like clockwork.), both of my legs suddenly become very hot, and then itchy, and when I look at my legs, they're bright red and hot to the touch. I show my coworkers often to prove to them how totally nutso this disease can be, so that they'll take the threat of Lyme seriously. (I'm on a crusade!)

I also can hear my pulse in my ear when I put it to the pillow, and when I have my hearing. I've got 50% hearing loss in my left ear and tinnitus, which sometimes can be loud enough to drown out all other sound. The ENT diagnosed me with Meniere's disease because of the pattern of hearing loss and two disabling vertigo attacks, but my LLMD suspects that the inner ear problem is (surprise) also due to Lyme and simply mimicking Meniere's.

I studied creative writing, and if anyone had ever turned in a story to workshop that involved a character with such a bizarre patchwork of symptoms, that writer would have been laughed out of the room. Truth truly is stranger than fiction, and it seems like everyone who has Lyme has completely different symptoms, or similar ones that have their own particular nuances.

Americanlymie, nothing sounds crazy, at least not to us. We've all had really bizarre symptoms. It's amazing that we even figure out some of these things aren't normal.

I remember when my son was little and he crawled into bed and said that his legs hurt more than usual. I sat there and cried that my 4 or 5 year old thought pain in your legs is normal.

I told my Rheumatologist one day that my newest pain was in my feet. When I get out of bed in the morning, it feels like all the skin on my feet tightened up overnight (or anytime I sat for a while). So when I got out of bed I would have to hobble around for a while in extreme pain until everything stretched out. My Rheum told me he had never before had anyone say that. He didn't think I was loony tunes, just that he had never heard of anyone experience that. Then I saw Burrascano's checklist. Amazing!

Girlie, I don't know how long my hot skin lasts and haven't found a pattern although I'm sure there is one. I've had it a long time and just didn't know it was unusual until the PCP pulled her hand back. Now that I'm aware though I might find the pattern. Right now I have both the hot skin and sweating, but my temper is up right now due to extended family issues. I'll have to see if its part of a pattern. Maybe when I getting emotional it triggers something. Girlie, just so you know I was speaking with Pirouette privately about some family issues and she said she thought you had gone through something similar and might have ideas that could help me. When I get take a deep breathe I will message you privately.

Thank you all for the time you spend in helping us all out. You are an important part of all of our recoveries. Make sure that you take care of yourselves. You can't help others if you don't help your selves. That goes for everyone who helps out and answers questions on this forum.

Thank you.