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Lyme Disease
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Posted 5/30/2015 4:36 PM (GMT 0)
Hello everyone I hope I'm posting in the right spot please forgive me as I write this my brain is very foggy..To start I've been to many doctors all which basically put me on antidepressants and basically sent me on my way even after telling them about all the symptoms. Here's most of my symptoms when this first started about 12 years ago I had a lot of pain in most of my body I don't have a lot of pain anymore execpt in my neck after all that started I started getting very fatigued having bad panic attacks and a nervousness in my chest that just won't go away also a very loud ringing in my head and I have lived like that for many years with no help from doctors about 2 1\2 years ago things got even worse I started having this weird sensation in my head like a fullness or something and even though that feeling was in my head it affected my whole body I just felt like I was dying then I started having trouble with my bowels my bowel movements started coming out flat just wasn't right and severe gas and bloating that had a smell so bad that I had to go outside away from the family okay then I woke up one morning and went to take a deep breath and couldn't get a breath all the way in like I couldn't fill my lungs up completely with air I really started having bad panic attacks then and still yet after 2 years I still sit around all day trying to get that breath I just can't stop and its driving me crazy but to go on about my symptoms I have severe brain fog and severe memory loss to the point I can't remember simple names sometimes it feels like I don't know anything anymore. Well that enough for now just wanted to see what you all thought.. I've been reading posts since last night and myself it seems very possible to have Lyme..thank you for reading and I hope you could understand it..
Posted 5/30/2015 4:43 PM (GMT 0)
Also I'm 39 years old
Posted 5/30/2015 4:50 PM (GMT 0)
Welcome to the forum 12yearfighter!

Wow! You have had a lot to deal with for a very long time...I am so sorry this has been happening and the medical community has let you down.
But, this forum is great - warm, caring people who have been through a lot too and understand how you feel!

I think you should look for a LLMD (lyme literate MD) and have him/her evaluate you to determine if you have Lyme disease.
Your symptoms certainly do sound consistent with Lyme disease and co's symptoms.

To help you find a LLMD, start a new thread titled: "looking for LLMD in/near________" and insert your city/town and State in the blank.

Then enable your email so we can send you names of LLMD's as we aren't allowed to post their names on the forum due to privacy issues.
Posted 5/30/2015 5:17 PM (GMT 0)
You can also contact ILADS - International Lyme and Associated Diseases Society - they will give you names of LLMD's nearest to you.

Here's the link:

ilads.org/ilads_media/physician-referral/
Posted 5/30/2015 9:11 PM (GMT 0)
Thank you Girlie!! This may sound a little weird but I'm almost afraid to be tested I'm afraid of getting a negative test back and basically having to start all over trying to figure out what's wrong with me. I am actually at the point where I was planning my own funeral out in my head basically day dreaming of seeing myself laying in my coffin with my family and kids viewing me and just still not having a diagnosis.. I found this site last night and it has giving me great hope that I finally may be close to ending this 12 year mystery!! I'm making a doctors appointment first thing Monday and just go from there..Thanks Everyone
Posted 5/30/2015 9:44 PM (GMT 0)
I totally understand about the feeling like youre going to die. Many of us have been there. I knew there was something seriously wrong with me even though many Doctors dismissed my concerns.
Dont worry about a negative test result - that càn happen with lyme disease - but if you go to a LLMD - they know this. He/she will disgnose you clinically - based on your history and symptoms etc. Testing is used as a back up.

I hope you are making an appt with a LLMD.

There may be a wait to get in - weeks to months, but you can prepare yourself for treatment while you wait.

When you have a moment take a look at the thread at the top of the page titled New To Lyme? Start Here...
Its got lots of good information - including the section on detoxing.
Detoxing is one way you can prepare your body for treatment.
Posted 5/30/2015 9:52 PM (GMT 0)
Just wanted to jump in here and say Welcome to our community!! I'm so glad you found us!

Girlie is giving you a ton of really good information, but let me also add that you can send an email to me to get information on any LLMD's in your area. Just click on the blue envelope under my screen name to send me an email.

And keep asking questions!! I too believe you have found the right place!!
Posted 5/31/2015 1:20 AM (GMT 0)
I have another question is this disease actually curable? I have been reading all over the net today and I'm getting a lot of mixed reviews.. I've lived with this for a very long time and I just want to get better as of right now I have no quality of life I have small children that I can't even be a real dad to.. I have preached and preached to my doctors trying to tell them that this isn't depression and all there antidepressants were just making me feel worse they almost had me believing that it was just all in my head but deep down I knew there was something wrong.. Sorry to talk so much just haven't really been able to talk about it without people thinking that I was just crazy.. Thanks
Posted 5/31/2015 3:02 AM (GMT 0)
I have been through allot of the same things. Visits to countless doctors that put me on medications for seizures and anti depressants. I know it's frustrating when you know something isn't right but doctors say it's all in your head. I just did I igenix testing and found I was positive. That was only because I sent away for the test and forced my doctor to sign off on it. So trust yourself and try to stay positive you will find an answer.
Posted 5/31/2015 12:43 PM (GMT 0)
Most people in the Lyme community shy away from the word "cured" as it implies that you never have to worry about it again. We don't really know all the factors that go into making someone relapse, so we can't say that a person certainly won't have to worry about it again. And that's not to mention that you can get reinfected if you aren't taking precautions.

Healed is a much better word, as it means we can heal from the infections and have a "normal" life usually. We still have to be vigilant in protecting ourselves, eating right, keeping stress levels low and that, but everyone should be doing those things anyway, so I for one see it as more educated in how to live, not in that I'm different from others.

I've healed from 40 yr old infections of Lyme, Bartonella, Babesia, RMSF, and more, but I wasn't protecting myself as much as I should have and got reinfected. Fortunately, I knew just what to do wink and am now healed from that as well.

All of that to say yes, you can heal and have a 'normal' life.

And you think you talk a lot? :-) Wait, you'll see, I really talk a lot!! LOL!!!

We're glad you listened to yourself, realized that there was something still wrong and found us!!
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