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Posted 6/5/2015 6:22 AM (GMT 0)
I am a 43yo male, just diagnosed with lyme. (differential diagnosis) I have been dealing with this for what is probably years.) My most severe or bothersome symptoms are lethargy, sweating, sore neck/shoulders, skin tingling, some vision issues and some loss of balance as well as a wide spectrum of neural issues. These include lack of mental energy, brain fog, decrease in short term memory, decreased ability to learn new information and a slight stutter.

LLMD has put me on 100mg minocycline 3x daily. As well as Vitamin B12, D, and others.

I was wondering for people with similar impairments and treatment protocols,what kind of improvement did you see and how long did it take to notice a difference? Did your mental issues completely go away? Does the stuttering subside?

Any input is appreciated.

Thanks to you all!

Michael W.

Post Edited (Michael33) : 6/6/2015 1:56:39 AM (GMT-6)

Posted 6/5/2015 7:55 AM (GMT 0)
Treated after being ill for 2 years in 1990. Yes I did improve, enough to go back to college and slowly obtain an degree. I would not have realized that I could do it. Just took one class at a time for the first few years.

I only knew about oral Doxycycline so that is what I took until the last couple of years, needed it every few months. I could at times forget about Lyme. I have worked full times since then. Now I am ramping everything up with herbals, etc and trying to put Lyme in its place, which is not in me.

You will probably see much improvement being treated by an LLMD. Much more resources available now. The members here are a wealth of information and wisdom.
Posted 6/5/2015 3:33 PM (GMT 0)
Michael - you might get more responses if you put a subject in the title of your post.

I have improved a lot with my 'brain' issues. Not completely gone, yet, but doing pretty good.

I haven't finished my treatment yet, so hoping I will be completely symptom free when I'm done.
Posted 6/6/2015 7:58 AM (GMT 0)
Sounds like a long road, but there is hope. :/

Thanks for responding.
Posted 6/7/2015 1:10 AM (GMT 0)
Hi Michael I had many similar symptoms to you. I needed many courses of abx though and well above the dose you are currently taking. Consistentcy was very important. The best medicine for cognitive issues are the cephaloporin antibiotic. Cefdinir or Omnicef highly recommended.
Posted 6/7/2015 5:06 AM (GMT 0)
I have almost all of the symptoms you have mentioned, but they come and go. Still great news that you are feeling better.

Thanks for sharing.


I started minocyclin on Friday. Now I feel even worse as far as weakness tremors, slight headache and shortness of breath. I have just slept for over 2 days straight. Is this normal?
Posted 6/7/2015 5:38 AM (GMT 0)
my brain fog has finally started improving over the past couple months....the last 2 years has been hell with concentration, short term memory and feeling out of it. its starting to get better and better...iv been on herbs since January only , month of doxy in march, and on doxy, tindzole since april along with herbs now since i combined the antibiotics and herbs its helped alot and my diet is really strict.
Posted 6/8/2015 1:43 AM (GMT 0)
in my experience the antibiotics did not help the mental and brain stuff at al. what helped for me was treatment at the hansa ctr which includes addressing the ammonia in the brain and body caused by lyme-- I can link an article if you are interested in it
Posted 6/8/2015 3:15 AM (GMT 0)
My brain symptoms have completely resolved 100%. I used a quadruple cocktail of minocycline + septra DS + plaquenil + tinidazole and the neuro symptoms for me were gone in like 2 weeks. All 4 of these medications cross the blood brain barrier easily. But other symptoms like joint and musculoskeletal sumptoms have been more persistant.

It really depends on which medications or herbs you use. Some abx won't even cross the blood brain barrier at all.

Post Edited (LymePickle) : 6/7/2015 9:24:35 PM (GMT-6)

Posted 6/8/2015 4:50 AM (GMT 0)
Two weeks? Oh Lyme Pickle, I wish it had been that way for me, but I'm glad you had such an improvement, at least in cognitive issues.

I'm wondering now (but that's in my case) if I have problems with permanent brain damage.

I was on a fairly potent cocktail once upon a time, but then I got c. diff., and since then, I can't seem to up the dose of virtually anything without experiencing major herxing. I definitely experienced a benefit, but not as dramatic as what you're describing.

Really, the whole thing about cognitive issues (do they improve or not?) is a good question. I've often wondered the same.

M
Posted 6/8/2015 5:49 AM (GMT 0)
Katebirch i stole his formula of BORRELOGEN off his website it list the ingredients under product detail and since i added it to my other herbs to my herbal tea my brain fog has been improving everyday over the past 2 weeks
Posted 6/8/2015 10:42 AM (GMT 0)
~Micheal... keep asking questions along the way... and share your experiences... you never
know how you may be helping someone... while helping yourself to figure out how to navigate
the... sometimes very bumpy road to healing.

That's very cool myeezy... actually in his book..he lists the ingredients as well... for those who want
to make there own. I respect him for that.. it shows that he really does care... and its not all
about him making a buck!

Post Edited (Bellyfull) : 6/8/2015 4:51:14 AM (GMT-6)

Posted 6/8/2015 12:16 PM (GMT 0)
Thank you Bellyfull :)

It's all quite frustrating because these symptoms seem to change so quickly. Yesterday I was freezing, today I'm sweating. Yesterday lymph nodes under my arms and jaw were aching, today, they're not too bad.

I just want this brain mess to be done. I can deal with the rest, but when you can't think it's rough. I've only been on the abx for 6 days, but it's hard not to be over eager.
Posted 6/8/2015 12:31 PM (GMT 0)
myeezy-- good to hear! If you are going that route you can also look into adding the anti-tox formula which helps rid the brain of ammonia. It can make a big difference in brain symptoms.
Posted 6/8/2015 12:42 PM (GMT 0)
every since my brain fog has improved and been improving my sleep has gone hill and iv been having major insomnia i dont get it, why my brain fog would get better and now i cant sleep when before i had brain fog my sleep was fine....
Posted 6/8/2015 3:33 PM (GMT 0)
~Micheal... i can certainly relate to the "brain fog" frustration... everything...Everything...
is made more complicated...and takes more time.

Even just typing... i am constantly correcting words... rarely ever needed spell-check before... now use it repeatedly... I find myself saying "Really?" ... because its astounding how i misspell better now... than i ever correctly spelled before.

Or speaking... holding a train of thought... completely a 3 step task... Yep... it will be good to get a better handle on the brain stuff.

For now i will try to keep my sense of humor... although it has become a bit darker... i just posted something about a special banquet for doctors... it was not pretty ;) But then... neither is this lyme travesty.
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