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Feeling far worse this morning

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Lyme Disease
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Posted 6/10/2015 11:10 AM (GMT 0)
Waking up this morning I feel so much worse than yesterday. The leg I was bit on is more sore, it feels like I did a massive workout with it. My eyes are sore, and my head is sore. The bite itself still has the same red ring around it, although it has not grown outward or changed since yesterday, only slightly more pink around the outside of it. I am supposed to be going to the Drs today at 11:15A.M. and I am just hoping that this doctor knows what the heck they are doing. Wish me luck today, as I hope the outcome is not bad and I get what I need.
Posted 6/10/2015 11:15 AM (GMT 0)
My EM rash got bigger very slowly. The center cleared then it started to expand.

It took about 4 weeks to end up at its eventual 'limit'. It took about 3 months to clear.

The best of luck at the docs. Remember any questions you have afterwards please ask away :)
Posted 6/10/2015 11:21 AM (GMT 0)
This EM rash (im still assuming it is) started out a very thin red circle around the bite the day after removal. Each day it has gotten thicker, but no multiple rings. Just the one with bruising on the exact site of tick bite. The rash at this point is the size of a hole punch (paper punch). But when it started it looked like someone drew a thin red circle around the bite. Best of luck to you, and I hope you are getting the help and treatment that you need to get better Silly sheep.
Posted 6/10/2015 11:38 AM (GMT 0)
Thanks SCN.

I was told my rash was an allergic reaction, then it was diagnosed as ringworm and I was instructed to cover it in hydrocortisone - durrr. Never do that, lol.

Even with the lyme symptoms tbat followed it I was repeatedly told 'we don't have lyme here'. I am now getting treatment after a diagnosis from a UK doc. Here's hoping you've nipped the problem in tbe bud.

Got everything ctossed for a successful doc appt for you today :)
Posted 6/10/2015 11:49 AM (GMT 0)
I read where its a good idea to draw a line around it... so you can see easier any changes...
But i think it would be better to maybe cut a bandaid in a circle... or even clear tape...
to help measure...that's only cuz i don't like the idea of people writing on themselves with pen.
Well shoot... a make-up pencil would be best... geeze... i miss my mind...duh...ugh!

~SNC... I'm sorry you are feeling even worse today... unfortunately we know all to well
some of what your feeling.

*I would like to make a suggestion when you see the Doc... try to not get angry or confrontational with Doc or staff... no matter what they do... ***Because you never know
if you may need that Doc... even for just running test(s)...

Just something to keep in mind... until you get on the right healing road... this is a "political minefield" for Doctors... they are terrified of losing there license... And we are caught in the middle.

This 2 min clip might help you put it into perspective:

/www.youtube.com/watch?v=lClS8IEkvok&index=3&list=PLVSen6FWmBOEDeJ7btGNc4tUpV7axOt8M


You are not alone... we will "cyberwalk with you" thru this process.
Posted 6/10/2015 5:55 PM (GMT 0)
Bellyfull and Silly Sheep: I had a successful doctors appointment with my new doctor. He was not on the list of local LLMD's for Downeast, Maine, however I am fully satisfied with the outcome. He was friendly, listened, and I did not have to be rude or too assertive. He seemed very well educated on the lyme disease situation in Maine.

He said the rash is a positive indication for Lyme even without a confirmed positive test, because a test for Lyme would not come back positive for at least 6 weeks. He said that approximately 30% of the ticks in this area carry lyme, and that there is no doubt. So my worries were confirmed.
He prescribed 3 weeks of doxycyline, 2 times a day. He said that it is still early enough that this should treat the lyme without any further complications.

As you all warned and were correct, a single dose of doxycycline is not enough to treat the lyme.

Any advice for me/ warnings for the 3 weeks abx treatment that I should be aware of before I begin the abx this evening?

I still feel cruddy, but much more at ease knowing that my new doctor acknowledged the problem and is taking necessary measures to ensure that I do not become worse.

I will continue to stay in this forum because I find you all so wonderful, helpful and caring. Perhaps I too can be supportive to someone someday.
Posted 6/10/2015 6:13 PM (GMT 0)
~SNC

You are already being supportive by sharing your struggles :)

So glad that you had a decent Doc visit!

And now... you have enough to begin...

Still... i think that you are going to need more than 3 weeks abx...

And so... it may be a good idea to start a new thread... asking about
"bullseye rash with 3weeks abx?" or something like that... so that
you will get more specific answers.

I may have said already that i don't really know about abx... because
i am in late stage chronic... and on another path... but... i can keep
watching your thread... and offering other suggestions... okie dokie :)
Posted 6/11/2015 1:27 AM (GMT 0)
SNC86-

Better then the 10 days i got.

It would be nice to up it to 3x a day (100mg)..check out this study:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC162601/?log$=activity
Posted 6/11/2015 2:29 AM (GMT 0)
I'm glad the doctor recognized that the rash is diagnostic for Lyme.

It would be a good idea for you to take a picture of your rash and have something else in the picture to help the viewer gauge the size of the rash. One never knows if a case needs to be made with a future doctor or an insurance company.

As you can see from my signature, 3 wks. of doxy proved to be inadequate treatment for me.

ILADS recommends 100mg doxy twice/day for 4-6 wks.

See recommendation 2b of the 2014 guidelines here:

informahealthcare.com/doi/full/10.1586/14787210.2014.940900

I learned about this too late...sigh.

Just so you know, you should not have *any* symptoms when you stop treatment. In fact, ILADS recommends continuing treatment until symptom-free for at least 2 months.

I hope you can get the treatment you need.
Posted 6/11/2015 9:38 AM (GMT 0)
SNC so glad to hear your appointment went well :)

As for advice about abx you should read about detoxing on the new to lyme thread. It's very important!

Also expect to feel worse (you may herx) DON'T PANIC!! (I paniced, lol).

I would also keep a 'record' of your symptoms and maybe photos of the rash, just so you can see how it's going.

Also please keep us posted, cos we like to know how everyone is doing :)
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