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Lyme Disease
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Posted 6/10/2015 8:14 PM (GMT 0)
April 2014 tested cdc and Igenex positive for Lyme. Have treated with Cowden, Buhner and currently Klinghardt protocols. Had a western blot done 3 weeks ago thru fry labs and today I heard from Dr that it is negative. I know I am not better, can barely walk, 91 lbs, no core strength.
I have been considering getting a gb4000 rife machine, but now do not know what to do.
ND's says he still thinks I have Lyme, even though I do not seem to get any better on these protocols. He wants to do the culture test. He feels that the culture test will prove one way or another whether or not I have Lyme. I know it is not a screen test, but my cd57 came in at 20. A year ago it was 18. He also says I should go ahead and buy the rife machine.
Neuro muscular specialist seems to think I have fsh a form of muscular dystrophy, but I will not get the genetic DNA test results till August. Also it is supposed to be hereditary and no member of my family has shown any symptoms. I am 68 and tsh usually shows between 20 and 40 years of age. I cannot believe I have musc dys.
Any comments, suggestions, I'd love to hear from you.... Where do I go from here?
Posted 6/10/2015 8:31 PM (GMT 0)
Have you thought about treating with antibiotics? I know many who get better use a combination of antibiotics and herbal protocols to regain their health. Perhaps that'd be something you could look into.
Posted 6/10/2015 10:14 PM (GMT 0)
Is there any possibility at all that you have mold exposure, low adrenals, thyroid issues or gastro issues that have not been addressed sufficiently? Those are the most common things that stop a person from healing from Lyme disease.
Posted 6/10/2015 10:55 PM (GMT 0)
Hi quilty...

I can't really speak about protocols... i don't have the experience... but i have thoughts about the weight...
for what its worth?

I saw this that someone had suggested for gaining weight...

Nestle makes a product called Benecalorie that is for cancer patients and those that are chronically ill. It's a 1.5oz tasteless liquid that contains 350 calories. If you added this to your meals 3X per day you could get an additional 1000+ calories but without having to eat it. It's available online through Nestle or better
yet just Google Benecalorie.
^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^
*I don't know how healthy the above product is?

*I read where someone also added peanut butter to shakes to gain weight.

*Or... Have you tried making organic rice pudding with stevia?

*some people gain weight with organic ramen noodles?

*Have you gone to organic food?

*organic sweet potatoes?

I'm just tossing out some ideas...
Posted 6/11/2015 12:32 AM (GMT 0)
Thank you for the input.
Belly full I will certainly look into the nestle benecalorie. I had not heard of it. I already make my own peanut butter and add to shakes. Rice pud I eat a bowl each day and I live on sweet potatoes.
Traveller I know I have low adrenals and they are being addressed with glandulars, pantothenic acid and b vits. Thyroid, mold, and gastro issues all check out well. Bloods are very normal. Am treating high heavy metals with dmsa.
Dazedpete1 I live in Canada, Toronto. Abx is not avail to me unless I travel to BC to Dr C or go to the states. Maybe I will have to reconsider this.
Thank you again for your input.
Posted 6/11/2015 5:54 PM (GMT 0)
Do you herx badly? Or are you just not making progress? Whatever you decide to do, please do let us know how you are doing!!
Posted 6/11/2015 7:50 PM (GMT 0)
Hi trav. I did herx regularly a year ago on the Cowden, but then it seemed to have no effect. So I switched to Buhner herbs, they did nothing, no herxes. My ND's suggested the Klinghardt protocol and again no herxing. Hence I am back on Cowden full dose. After 1 week, no herx.
Is it poss that due to the recent western blot being negative, I might be in remission, or whatever we call it? (Right dream on Sonia).
And maybe a left with an awful amount of damage to my body.
What are your thoughts on this blood culture test traveller. Do you know if it is more reliable than the western blot?
I have decided to hold off buying the rife machine for now.
Thanks for caring....
Posted 6/11/2015 9:18 PM (GMT 0)
In order to make a decent guess at whether or not you have healed from Lyme, we would have to be reminded of how long you were infected and how long you were in treatment with Cowden's protocol for starters. So if you don't mind typing that all out for us, we could certainly see if we could help. Often the more information that is given, the better we can make suggestions.

With that being said - is it possible that your remaining symptoms are from the other co-infections such as Bartonella (it can pack a wicked punch for Neuro symptoms), RMSF, Babesia or another one?

I don't put much trust in any test right now. There is a new one that is out that Dr. Burrascano had a hand in developing that might be a lot better - but I've not seen any numbers on how sensitive it is with real patients yet. All the others have worse odds than you can get at Vegas for accuracy.

And please know that I do care about you and your healing!!! No one deserves to go through this alone and without all the help they can get! I only wish I knew more so that I could be of more help to you and others.

Hang in there!! I still believe that healing is there for all of us - it's just that some of us are a bit more complicated than others.
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