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Posted 6/15/2015 4:03 AM (GMT 0)
how much die off is safe? I am on tinidazole, minocycline, amoxicillin, coartem, and alinia. I have to start herbal treatment soon. Today I felt too sick to go to the gym or do anything. I had sweating, nausea and a strange feeling in my head. I guess it is dizziness?

I think it's the tinidazole that causes depression. Anyone else have that?

how do you cope with die off? Luckily I don't have to work right now.

Thanks
Posted 6/15/2015 5:07 AM (GMT 0)
Detox, detox, detox.

If the Herxing is unbearable, I back off to half dose for a few days and it lessens the severity of the symptoms.
Posted 6/15/2015 5:17 AM (GMT 0)
Hi Kayaklove,

I'm sorry you're struggling. I get depression. I think it is my Bartonella and Babesia, which cause it. I get the floaty, lightheaded weird head sensation (not sure how to describe it!), which I think is Babesia for me. The Cryptolepis seemed to bring it on today.

Die off is just awful! What are you doing for detox? You're on a heavy protocol. And you're adding herbals. With that much, you should boost your detox.

Some of my detox methods include lemon water, teas, Burbur, Pinella and Parsley, activated charcoal (binders) and Alka Sektzer Gold.

Nausea is really, really getting to me lately. Unfortunately, Zofran has been my friend lately! Activated charcoal helps me with that sometimes too. I drink ginger teas as well.

Remember to detox, detox, detox. It will help. :)
Posted 6/15/2015 1:48 PM (GMT 0)
I second what LymieGirl said!, detox detox detox!!!

Also, you are on a heavy antibiotic protocol. Some can't handle that much. My body couldn't, not ever when I was in treatment. It was 2 antibiotics max for me combined with some herbs. If your body doesn't seem to be improving after a few days, check with the dr about possibly lowering the dosages or going down to less antibiotics.

That does not necessarily mean you won't be making as much progress with less. How long have you been on the protocol for? The dizziness could definitely be a herx. Take it easy! Hope you feel better....

~beth
Posted 6/15/2015 3:26 PM (GMT 0)
Curious, what are you doing to detox? One simple thing that always helped me was drinking A LOT of water....plus other stuff, but drinking lots of water is a biggie to help flush everything out.....
Posted 6/15/2015 6:59 PM (GMT 0)
Thanks all. What I've been doing to detox is just drinking a lot of water and going to the gym and running and sweating a lot.

The herxes are bad but mild compared to what I used to get. These herxes make me sweat for hours and then it just stops and I feel better.

Today so far I feel fine. I slept a lot last night which I'm sure helped.

Just a question for LymieGirl - what is Cryptolepis?

I decided to stay at my current dose and not increase until I am stable.

It's weird how it suddenly hits. I should stop using my Infrared Sauna as a storage spot (I wanted to sell it before I started back on treatment) and start using it again.

I am kicking myself for going so long off treatment. I went back for a semester to University to finish my BA and I went off treatment then and never went back on and that was in 2012. Since 2012 I had been pursuing other University studies and didn't think I could afford to go back on treatment and have it interrupt my life.

Now I've been accepted to teacher's college and I have to figure out a dose of treatment that I can live with while at University.

I guess I was just hoping I could control my symptoms with a lot of exercise but I couldn't. I wouldn't say I relapsed but there were symptoms that never went away and one in particular that's been haunting me for so long (and completely disrupts my life) -- Severe (!!!) PMS.

Anyhow, I've been on the antibiotic protocol since around the first week of May. BUT I added the antimalarial the first week of June (I couldn't get it earlier because it was backordered).

I think for me the harshest part of the treatment is the tinidazole and the antimalarials.

Thanks all for your replies. Sending healing energy your way.

Post Edited (kayaklove) : 6/15/2015 1:04:02 PM (GMT-6)

Posted 6/15/2015 7:21 PM (GMT 0)
I think boosting detox will help while you're treating. It's rough! Every time I add something, I'm told to boost my detox. It really does help!

I get really bad cramps that go on for days. It might be the hormones being thrown out of whack. My LLMD also mentioned magnesium at my last appointment. I take magnesium, but I'm going to up it. Many Lymies are deficient in mag.

I have strayed a bit from methods that work well for me. Time to get back to basics. I need more Burbur, Pinella and Parsley. It really helps with brain fog and detox.

Cryptolepis is a natural anti-malarial and antimicrobial recommended by Buhner, Dr. H and others for Babesia to be used alongside other Babs meds.

I hope you feel better soon!
Posted 6/15/2015 11:43 PM (GMT 0)
Thanks for the information. Yes my doctor also talked to me about magnesium deficiency. I am trying to figure out if I can get it in injectable or cream.

I find it all very confusing. Does the Lyme affect hormones or do the hormones affect the Lyme or both?

Brain fog is awful. I was really having a lot a few months ago. What is doubly awful is that I would have energy to do things but too foggy to drive or read.

Maybe the herbs my doctor wants me to go on are for detox. I will have to check and start taking them.

Today my energy has been so much better. Two days ago I was so tired I could barely get out of bed and today I went running on the treadmill - doing harder intervals with much more ease. I feel like I had a huge weight off me.

When I work out I sweat intensely (as in my dryfit workout gear is so wet that it's like it just came out of the wash). I am replacing elecrtolytes but probably need to do more.

Wonder what the heck that is. This disease is so weird.
Posted 6/16/2015 4:20 PM (GMT 0)
Lyme is a crazy illness. It wreaks havoc on our poor bodies. I get extreme fatigue too. That is a huge factor driving me through this treatment battle. Artemisinin has helped with my fatigue. I'm far from cured yet, but it is encouraging.

The cramps are terrible. I have been reading Buhner's Babesia book. He talks about a lot of the crazy things Lyme and Co do. They turn off and on different things in your body that affect your body's ability to launch a proper immune response. I think hormones might be something else that they mess with to defend their survival.

Have you tried Pinella and Burbur for brain fog? That really helps me.

It is hard to be so ill that we can't get stuff done. I enjoy going to the gym and out. I love to travel too. I'm really looking forward to getting my life back. Hang in there!!!
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