Who has non-stop nerve pain?

Oooooo, I had nerve pain, it hurts! I remember that very well.

For me it was a herx, lasted a couple months...

Hopefully you're getting to the end soon..

What do you mean nerve pain? Is it like a pin trickling, because I get that. I have sciatica(hip/buttocks) nerve pain, and it feels like a nerve is being pinched in right elbow...Oh and when I sit on the toilet too long, my legs from feet to waist are completely 'asleep', which is nerve pain-it hurts! Oh I've also had a few isolated incidence of pin prickly sensations on top of head! Oh and my arm falls asleep when using the phone, or laying on it. Is that nerves?

~bdoc

Can you share about your experience with Kratom... i have been very curious about it... yet still nervous to try. It sure would help to read first hand experience.

I know nerve pain very well... as i have had it from another condition for many years. I have been on vicoden for ten years now... and would like to stop taking it.

The pain in my knee is the worst... i can't imagine how it would be if i were not taking vicoden... i also take lyrica(which for me was a miracle drug)... but now i have developed a tolerance.

So yes...would very much appreciate hearing about your experience with Kratom... Thanks :)

I am doing well on the anti-tox ... feel incrementally better each day... brain fog lifting, severe shoulder/neck pain diminished...very grateful for that.

But the knee pain is flaring since beginning infra red sauna... i tend to think it is a herx.

And i think the dry skin brushing is a key factor... because i forgot to do it before the sauna last night...and the knee pain is not so severe today... which further validates my herx theory.

I believe herxing is a good thing... but there is a balance to be found.
I do not intend to stop dry brushing or the sauna... but... would like to
find safe pain relief.

I have been dealing with arthritis in my spine and nerve damage from failed spine fusion... which can be intense pain at times.
I am fortunate that i have had "training" in dealing with chronic pain...
so it does not "throw me for a loop"... emotionally.

It still surprises me that the knee pain is more intense than the spine pain ever was. The other day i was grimacing, walking to bathrm and then kitchen...with one leg straight to lessen the "ice pic thrusts" into my knee.

Realizing that it was a herx... i found myself saying out loud to the pain
"Bring it on Blitch!" allowing myself to express that justified anger was therapuetic imo ... and made me laugh at myself.

Whats next? Donning boxing gloves lol.

*Afterthought... now im thinking about hangin a pair of boxing gloves on my bedrm wall... sometimes i just crack me up....humor is therapeutic as well!

Deejavu and Bellyful: thanks for the ideas. I will definitely try the Neuro-Antitox. I've also gotten away from taking something called "LOLA" which gets rid of ammonia in the body. I guess I probably need a few more things for my detox protocol, right? With regards to kratom, my experience has been amazing. It has saved me over the last bunch of months. I go from being unable to function to ready to go take on the world because of kratom. I must have found it reading through a bunch of forums and Facebook pages like this. IF you look at my previous post, I list the companies that I've purchased it from. I just need to make sure that I never run out. I try to buy a variety of the "flavors" because I'm still in the trial and error phase to see which strain works the best for me. That said, the 'reds", like Red Maeng Da and Red Borneo are the best for pain. Bentuangie is another great red strain for pain. I take about 3 teaspoons(maybe a little more) each time. This may sound weird, but I "parachute" it. Essentially, i get 3 separate squares of thin toilet paper(I know that sounds strange). I put a teaspoon on each square. I wrap up one square at a time and place it on my tongue, and then chug it down with water(hopefully without the toilet paper breaking open because it tastes pretty gross and you will cough a lot trying to wash it down). Let me know if you need more. I cannot recommend kratom enough.
TUNAAA_ I've pulsed a lot of different abx. I'm currently not on any and I'm seeing my doctor again next Tuesday.

Yes I did tell my doctor I was taking it and he is an LLMD. I think he thought it was interesting and took some notes down.

Horrible nerve pain in feet, shins and hands & wrists. Also pin prickling internal vibrations from abdomen down through legs. I was recently diagnosed with small fiber neuropathy. It is horrendous, especially at night.

Deejavu- I just ordered Dr. j's neuro antitox CNS based off of your recommendation. I believe the neurotoxins are causing my nerve pain as well. It's worse on the days I don't detox enough. Did you notice it helping you right away or did it take some time? I have yet to try saunas either. Would you say that was also beneficial? I do detox baths, dry brush, and drink lemon water but think I need to up my detoxing game.

What have others done to help with this? Mine comes and goes randomly which is a very lymie characteristic versus a structural problem.

Girlie said...
My nerve pain comes and goes - so not 24/7

The past several weeks (6-8 weeks) I have had more good days and parts of days... so I am hoping that this is a trend.

I tried a few things to no avail: CBD oil, Gabapentin, greater celandine and kudzu herbs.

I just recently tried Gabapentin again but I am now weaning off because it doesn’t appear to be helping - as when I am late taking a dose - I don’t feel worse - in fact I feel better sometimes.

I think for me it is treating infections and time to heal that’s helping

But now the conundrum. I was feeling great for a while. My last mycoplasma test showed the score increased (and an active lyme band). My LLMD gave me a mycoplasma protocol concoction. Got to nearly full dose (probably too quickly) and now this.

If these infections will technically always been in my body forever, then when one feels fine, shouldn't treatment stop?

I feel like I just stirred the hornets nest. So now I'm questioning using these herbs.

I hope this is just a 5-7 day herx and isn't an on going chronic symptom.

Next time I feel good and go a while symptom free, I don't care what test show, I'm just going to do maintenance herbs until I have reason to treat more aggressively.

Girlie said...
If you're feeling great i.e. symptom free - I would just treat for several more weeks...and then stop - I wouldn't retest and start treating again.

But, maybe in your case...it's good that you stirred something up and can now blast it.

Lyme may stay positive even after you're in remission...I would assume the same for mycoplasma.

(if it's an antibody test)

Yea this concoction has 8 herbs in it and believe it's a more potent brand then I've historically used.

I think I need to start looking at lyme from the angle of if I find a good "balance" with the microbe(s) in my body then just go with it (the reality of having these microbes). Instead of seeing a test score and then trying to go after it harder.

I've never taken 8 lyme herbs at once before. This may be a bit too much for my system.

This is day two of being off of them. When this herx subsides I'm going to actually following the directions and go super slow.

dacarte3 said...
This issue has 90% subsided (*knock on wood). *whew* "just" a herx and not a permanent structural problem.

Going to start back on the herbs tomorrow, starting from the very beginning dose. Wish me luck.

YAY! Good Luck...and keep us posted, dacarte3!