just need to talk to someone some ideas what else to add to meds.

Hi
Went to doctor a couple of days ago. They are just giving me nystatin, Lorazapam ,allergy meds, prescription probiotics ,prescription D, and have me on Methyl Folate, Methyl b12,and glutathione.
I'm taking herbals on my own Houttuynia, Japanese Knotweed, Cat's Claw, Hawthorn, Turmeric, Ginger, Yucca Root, Alpha Lipoic Acid, Natto -Sera, Nac, Molybdenum, Vitamin C,E ,Melatonin, 5-htp,Selenium, Zinc, Cod Liver Oil , Fish Oil, Candex, Licorice(DGL) ,Betaine Hydrochloride with Pepsin, and Raw Thyroid and a thyroid support,
They want to see how I do on the herbals since I'm not tolerating the Abx at all.

I am doing foot baths twice a day ,drinking lemon water, some dry brushing( Should do more ),green tea, detox tea, Activated Charcoal,

Still feel awful, Numbness and pain in arms and legs, Burning on bottom of feet, Anxiety, Depression, very Tired all the time, Eye problems(blurry vision, floaters, fluttering)Pain in shins, fevers and chills, a little trouble breathing,( feel like I can't catch breath).

Any Ideas what else to add or something Else to do to help this along. I think I might need to add something for babesia. Was on CSA but it is too expensive with all other supplements, Maybe some thing Cheaper.

I also was taking L Arginine but stopped after some one said it might cause problems and now am afraid to take anymore.

Maybe Add Teasel to draw out the bacteria so it can be killed by the herbs! You can add Arteminisin for Babesia and Cryptolepis. Your symptoms sound a lot like mine early on. I got prescription pain meds as I just could not handle my body being covered in pain non stop.

You might also want to try Chronic Tonic that Traveler healed with. If you get the dry herbs and make the tea yourself, it's a pretty affordable option and seems to cover many infections. Traveler is so great with answering questions if you have any.

Thank you for your kind words, Inspiredby3 - but the Chronic Tonic is just for Lyme disease - although I only had to add in one more herb to treat my Bartonella as well.

While the Chronic Tonic was a very good choice for me (has worked twice!!), like everything else when treating these infections, it's not for everyone.

Ginger, why don't you tell us what's going on? I didn't tolerate the abx very well myself, which is why I went to herbal protocols. My body doesn't detox very well - how about yours? Have you had any of the MTHFR testing done yet to see if you have gene mutations that are making it difficult for your body to detox? If so, what were those results?

If you are having issues with detoxing, you need to be careful to not flood your body with toxins by either being too aggressive in treatments or by trying to treat too many infections at the same time. We don't want you to have to really struggle through any of this, since it's definitely not required to do so. Treating slowly and carefully works a lot better every time.

If you wish to continue on with what you have started, you are already taking most of what Buhner's core protocol is for Lyme - maybe you should check out his website for more help: buhnerhealinglyme.com/the-protocols/

Oh and L-arginine can reactivate an EBV infection - it did for me. Should you find that you have, or if you have cold sores (HSV), you can treat those with high dose L-lysine. That's all I've used for the last 10 years to control my EBV and HSV.

Glad you read my comment, Traveler and clarified my comment ;).

I agree with Traveler, checking into the MTHFR mutation would be a good idea. I have one copy of it and used to herx horribly, as long as 3 weeks straight. Of course, in the beginning of my treatment, I didn't know anything about detoxing and none of my Drs. Ever mentioned anything about it. Detoxing has a made a big difference in lessening my herxes, especially the duration.

Thank you for all your replies

I have been tested for MTHFR I have one Mutation A1298C and the doctor has me on Methyl b12 Methyl Folate, Glutathione, and Nac. I also have yeast problems that I can't control. I have tried everything. Have already talked to the girl here that knows about yeast and have tried everything she said many times and still have yeast. Been treating yeast for over 2 years, that is how they found the Lyme. I am still taking Nystatin powder but not as much as I should It cost 95 dollars a bottle.I take candex Or another Yeast supplement and probiotics Doctor prescribed VSL3 1 2x a day and am on gluten free sugar free diet. I stick to it pretty well. I have cheated a couple of times but try really hard to stay on it.The diet is really hard for me as I hate Vegetables, and really hate cooking. I eat a lot of salads Hard boiled eggs and chicken but am very tired of it and don't feel like eating much.Still have appatite just not interested in the food.

The doctors think they might have to treat the lyme and co infections before I will be able to get rid of the yeast since nothing else is working.

I will try to get the Cryptolepis or Arteminisin ( I think This Was expensive) Money is a big problem. We are barely able to keep up with what I'm taking now and sometimes run out before we can afford more.I look for teasel too and see if I can add this.

What I'm doing for detox is In top post. maybe it's not enough.

Really don't know want else to do .I have been tested twice for parasites, Heavy metals and mold allergy, and a full mold panel for mold in my body, allergies (dog cat and dust mites is the only allergies)No food or gluten problems. Was tested more than once. I do think I have problems to soy products and check for this in everything I buy.

Don't know if I have EBV don't know what this is. I don't have cold sores now but have had some . L arginine did not seem to give me more. Took it for about four weeks. stopped after I read It can cause problems.

Don't think I could do bee sting .Fear of bugs and this creeps me out. Husband is allergic and couldn't help. don't think this is for me. I'm glad it is helping you and wish I had the nerve.

Thanks for all the help I appreciate it very much.

Traveler

I thought the Natto Serra would help with this It is combination Nattokinase and Serrapeptase combined. I think Fish oil thins the blood also. Maybe I can Add garlic pills I think this also thins the blood.

Maybe I'll try Lymph massage. The oil pulling made me queasy in the stomach. No room in tiny bathroom for enemas and the coffee I read had to be organic which is very expensive, but I'll keep this in mind if nothing else helps. I found a place to take saunasand am trying to talk husband into taking me for one to see if it helps. not to bad at 20 dollars per use.

sayyadina

Thanks for the ideas. My doctor said I should take The hydroxy b12 but husband keeps ordering wrong one. I'll have to write it down again and see if I can get the right one this time around. I never heard of the B minus where do you get this? I would like to try to add this to my supplements. I take Jarrow Methylfolate too.

I'll see if I can at least add sida or cryptolepis to my routine too. This is getting so expensive we are trying to sell some things to get money.

I don't think I am up to making my own Tinctures but thank you for the offer. My brain is still too messed up and barely have the ambition to clean house and get dinner .