I feel better!!!!! It's working!!!!!!

A lot of my symptoms are vastly improved on the days I do IV rocephin. I've even moved up my dose and I'm doing just fine. I'm proud of my poor body! I've finally got to a good place of detoxing. I'm almost positive that is what is making everything work so well. That and using an IV instead trying to get abx through my injured digestive system. Plus getting my mast cell disorder under control has really helped.

I'm still doing a mostly liquid diet. I love all of my new supplements and other medications. I'm still nauseous and having pretty severe headaches. But my mood is greatly improved along with joint pain, fatigue, and just generally feeling OK in my own skin.

This is awesome! I know it's not going to last. But I'm enjoying every minute of it. Yay!

If I could get my head pain under control I'd be in a really good place. That is the only complaint I have. I can't say that these are headaches necessarily. Given the fact that my teeth hurt, the inside of my cheek swells, my ear hurts on that side.. it's just weird. My eyeball hurts really bad too. The bones in my face around my eye and nose hurt. The inside of my nose hurts and deep into my throat. It's just not a regular headache dangit! Ah!

Anyway. This got long lol.

This is sooooo wonderful, IHL!!! Your journey being 'recorded' here will help give hope to many people!! You have been incredibly sick for the last year that I've been exchanging emails with you - and you are finally in a decent place and making progress.

I say it's definitely time for a Happy Dance!!!!

YAY
Just want to hug you. For months, all I've read from you is one challenge after the next, after the next… 2 steps forward and 9 steps back, it's seemed…

This is great progress! Welcome to Rocephin, although I'm jealous you're already doing better on it than I am! Please keep up the detox because that is my biggest hurdle… after awhile, I was killing too much and it was out of balance with my detox and things really spiraled out of control. And you might not want to increase dose too quickly. Slow and easy...

You're great at posting and providing updates to keep us up to speed on how things are going so will look forward to your updates. Fingers crossed!

-p

It's really amazing how much even just a few hours of feeling decent can boost your confidence. I have not had an easy time up until this point. Any little tiny ounce of improvement means the world to me. I really needed today. I needed to know that all the suffering is worth it. It was a glimpse of the end of the road.

Lyme has showed me what really matters in life. I'm still young at 26, and experiencing this level of suffering has it perks. I'm so incredibly thankful for the smallest things. It's going to be hard to take anything for granted after going through all of this. There is a silver lining here. If I can survive this, I can do anything.

I feel a little silly always trying to find positivity- especially in something as horrible and destructive as lyme! Gasp!! If I can be in a good mood despite feeling like my head might explode, I must be doing something right. Either that or I really am just crazy hahahaha!!!

Either way I just feel grateful lately. For the people I wouldn't have met if I didn't go through this. For seeing my family's strength and ability to cope. For thinking that I've reached my limit a thousand times and not giving up. Or giving up a thousand times and picking myself back up.

It just feels good to be where I'm at. I'm finally improving. My hard work is finally paying off. Resilience is a powerful thing. It's astounding what you can get used to and what you can overcome.

I hope you all are feeling good. I hope that you at least get a few decent hours. Ahhh....... so nice :)

I am so glad you have some relief. You deserve it!

Your my Lyme hero!

Great perseverance.

Awesome news, IHL! Your last few posts have been so upbeat even when everything is not going perfectly. Kudos to you for your perseverance...and for celebrating every small win along the way! Helps me to see how much attitude affects how we heal through this thing. Your post made me smile, thanks!!!

Thanks everyone! Your encouragement is always appreciated :)

Today I feel like I drank a bucket of alcohol and got hit by a truck lol. I over did it yesterday. I even jumped on the trampoline for about 20 minutes! Which is amazing considering I could barely walk to the other end of the house in recent times.

I'm trying not to regret my adventures yesterday. I'd probably feel like crap anyway. So ya. It's always disappointing to feel good and then bad again. I expected this.

I was feeling a little worried about my iv. For those of you that read my post about my worst day ever, there was still some blood they couldn't get out of the cap. It's dried now and fell off and just hanging out underneath the adhesive. It should be sterile though right? It's very itchy. No redness warmth or anything. It's been sore since the day they put it in due to the whole forceps twisting it around a million times. I called my doctor to make sure.

I hope you are all having a good day!

Great to hear you are feeling better!  Thought I'd pop up to say hello and send you a big hug :)  Hang in there!  I felt close to how you felt many times, and now I  can do practically anything I want!  I overdo it every single minute, and I'm fine!

Awww so happy for you sometims i think iv is the way i should go but cant really afford it....hugs