HealingWell
Search Close Search
☰

Dr.diagnoses non-Lyme even though Western Blot was . .

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/29/2015 3:48 AM (GMT 0)
positive for IgG p41 and IgM 39 in October 2013 by another physician. I contracted in April 2012, after which I had no rash but started having a host of gradually building symptoms.

I had blood drawn for hypothyroid check last week, and PCP had the lab also test for Lyme again (don't know which test yet). She is non-LLMD, but is sending sample of my blood to an Infectious Disease Dr. She has been helpful in referring to neurologist and gastroenterologist. In MRI, Neurologist found lesions/shadows consistent for MS and Lyme, so he referred me to another Neuro, from whom I haven't received results yet.

Endoscopy showed pre-u!cerative lesions and gastritis. (I have had a lot of having very upset tummy for last 2years.

My question is, is it possible that ALL the correlating symptoms (most on list in "New to Lyme " sticky) have just been in my mind and that I do not have Lyme after all? I know this sounds stupid, but I just don't know what to think. Please let me know if more information is needed.

I am so confused now! Thank you for your help.
Posted 7/29/2015 3:59 AM (GMT 0)
So, your WB shows positive for lyme disease and you have symptoms consistent with Lyme disease.

No, your symptoms aren't in your mind. Remember - you started to have symptoms...and then tested positive for lyme disease.

Time to see a LLMD and get treatment.

Do you need help finding one?
Posted 7/29/2015 4:12 AM (GMT 0)
Keep in mind Infectious Disease Dr's are the loudest one's out there leading the charge that Lyme disease doesn't exist. You need to start being your own advocate and find a LLMD-Lyme Literate MD
Posted 7/29/2015 4:35 AM (GMT 0)

jrpsf said...
Keep in mind Infectious Disease Dr's are the loudest one's out there leading the charge that Lyme disease doesn't exist. You need to start being your own advocate and find a LLMD-Lyme Literate MD

jrpsf speaks the truth. I have seen more doctors and specialists than I care to count. I seen 2 infectious disease specialists in the past 6 months and about to go on a 3rd visit. These doctors talk like they have been TOLD what to think.
Lets just say if the CDC and I.D. were in a relationship, CDC would be wearing the pants and I.D. wouldn't get a word in otherwise.

If you have Lyme markers showing you should talk with a Lyme Literate Medical Doctor (LLMD). These doctors will talk to you and explain to you the science behind what they think, why they want to test, what they want to test. They can present you with plenty of data to support their diagnosis.

To this day my LLMD is the only doctor that has given me an actual diagnosis and the only doctor that made a dent in my symptoms. I have symptoms dating back to 2005.
Posted 7/29/2015 3:38 PM (GMT 0)
Whew. I thought for a bit that I had just become a hypochondriac.

Girlie, I do need to find a LLMD, I'll post that again.
Y'all make sense. It seems at this point all I've been doing is going from one doc to another, piling up the bills and being told things I already know, but I know to be related to Lyme.

As far as infectious disease doctors go, my thought is that s/he will just tell me the same. None of these people are lyme literate, and follow CDC, I guess so they can keep their licenses. So, jrpsf, you have just validated what I am thinking.

Marine, sounds like you, along with a lot of us, have tried the "regular" root, but from all of y'all's information, the key is to find an LLMD. I'd much rather be putting all of this money into someone who truly knows what's going on, etc.
Thank you all so much!
turn
✚ New Topic ✚ Reply