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What's your CD57 and how has it improved?

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Lyme Disease
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Posted 7/31/2015 8:04 AM (GMT 0)
So, second visit to the specialist and I discovered that I don't just have a low CD57, I have 0 cells per micro-liter, on all eight reactive tests. Not surprising considering I had this for over a decade, and worsening nuerological symptoms for two and a half years.

My question is what was your CD57 when you started treatment, and how did it improve/worsen over time (timeline?)
Posted 7/31/2015 3:20 PM (GMT 0)
My Dr. doesn't test the CD57. I have been reading that a lot of the LLMD's don't find it to be useful/reliable predictor of treatment progression.

Having said that, a 0 count is interesting? What did you Dr. say about that. has he seen that before?
Posted 7/31/2015 3:39 PM (GMT 0)
I got tested starting with my second LLMD in March 2011, and it was low at 46. Never considered spending any more $ on retesting. Rest of treatment will be based on how I feel, but need to continue CBC and CMP labs for vitals.
Posted 7/31/2015 5:18 PM (GMT 0)
I don't think most docs test it over time to test improvement. Mine was in the 30s, I can't remember.
Posted 7/31/2015 7:57 PM (GMT 0)
Mine went 'DOWN'- it was in range,but low, & now below range AFTER 9 months of treatment for virals, bacterium, AND heavy metals. My husband thinks I've gotten worse w/treatment due to new symptoms such as arthritis...

However some symptoms are gone such as air hunger, rattle in my chest w/deep breath, stomach/throat squeezing senstion, vertigo/lightheadedness, and daily heart Palps-gone unless I have caffeine!
Posted 7/31/2015 8:44 PM (GMT 0)
For me at the worst it was a 20.

Going through various different treatments i got it up to 160, but then I relapsed worse than i was ever before.

I rechecked it at a later date and it was at 27.

I am 85-90% recovered now, so next time i get any BW done i will have them add it and see where it is.

CD-57 is weird, in some people it is very accurate and seems to correlate improving and a rising CD-57. However, in others it is not accurate at all. I have a friend and hers was at 60 at the start of treatment and she was in bad shape. She is in remission now and i think it came back at 58.

Based on what i have read they say it needs to be above 200 to be "well", but obviously that is not the case for everyone.

It seems to be accurate for some and does nothing for others, so i wouldn't judge anything off of it unless you know you are one of the people that it correlates correctly for.
Posted 8/1/2015 12:47 PM (GMT 0)
My LLMD doesn't check CD57, either - for the same reasons shared by The Bearded One.
Posted 8/3/2015 11:51 PM (GMT 0)

Girlie said...
My Dr. doesn't test the CD57. I have been reading that a lot of the LLMD's don't find it to be useful/reliable predictor of treatment progression.

Having said that, a 0 count is interesting? What did you Dr. say about that. has he seen that before?

She simply said "We see low numbers in people with chronic lyme... your numbers are non-existent, so this whole part of your immune system needs to improve. We will retest every three months and evaluate with how you feel." She also said that I tested positive for micoplasma pnueumonia (but no active infection) and needed to keep an eye on it while my immune system is suppressed.

I was infected with Lyme as a child, and undiagnosed for 12-15 years. I was chronically sick from 4-19 with tonsilitis, colds, mono, strep, sinus infections, and ear infections. At 18 started experiencing neurological symptoms, was told it was MS but I had no lesions. Got diagnosed this July, at 20 after western blot. Not sure if this would explain my non-existent cd57, but to me it does!
Posted 8/4/2015 9:33 PM (GMT 0)
Mine was 28 when I started Lyme treatment in 2011 and in 2014 it was 54. I'm not sure what it is now.
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