Off balance; Lyme vs. Co Infections

If you have an off balance feeling, swaying, bobbing, unsteady ground feeling as one of your symptoms.. do you find it is a symptom of your Lyme Disease or a co infection? If co infection, what one?

Geeze sayyadina, that sounds horrible. How are you now? Was Samento any good for you?

Sayyadina, It was a spinning feeling you experienced?

I've had my off-balance moments as you guys describe them and they occurred sporadically throughout my Lyme treatment as part of a herx.

They resurfaced as part of a herx when I started to treat a possible babesia/babesia-like infection.

Unfortunately, there are many overlapping symptoms and that's why diagnosis is difficult. Some LLMD's seem to wait until herxing happens in the hopes of things becoming more clear.

Jessica your symptoms and mine are very very similar.
I currently have the same off balance symptom and it's there everyday. It's gotten slightly better but it's still there. At one point I was to the point where all I wanted to do was sit for fear that I might collapse.
I went to an ENT who laughed me out of his office saying it's not Vertigo. He said I was fine.
I saw a neuro who gave me a test, I forget the name, but it showed that I had an imbalance in my ears. Mixed signals were being sent to brain because one ears signals were stronger than the other.
Description of test-I sat in a chair in complete darkness as he observed my eyes in infrared. He began turning the chair and told me to tell him when it stopped. Simple enough, I passed them all. Then he began turning to the right slowly and asked me to tell him when it stopped. I could never tell when it stopped and for over 90 seconds it felt as though I was still spinning slowly. He then told me that he had stopped spinning the chair a long time ago.
Very odd. I told him I thought I had Lyme disease and he said that everyone has those symptoms. I never went back.

Actually he did. They were small exercises for you eyes. The only problem with this is that the symptoms come and go on their own. I tried the exercises and they didn't do much to help.
I'm almost positive my problem has to do with sporadic inflammation throughout the body. For some reason one symptom goes away only to give rise to another. The dizziness hasn't been that bad lately, but now I have pains in my elbows, back, and terrible headaches. My elbow is slightly swollen.

Onetime - I think the test your ENT had you do was an ENG? I did that test as well to rule in or out, an ear disorder causing my off balance problems/dizziness. This test was ordered before I knew I had Lyme. It took 7 months to get in for an appointment to do the test, which ended up being a week after my positive Lyme test. I did the test and everything came back normal. I was extremely off balance that day too. Nothing wrong with my ears. Not sure what the Lyme is affecting to make me off balance.

Yeah I had the same ENG test Jessica! the thing is I think that test is more specific for vertigo! but don't quote me. My feeling is just like yours, off balance, whoosh, dizzy, and I just feel like sitting. Mal de embarquement (spelling), it's similar to that. Sometimes it feels as though I'm swaying just slightly in my body. Usually it's left to right, but sometimes it's forward and back. It friggin sucks and it won't go away. I'm a teacher/coach and all I want to do is sit down when I feel this way. What else I find odd is that I really don't feel dizzy when I'm driving. ??? Go figure.
Look up disequilibrium between your ears and you'll see symptoms related to memory, headaches, fatigue, brain fog, etc. I thought this is what I have, but how do you explain all the other symptoms I have? LYME.
If it walks like a duck and quacks like a duck....you know the saying

Hey Jessica I forgot to mention. I realized that some days my dizziness was way worse than other days. When I cut out gluten, I noticed that my headaches, fatigue, and especially DIZZINESS had been reduced greatly. It wasn't a cure but it was a huge help.
Jessica your symptoms are very similar to mine if you find something that's working please share with me.
thanks. :)
Today mild headache, slight symptoms, very little dizziness, one of the first days in a long time with no fatigue.
I'm thankful for these days.

Yep, the strangest thing is that driving is totally fine - I do not feel that off-balance or that wonkiness, wave like sensations going through the head while driving, but as soon as I am out of the car and on terra firma walking, all that stuff comes back/ happens.....so really strange.....

I was told it was just anxiety and there was nothing wrong with me for the last 5 1/2 years at the age of 21. I'll be 27 this month and I finally found out I have Lyme Disease a few months ago with a positive ELISA/Western Blot. I've seen an ENT and have done tests for my ears... all normal. The ENT does not believe there is anything wrong with my inner ears.

Lyme Disease has messed up my balance causing me swaying/bobbing sensations, like I'm in a boat or walking on a dock, light headedness, off balance, hard to walk at times, like im walking on a trampoiline or a foam mat. Going to the grocery store or shopping is usually torture to me as it provokes my symptoms and it make me more dizzy. Hard to walk in small/crowed spaces... having to concentrate/focus makes me more dizzy/off balance.

Bumping this old thread because everyone's post greatly describes what I'm experiencing down to a "T". Even the part about bow driving ironically feels better.

I've experienced this initially way back when. Just like another members said, it was one of the first sign something was very wrong even before I knew I had Lyme.

The symptom went away and stayed away for almost 2 years. Then came roaring back when I relapsed last fall. Now 7 months later it's back and SUPER annoying. It's been going on for about 2 weeks now.

I really need to start keeping a journal to remember how long it lasted in the past and what I did to get rid of it.

I ordered Pinella because I did last time in the fall. I'm hoping it can aid me again as it's a very effective anti-inflammatory for I'm sure this is brain inflammation either from Lyme or candida/yeast.

For others that have experienced this. What has worked for you?