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Posted 8/20/2015 7:44 PM (GMT 0)
Hey everyone -

It's been an interesting week.
Monday I went to my first naturopath appointment - today I went to my first appointment with an energy healer.

Taking my treatment in a different direction...because I've been getting the sense that it's something beyond the physical getting in my way.

Well, both practitioners picked up on my energy system being traumatized and completely shut down, and that I carry around a lot of hurt from being dismissed/called a faker/mocked/etc. all these years. Pretty sad stuff.

The energy healer said that my problem is mycotoxins...not lyme.

So now I'm ridiculously confused.

It would make sense why my lyme treatment is not working...but I just don't know what to believe anymore because I get such conflicting information from everyone. I've been back and forth about whether mold is an issue my whole life - I lived in a house that flooded often growing up, I'm pretty sure that when I got really sick / disabled I was in a moldy office, and my last apartment was full of mold. But my current doctor lead me to believe all of that was resolved, and now I'm kind of being told that lyme is what's resolved and the toxins are what's giving me something like 60% of my inflammation.

So I don't know what to do. I don't know if it's from past mold exposure, if I might have current mold exposure, if it's from my diet...if I should pursue the lyme treatment, etc.

Not sure if I'm asking for any advice here, just needed to vent my confusion!!
Posted 8/20/2015 8:29 PM (GMT 0)
It IS confusing.....

Hopefully you'll get some good answers.... The mental aspect of all this is difficult.....

Good luck!
Posted 8/20/2015 8:31 PM (GMT 0)
Hmm. Did either the energy or the naturopathic practioner give you advice on where to go from here?
Posted 8/21/2015 5:25 AM (GMT 0)
I hear you. I wish we could get definitive answers on what's causing what. Is it Lyme? Is it mold? Is it a co-infection? It is very frustrating to not know and have to do guesswork because the testing is so bad.

I'm sorry that people have dismissed your illness. I hope you get answers and see improvement soon.
Posted 8/21/2015 12:48 PM (GMT 0)
So sorry to hear you're in such a tough spot!

I wish I saved the link but I remember reading that some people cannot fully recover from Lyme if they're still burdened with PTSD-type stuff.

Does increased detoxing help? If yes, then I think that's confirmation of the presence of toxins.

How that might relate to whether or not you're done with Lyme, I don't know. :(

What does your LLMD have to say about it all?
Posted 8/21/2015 5:56 PM (GMT 0)
The naturopath gave me rhodiola and a couple of emotion/relaxation homeopathics. He is also a shaman it turns out so when he asked about recurring dreams we got into a conversation about relying on my spirit animal. Sometimes it's hard to let in the weird stuff like that but I don't really want to be afraid to admit things that help me feel more powerful just because people tend to laugh at those things. He also wants me to do a holotropic breathwork workshop to work on trauma.

The energy healer did some stuff herself which is beyond me to understand, suggested a supplement to that my body said night help with the mycotoxins and gave me a few behavioral modification ideas. I think the bulk of our work together is what's done in the sessions.

I haven't talked to my LLMD yet... I'm not a big fan of hers lately hence seeking alternative guidance... She's made a lot of mistakes made me cry several times giving me totally opposite information every other appointment and I like her but I don't think I can trust that she's very good at what she does unfortunately. They both use the same kind of testing so I'm wondering why my doctor didn't pick on the mycotoxins from someone who is an obvious candidate... She did pick up on one very very late in our treatment despite knowing I lived in a moldy apartment... But she said it's gone based on a single treatment with some new laser therapy following klingjardts work but I honestly don't believe that.

So there's that.

Oh yeah and also number one they both said I need to get a support system! Easier said than done!! I'm so weak in my current social world because I'm the weirdo hippie black sheep. I'm realizing lately though how powerful I would be surrounded by people who actually think and feel like me!
Posted 8/21/2015 6:22 PM (GMT 0)
I can understand what motivated you to seek other input.

All LLMD's are not created alike - I see that with mine. Heck, he never once mentioned the need to detox and actually told me that my infection was worsening when I shared with him the symptoms I developed when herxing (I'm starting a new protocol).

Have you read Bryan Rosner's latest book? Freedom from Lyme Disease. He gives suggestions about things that might impede healing.

I'm really sorry but I don't know your story. Are you willing to share what infections you have and what's been done to treat them?

And, what are you dealing with now symptom-wise? What are you doing for detox?

If this info is available in any threads of yours, I'll gladly take a peek.

Understood about the support system - only people who have Lyme truly understand what we're going through. We have each other, thankfully.

I don't know if you have the time and energy to do so but, volunteering in some aspect is often empowering.

Of course, you can certainly find things within yourself that I'm sure empower you.....you just might need to remind yourself about them ;)
Posted 8/21/2015 6:23 PM (GMT 0)
I'm so sorry for all you have gone through borderlyme. I have been trying to learn about mold because I wonder if I have mold issues. I have had some exposure too.

There is a genetic test to see if you're sensitive to mold. I think it is the HLA test. about 25% of the population is highly allergic to mold.

http://www.survivingmold.com/diagnosis/lab-tests

There is a documentary about mold called Moldy. I found it to be a good introduction. I watched it for free online. Garden Peace recently posted a link. If someone has mold issues, it can prevent healing from Lyme. Personally, I don't know that a single treatment would heal someone from mold. Shoemaker's website has a lot of great info (see the link).

I hope you figure it out. We're here for you!
Posted 8/21/2015 7:36 PM (GMT 0)
Lymie girl- I had that genetic test done years ago... I forget which one I have but something is bad.

Cd3764- I think volunteering is a great idea. I keep wanting to but I don't really have it in me to just do my regular stuff I have to do!

I've had Lyme for 18 years... Didn't treat it right until maybe 5 years ago. Got better, then relapsed after a bad surgery 3 years ago. I've been dealing with bartonella lately, which may or may not be gone. The mold thing came up years ago but I was young and believed my PCP when she told me mold toxins aren't real....

I've been doing some buhner herbs and bee venom for the Lyme... Seemed to help but I'm still stuck.

I don't really do much go detox these days... Replaced my baths with sweating outside by the pool, take a supplement or two but I don't think I'm doing enough.

Worst symptoms these days are fatigue, hip and foot pain and weakness on one side, digestive issues cognitive difficulty and miserable depression/anxiety /mood swings.

Hopefully the naturopath will help clear some of this up and get me detoxing better soon... Just don't know whether to keep up with the Lyme stuff...
Posted 8/22/2015 1:00 AM (GMT 0)
I would not give up on Lyme treatments. That could be the toxins trying to talk you out of treatment. It gets really confusing when you're really sick. I completely get it. Don't give up.

Have you tried Cholestyramine or Welchol for detox? They can detox mold toxins too.
Posted 8/22/2015 12:24 PM (GMT 0)
I'm so sorry you've been dealing with this for so long!

I agree with Lymie Girl about keeping up with the Lyme treatment....and, if you're not doing so already, perhaps taking some of the herbs Buhner recommends to address your specific symptoms.

It seems like you might have given yourself a clue as to what might be holding you back from improvement: the need to detox more.

This thread explains why detoxing is so very important:

www.healingwell.com/community/default.aspx?f=30&m=3477137

Maybe you can slowly add detox methods and use this site for ideas:

www.tiredoflyme.com/detox-methods.html

I just started taking activated charcoal when I get up to use the bathroom at night (it needs to be taken 3-4 hours away from everything - food, supplements, meds). Suffice it to say, I wish I started it much sooner.

I didn't appreciate the need for a binder to help get those toxins o-u-t- out.

No matter what, I hope you find answers and, even more so, feel better soon!
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