I need moral support please for my Lyme

Hello,,

I have posted before just about a month ago that I have been diagnosed with chronic Lyme. The LLMD has prescribe Flagyl and Biaxin, bothe twice a day for 3 months with both having a 3 month refill. He also prescribed all sort of nutritional supplementation, with a lot of support with the probiotics area. One of my symptoms is I could care less about eating. I have lost 60 pounds in the past year due to no desire to eat. Yesterday was the last of my testing and blood draws and so now I have been given the green light to start my abx and nutritional supplements. My Evoke EEG testing as well as the Stroop testing I did yesterday was a rude awakening for me on how much I really have deteriorated in the neurological area.

Anyway. I never was a pill taker. I just don't. I have always been healthy and mustered through pain and never even took over the counter meds. So for me to take these strong abx just about gives me an anxiety attack. I have heard from my earlier post that I should start out with possibly the Biaxin first and then introduce Flagyl later so as to not start a horrid herx right away, and so I will do this. Has anyone ever felt this fearful of taking this much antibiotics? I know there are herbal remedies out there and this dr I am seeing is totally behind that also, and he said that some day I will get to that point, yet I need these abx to start out with as I have so many issues.


Any words of encouragement are greatly appreciated. I am just so afraid I will not be able to tend to my 13 yr old daughter with autism. Yes she is high functioning, but she still requires a lot of attention. I am so scared. Thanks all, and I am sure this wont be my last post. Take care all.

Charliebug, you sound just like me. I am not a pill taker. I eat super healthy and have rarely been sick. Now this.

I guess what scares me is that I read how so many people have Lyme symptoms for years. I don't want to be that person. So I am sucking it up and taking the dang pills. I had to get pill boxes because I am so horrible at taking them and I have 2 sticky notes in my house to remind me.

Taking care of your daughter will distract you from Lyme. I got depressed and came here. This is the place to come! I found out, through trial and error, that I need to stay busy. No laying around and having pity parties for me. No matter how badly I hurt, I must move. That works for me, but here again, we are all different.

How about let's get well, done and over this together?

Gentle hugs to you,
Annette

Eat anyway - you're gonna regret it, when your body's eaten up all your fat, then starts to go for the muscle. Working out when you're sick and screwed up ain't no fun, ain't easy, at least not for me. lol

As for moral support, I don't know. We're all going through similar stuff. Lots of pain, hardship. Struggle. That's life, sometimes, and a lot more often than not, for those of us dealing with these infections, and all the other little ailments that like to tag along with them.

People on the outside, trying to look in, they don't get it, not completely, even the ones that try. Most of the time, trying to reach 'um gets you nowhere, gives you nothing but an ache in the head, in the heart, reminds you of how bad your situation really is. Then, you got the ones that don't want to be reached, the ones that piss you off, make you wanna kill somebody. Better off just leaving them alone. Sure, it can be hard not to react, when they do, say something that hits you, makes you feel a certain type of way. It's hard not to react when they're wrong. You want to correct them. But, like I said before, some people don't want to be reached, whether they realize it or not. I've got people like that in my life. "Well, what's wrong? I care about you." I tell them. They don't get it. It's the same thing a week, a month down the line, I have to explain myself again. It's like they have amnesia, when it comes to my health. Even worse, they can be so two-faced about it, from believing that it's a real problem for me, to trying to make it seem like I'm not sick at all, or that I don't know what I'm talking about. It's so insulting. Then, the next day, they've got the nerve to smile in my face, acting like we're friends, like we're family, like they care, and got love for me. It hurts all the more.

But.. there are gonna people like that. That's how it goes, for the moment, living with Lyme and company. Hopefully, someday, things will change. For now, just gotta do what you can, live with it, or live without. If you can't tolerate trying to coexist with those people anymore, don't. If that means cutting them out of your life completely, if you can manage, do it. If not, then put up a wall, be a robot, give them the bare minimum, and let them know that they've crossed you, and that you don't want anything to do with them.

Strive to heal, prove them wrong, be a success. God willing, should that day come, and they try to eek their way back into your life, your heart, let them know what they did to you, let them know how they weren't there for you, truly there, at your worst, and that, because of that, you won't allow for them to be there for you at your worst.

Forgiveness can be a great thing, yeah. That's the way to go, but my outlook on it is that, to be forgiven, one's gotta want it, and, to want it, there has to be a genuine admission of wrongdoing. If these people don't know what they've done wrong, don't feel they've committed an injustice against you, how can they be forgiven. Do unto others, right?

Anyway, sorry, that little rant sort of became about me, my life. I've no doubt you could apply it to your life as well though, no doubt most of us could, at least in some small way.

But, yeah, just keep trying, seek treatment. I know it sucks, you've lost a lot, but.. you could lose a lot more, man. Give it 1000%, keep what health you've got left, and, yeah, try to get the rest back. Again, as hard as it may be to comprehend, accept, being in the situation, believe that it could get a lot worse, and will, if you don't do all you can.. NOW. Today, and every day.

I used to be in that same spot - "oh, I've lost this, that, and that, and I wish my life could be how it was, I wish I could be the old me." I mean, I'm still like that, sometimes. But, really, kinda just accepted that I'm not gonna be going back, or at least that it's not much of a real possibility, and that I just gotta work with what I've got and pray that I can get a little more. Just enough, you know?

100% would be nice, but I'd be a fool to be so optimistic, in my condition, mentally, physically, monetarily.

Just try. You already are, but.. keep doing it, you know? Abx, supplements, detox, all that good stuff.

I shared this in a post the other day. It's a quote from a post I saw on a site called reddit a couple weeks ago, in a subsection called GetMotivated. The guy's grandfather wrote it on card, sent it to him, when he was in rehab. I like it.

"Do the work - be the prize."

Anyway, sorry if I'm a mess. Good luck, buddy.

You can do this!! Yes it will be tough, but you will come out the other side a better person for it. Being sick like this changes everyone for the better (even though it changes us for the worse sometimes first)!

I know it's really hard, but just try to let go of the negative feelings and stress about all of this as much as you can - it really is the most detrimental thing to our health, even though it's the hardest thing to tackle most of the time.

We're all always here for support whenever you need it - just be sure to do what you can to detox, to take it as easy as you can, and take it one day at a time.

I know it's a big pain for those of us who are all but terrified of pharmaceuticals to take antibiotics and the like - but it's only temporary, and my advice would be to try to change your attitude about the antibiotics - even my mainstream doctors tell me that the best medicines won't work if I'm attaching negative expectations to them.

View the antibiotics as a (temporary) gift - work with them instead of against them.

Good luck and hang in there!

If you are against taking anx, why not try the bee venom therapy? There is an acupuncturist who has a fb group, Pioneers: Healing Lyme with Bee Venom Therapy. She has healed over 55,000 people with different ailments including Lyme, she had Lyme herself 2 times and got rid of it.

Join the group and look over the protocol, wish I knew about this before I took 18 months of anx and had better results with the BVT.

Charliebug

This is frightening so admitting your fear is a great first step. If you are not trying to hide your illness from your daughter can you use your taking your pills; into a motivation for something your daughter doesn't like to do? Any 13 year old girl is challenging(hormones, eyerolls). Is there something you are constantly having to ask her to do every day? Whether it be homework, making her bed, picking her clothes off the floor, telling you about her day or whatever your challenge is with her.
Can you ask her to help you with your fear of taking your pills by doing one of her items at the same time so that you are working as a team? That could make your daughter feel that she is part of your path to health and that might be a positive you both need.
Regardless of exactly what works let your daughter be a part of your motivation. Whatever age they are, our kids need us.
You can do this. The unknown is far more frightening than the known.
Janet

One day at a time, that's what it takes. Don't take on tomorrow's challenges or the previous days woe's - it won't help you get through today - but we will. This is the new way to take control of things, instead of sitting by and watching helplessly as your body goes through this, you do have some control with treatments and detoxing.

We will be here every step of the way with you.

Acupuncture helps me to feel more alive again. A little comedy burst with Broad City, Amy Sedaris or Amy Schumer on YouTube help too.