HealingWell
Search Close Search
☰

SYPTOMS WORSE

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/9/2015 12:15 AM (GMT 0)
I FINALLY got a good night sleep only to wake up 0630 with extreme pain, burning and prickly sensation in my hips, buttocks down to toes. L>R. My ankle joints so stiff I couldn't dorsi flex my feet. The worst I've had. My husband gave me a Percocet and lemon water. I went back to bed and woke up 645pm. Pain 5/10 and took another Percocet.
I take antibiotics Mondays-Thursdays. I did not take yesterday due to it was my birthday and family was coming over.
Im on Vibramycin, Mepron , Clarithromycin, and Nystatin. I took this Am and vomited the Mepron. THEY ARE ALL LIQUIDS DUE TO MY NAUSEA AND CAN NOT ALWAYS TAKE PILL FORM WITHOUT VOMITING.
I read about all the herbal remedies and vitamins people take. But I can not always swallow without vomiting. I bought Milk thistle, Red Root and Turmeric. But again cant always take.
Any teas I can try? Im afraid I may end up with a PICC line, which I don't want.
any suggestions greatly appreciated.
Posted 9/9/2015 12:36 AM (GMT 0)
Why wouldn't you want a picc line? If you are getting worse and not keeping the abx's in it seems like that would be a much better option for you.

You are not on anything that breaks up cysts. You need to talk to your LLMD about a cyst busting abx. Also about herbs that will clear biofilms and cleaners.

Can you ask for Oxycontin versus Percocet? Oxycontin is a time release morphine where as Percocet is depending on your rx either 5 mg of morphine and 375 mg of tylenol or 10 mg of morphine and 375 mg of tylenol. Your kidneys do not need the tylenol.
Posted 9/9/2015 1:21 AM (GMT 0)
So sorry you are having such a rough time, Kimbo!

You can do a tea - buy the herbs for the Chronic Tonic. That is the one that Traveler (one of the Veteran Mods) used to heal herself from a long-standing infection. She was very ill and could not do the antibiotics. (she tried, but kept getting sicker)

If you're interested in that, I'm sure she would be able to help you with it.
Posted 9/10/2015 1:09 AM (GMT 0)
Thank you for the information. Im not sure I can tolerate Oxycontin as most narcs make me vomit or more nauseated. The Percocet I can only take if Im going to lay down or I get sick on that too. I would like to try the Chronic Tonic.
As far as the PICC line. Its always a high risk for infection and I want to put that off as long as possible. Although that probably is going to be next. Im a nurse and Ive seen some pretty bad infections from a PICC line. Its hard to turn the nurse in me off. and Im not used to being the patient.
Posted 9/10/2015 6:10 PM (GMT 0)
bump

Do you think your symptoms are worse because you skipped your antibiotics? I'm trying to figure out what you're saying here and am confused.
Posted 9/10/2015 7:21 PM (GMT 0)
My thoughts get confused. lol. I think I need to try herbal remedies also. But NOT PILL form as I can not always keep them down. TEAS OR TINCTURES if anyone can help.
Ive become very hypersensitive to some smells, odors. Ive been taking the antibiotics since July with no problems. They are all LIQUIDS. however lately the smell Of the MEPRON makes me vomit. I think my worsening of symptoms is Herxing and I do detox. My nausea is worse and I have to play around with my meds. I have Phenergan pill form, suppositories. I have Zofran pill form and liquid and Scopolamine patches. I just am frustrated. I don't know how you all keep going. I feel like this is a death sentence.
Posted 9/10/2015 10:33 PM (GMT 0)
It's a rollar coaster ride and you are in a big down slope right now. The way it's been for me is that before all improvements I've gone through periods of feeling much worse. I've come to think of it as no pain no gain.

While that doesn't make you feel any less awful right now I hope it gives you some hope for the near future. I believe that you will see progress soon. Then start a new protocol and feel crappy again, wash, rinse repeat yet with each cycle the improvements are more evident and the crappy feelings are not as crappy.

I know you are having trouble taking pills. What about liquid Omega 3? Nordic Naturals makes an excellent product and it tastes lemony. It will reduce inflammation and help with pain. The nausea is likely due to magnesium deficiency. It's extremely common with Lyme. If you could find a source that you could handle taking that might help you a lot.

Janet

Edited to add-if you haven't already please do order alka seltzer gold. It helps remarkably well for your all over aches and pains from herxing.

Post Edited (jrpsf) : 9/10/2015 4:43:57 PM (GMT-6)

Posted 9/11/2015 2:57 AM (GMT 0)
I am a RN as well and I know what you mean about not wanting to be a patient. I ended up getting a PICC line and I do think it was the right decision. Many of the antibiotics can go via PICC and you may have reduced nausea and vomiting as a result. I am on IV Rocephin and we are going to switch my oral Doxycycline to IV in about two weeks. The herx symptoms can increase initially but I found they subsided a bit over time. I was at the point where I could not walk due to bilateral hip bursitis and myosotis in my left buttock. This prompted the PICC insertion. I absolutely don't regret it. Good luck!
✚ New Topic ✚ Reply