LDI - anyone try this?

I have an apt next Friday to start this. I keep going back and forth on it. I was actually going to try it this summer before I even knew I had lyme (the doc thought clinically that I did). I get hung up on not killing the bacteria. If I can continue a killing protocol while doing LDI I will probably give it a shot. I believe it will be sublingual. I don't feel completely settled on the idea yet so if anyone has opinions please let me know. My main symptoms are neurological (numbness/buzzing).

I have a hard time making decisions. But I need to address heavy metals and parasites so one thought I had was doing the LDI while taking care of those and then pick back up on antibiotics after. Or, just stay on doxy while doing LDI. I read somewhere that with LDI the bacteria may go more into cyst form which would lead me to believe pulsing Flagyl or another cyst buster would be beneficial. I have no idea if that info is accurate as I can't remember where I read it.

Also, I follow "LDI for Lyme" on facebook. It's interesting to read about people taking LDI and their progress/questions. It seems the dosage is a bit tricky to get right. Too high and you get stuck with bad symptoms for awhile. I would start out as low as I could go. He also mentioned you can put other things in the "lyme cocktail." Possibly something for allergies or candida if they are a problem.

The cost is around $50 per dose and I think it's given every 6-8 weeks initially, then further spaced out. The doctor I saw is at the point where he just gets a yearly dose and he's on year 5. He will ship the sublingual doses to me, but I have to go to the initial apt and a few other check-ins.

On a side note I see that Yolanda Foster is trying this right now. She appears to have the shot, which I am not totally sure why some have to do the shot vs. sublingual.

I think there's a doc in Alaska. Also if you follow that facebook group they can message you names.

I'm actually going to be starting this soon. Would love to know more!

My doctors office staff said they received special training for it, so I don't believe it's the kind of thing a doctor would just ship to you.

One of our forum members emailed me this link on it: I haven't watched it yet.



/www.youtube.com/watch?v=0msxuinTD3o

I think it's the same concept but different uses (LDA vs LDI). The link that kyo posted explains it pretty well. Basically you're trying to stop your immune system from reacting to the Lyme (or whatever other infection) bacteria.

"To further confuse things, another term used for this type of therapy is “low dose immunotherapy” or LDI. This term emphasizes using LDA for more than what is thought of as typical allergies, such as desensitizing the immune response to certain bacteria.

Using LDI for autoimmune diseases and conditions that involve an overactive immune system is a truly unique therapy. It is well established that certain autoimmune diseases, and perhaps most of them, are “triggered” by an initial infection. As the immune system recognizes the infection and mounts an attack there is a cross reactivity with their own tissue. This process is called “mimicry”."

Also, IVIG is related to the blood product immunoglobin, which is completely different

No problem, glad that helped. I'm cautiously optimistic about trying it. Since I've had basically no response (herx but not improvement) to any of the treatments I tried, my doctors think it could be helpful. Willing to try anything!

I don't think you get multiple shots at once, it seems like they are spread out. The link above http://imcwc.com/html5-blank/low-dose-allergy-lda-therapy/ says that it's every 7 weeks.

This is quite intriguing!!

I hope updates will be forthcoming with possibly more information and also experiences.

Best of luck to you with this, Sarah!!

The person I have been in contact with via email has been treating for quite sometime and has developed EM (Erythema nodosom) - okay - I know I spelled it wrong.

She had swollen knees, with red, hot patches. She said it was autoimmune reaction.

She is 'almost better' - except for that symptom. When she goes off of biaxin it flares up.

So, I will see how she does with this LDI and then consider it for myself.