Unsuportive people- people who dont "get" Lyme .....vent!!

I'm so sorry, Astroman. It really sucks. We can place the blame of people's behavior on the IDSA and CDC, but that surely doesn't help the individual in the moment. You don't deserve that kind of treatment and you are most definitely better off knowing that those people weren't 'true' friends to begin with.

I'm glad that you feel you can vent here!!

I know, right??? Ugh... I get SO Fed up.

My husbands step-sister who lives in Hawaii, and we never ever see, was going to be stateside for a funeral 3hrs north of us. She didn't understand why I couldn't drive 3hrs one way, 3hrs home the same day. By the way, she actually flew in to Portland and then drive up north, so SHE could've stopped by here!

Here's the 'ticker'- she'd had not previously known of my diagnosis and I sent her an email explaining what my life has been like(cause she's NEVER asked); her text msg response was a photo of a text out a book about seeking pity!!!! She basically said I just want pity!!!

What? REALLY??? I cannot even explain what's going on with me and how horrible it is without being called a "pity-seeker"! How absurd!

That sucks Astroman - it sucks that you have to keep explaining and it sucks worse that they still don't understand.

Personally I don’t think it is explainable - but that's not and never will be an excuse not to have consideration or attempt a little empathy.

My inlaws simply sent a text saying 'I hope she sorts herself out', when my husband told them I had Lyme. Ain't heard from them since. Now that's a way to get out of even having a go at understanding....

I hope karma bites your 'friend' on the butt ;)

If I don't start getting any better, I'll likely murder one or more of these sorts of people. That's a messed up thing to say, I know. But, sometimes, they just make my skin crawl, and soul burn, and I can't let it go. What makes it worse is not being able to defend myself against it as well as I'd like, especially lately.

They get away with it, and I hate that. I hate when things are wrong, not just. People, things, whatever.

What you are saying is not right, and I want you to know that, but I can't reach you myself. It's so frustrating. I just want to slap the crap out of them, when words fail.

I've cut a lot of ties because of it. Family, friends. Some I can't avoid though, and, as many times as I've tried to make them get it, it's like they have amnesia sometimes.

They wonder why I'm in a bad mood. Why I'm hard to get along with, some days. They get upset, when I say, I don't feel well, when asked to do something. They get upset, when I say, I don't want to talk right now, or I want to be alone.

I ****ing hate them, and I often say it to their faces as well. I hate you. Don't ever speak to me again, for the rest of your life.

Granted, a large chunk of it is just me being sick, the infections, both because they mess with your mind, but also just the act of being sick, if that makes any sense. Though, in part, I feel like I really do hate them, in ways, or, more accurately, I hate certain sides of them, and.. again, in part, maybe I do feel like never speaking to these people with sides that I don't "click" with wouldn't be the worst of things.

I know that's life - along the way, you'll be met with people, things, circumstances that you just can't vibe with, and you've got to react accordingly. Sometimes, that means handling it, or running away. Others, maybe you've just got to live with it? I don't know.

But, yeah, I do not like these people. They can eat turds.

edit: I will say that, for many, it's not so much their fault as it is just not being educated enough, being easy prey for the lies and misinformation that's spread, and not having sense enough to be like, hey, this person is my family member, my friend, maybe I should trust them over the rest? Again, it's their fault, but they're not entirely to blame. I used to believe everything the doctors told me too. I used to believe everything on the television too.

Post Edited (NotQuiteAntonio) : 10/18/2015 8:50:44 AM (GMT-6)

It's terrible. It really is. And if that so called friend contacts you, please kick him to the curb! He's not a true friend if he doesn't support you through your toughest moments. I mean isn't that what friends are for? I've only told one friend about my illness and she's been so so supportive, always checking in on me, asking if there was anything she could do to help. These are the people we need in our lives because when we feel like we are drowning, they are our life jackets. Sadly, sometimes these types of people are few.

What if they were going through something similar? Wouldn't they want support and help? Unfortunately it's only when the tables are turned that those same people realize what it's like.