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Posted 11/21/2015 6:34 PM (GMT 0)
Is this Lyme? Igenex Igm results:
23-25 band +
31 ++
34 -
39 Ind
41 +
83-93 -

Been sick for 4 months prior to testing and all IGG were negative

Post Edited By Moderator (Girlie) : 11/21/2015 12:52:17 PM (GMT-7)

Posted 11/21/2015 7:50 PM (GMT 0)
Yes, and according to my Igenex test result sheet - that is both Igenex and CDC positive.
Does it say that on your results?

I'd like to welcome you to our community, and hope we can help you with this.

Do you have a Lyme Literate Dr. to see? If not, we can help you with that. Just start a new thread titled: "Looking for LLMD in/near______" and fill in the blank.

Also, when you have a moment - you might be interested in reading through the thread at the top of the page titled; "New to Lyme?..Start Here!" It's full of good information - symptom lists, info on probiotics, and detoxing suggestions.
Posted 11/21/2015 7:53 PM (GMT 0)
mijos81 - I edited just to give your thread a subject.
Posted 11/21/2015 7:54 PM (GMT 0)
Well, I am not a doctor but tests don't mean tiddly to me. What are your symptoms? They tell a much better story then what a lab result tells.

This post will bump you up and a moderator or a veteran will be along to help you out.

I can offer welcome!!! and obviously you think you have lyme or you would not be here. If that is the case you certainly have arrived at the right place. Lots of information here and the best part is there are no silly questions.

~Annette
Posted 11/29/2015 1:43 PM (GMT 0)
Well it started with sore feet, tighness on calf muscles, leg pins and needles and then burning sensation from waist down, that's when feet doc gave me neurontin n steroids and sent me to neurologist. It seemed like a new symptom would show up every week, and it kept crawling up my body. Stabbing pain on knees and ankles so hard that would paralyze me, started havIng HORrIble vertigo episodes, then limping and 4 weeks after when finally got to see the neurologist I was on crutches. Stabbing pain on chest, abdomen, and wrists, then on my back, and by June it was all over( shoulders,throat,ears, nose, eyes and head). It's my main symptom right now, excruciating ice pick pain behind my eyes and head, plus the pinprick all over and the "shooting fire through my eyes" so bad I ask ppl if they can feel it;legs got better but still need crutches. Neuro was sure I had MS and so was I...MRI and all lab work and spinal tap came back normal but the Elisa for Lyme was kinda high,that's when I looked it up and was appalled when remember having a rounded rash behind my leg but don't remember any tick bite and docs keep telling me we don't have it in Hawaii, I do remember a mosquito full of blood biting my arm. If it's possible to have a rash on the leg if I was bitten on the arm???? Do ppl get the rash from a mosquito bite too???? WB was neg and I was sent home to clear the "virus" out. Saw another neurologist that told me I was depressed and that was probably my problem cuz he couldn't find anything wrong with me. Had to contact an old MD friend to send my blood to Igenex and they reported positive for them and cdc.Had 6 WB from other labs and they showed 0 bands, HOW COME?? Pls answers!

Post Edited (mijos81) : 11/29/2015 7:05:29 AM (GMT-7)

Posted 11/29/2015 2:32 PM (GMT 0)
Welcome mijos81!

Sorry for the reason you're here but glad you found us.

I'm not sure what other labs ran the WB for you. However, if you're talking about labs like LabCorp, Quest, etc., they test using CDC standards which eliminate the bands most likely to show positive for Lyme. Why? The CDC eliminated those bands when trying to come up with a Lyme vaccine (and the test vaccine actually caused people to get Lyme).

Ironically, all labs only check for one strain of Borrelia (bacteria responsible for Lyme) and there are over 100 different ones. For you to test positive via Igenex confirms Lyme with no doubt.

Some mosquitos have tested positive for Lyme. And, truly, the tick most likely to infect us with Lyme is the nymph tick which is as small as the dot at the end of this sentence.

Yes, it is possible to have a rash on the leg if you were bitten on the arm. The rash is a sign of an immune response.

Sorry to tell you but, all of your symptoms are hallmark for Lyme and the infections that can accompany it.

Here's a link to a site that does a great job of explaining WB results:

lymetwistontherocks.blogspot.com/2011/01/western-blots-what-do-all-of-those-darn.html

And, here's a link to a site that includes links to PubMed articles that confirm the meanings of the bands:

www.oocities.org/hotsprings/oasis/6455/western-blot.txt

Bottom line, you have Lyme and really need to see a LLMD (Lyme-literate MD).

Besides creating a thread to get member referrals for LLMD's, you can also use the physician referral feature on the ILADS site. (ILADS = International Lyme and Associated Diseases Society which is cutting edge for Lyme diagnosis and treatment). Here's the link:

ilads.org/ilads_media/physician-referral/

Please continue to post with any questions or concerns you may have. We'll do our best to help. After all, we're all in this together.

Best of luck to you moving forward!
Posted 11/29/2015 4:56 PM (GMT 0)
I got tested by Arup lab and focus diagnostic, I know they don't test for bands 31 and 34 but I was expecting a positive result on the bands they do test, can't believe I tested Igenex pos for bands 24-25 and 41 but this other labs don't, guess Igenex is more specific? I'm new to this forum, have a lots of questions:
1.Have anyone here heard of Lyme in Hawaii?
2.Have anyone got bitten by a mosquito???
3. Read a few articles saying that detox is not necessary, that is a trick to sell supplements cause it's a natural function of the body. Is this true? Any study done on this? If it's true then which one to choose? I read about chrella with cilantro, Apple pectin and more.
4. Samento kills the bacteria??
5. Has anyone on this forum got cure??
Posted 11/29/2015 5:18 PM (GMT 0)
Yes, there is Lyme in Hawaii. There are some that say that the ticks that spread Lyme aren't there, but they are misinformed. If there are migrating birds ever there, there is the potential for the ticks to be there. Also, more types of ticks spread Lyme than are currently "officially" recognized as being able to.

As for mosquitoes being another means of spreading these infections - yes on that as well:
www.healingwell.com/community/default.aspx?f=30&m=3449425

I tried abx treatment back when detoxing wasn't thought as something that was needed - and it almost killed me. Detoxing is essential. The Lyme bacteria releases neurotoxins as it dies (naturally or during the course of treatments) and these toxins can overwhelm the body. Detoxing not only makes the symptoms easier to deal with as you are in treatment, but can keep us from needing the emergency room to control a cytokine cascade. Whoever told you this, or where ever you read this has no clue, and likely has never herxed very bad. Most of us here advocate for others to detox better because we understand the mechanism and how much it helps.

You need to employ many detoxing routines - none of which needs to be costly. We have a great list of detoxing ideas in our New to Lyme? Start here thread, and you can find others on this site:
www.tiredoflyme.com/detox-methods.html

You also might wish to read this article as well: www.tiredoflyme.com/11-things-that-can-make-a-person-with-lyme-disease-feel-worse-besides-treatment.html

I won't say that I've been cured - because there simply is no way to prove that a person has successfully gotten rid of all the bacteria (testing is too poor), we generally say we are healed or in remission. With that said I have healed from a 40 yr old set of tick-borne infections, and had no symptoms until I was reinfected in the summer of 2014 - healed from that and have no symptoms of these infections now.
Posted 11/30/2015 4:31 PM (GMT 0)
Hi again, not sure if I'm in denial but is there any possibility this could be something else? I found black mold growing on the walls of my bedroom, I cleaned it with chlorox and got an air purifier, but still very concerned about it, tried to call for mold inspection but it's a lot money, is there any lab test to check for mold exposure or mycotoxins??
Could it also be a virus transmited by a mosquito like West Nile virus or others? I remember the mosquito bite sometime around March or April, it's lots of ppl on this forum, it has to be someone with info regarding mold and viruses transmited by mosquitoes, HELP!
Are Igenex results Reliable or it could be a false positive???

Post Edited (mijos81) : 11/30/2015 9:37:56 AM (GMT-7)

Posted 11/30/2015 4:53 PM (GMT 0)
No, there's no doubt you have Lyme - you have too many Lyme specific bands positive (23-25 band, 31, 39) for you to NOT have Lyme - but you can have mold issues on top of your Lyme.

I don't know if there is one on the island you are on, but I know that there is a Lowe's on one of the island (sorry forgot which one) they should carry a home mold test that you can do yourself to help you get an idea.

and I answered your question about it possibly being a mosquito in my previous post - right above your post.

False positive are very, very rare. The Western Blot misses about 50% of those that actually have Lyme though, from false negatives.
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