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Q about lyme & babesia

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Posted 12/6/2015 10:26 PM (GMT 0)
Hi, I initially was on 10days of Doxy, then switched to mepron, zithromax, cefdinir & herbals for the past 6 weeks and I'm feeling lousy. My initial complaint was TMJ pain/locking & fatigue, but now, with 8 weeks of treatment, my knees hurt, my arms feel like they weigh a ton, I've had headaches & holding urine is near impossible! This week has been tough b/c of PMS, too. Have any of you had increasing Lyme/Babesia/bartonella symptoms after 2mos of antibiotics?
Posted 12/6/2015 11:54 PM (GMT 0)
Hi Lisa 10/15!-

Are you doing anything for detox? There are a lot of great ways in the - "New to Lyme?...start here" thread at the top of this forum.

When too many bacteria die off too fast (due to treatment), they release toxins into the body. This is an overload on your system, as it is trying to rid the toxins.

I hope this helps you!
Posted 12/7/2015 12:12 AM (GMT 0)
I'm drinking lots of water and taking baths when time permits. It seems odd to me that if this a herx, why did it take 2 months to come on & so many days to pass? Lyme & co are the craziest critters! I can't wait to be over this!
Posted 12/7/2015 12:20 AM (GMT 0)
Hi Lisa,
Little Bear gave you some great information, but I'd like to explain it a bit more.

I too would ask what you are doing for detoxing. If you aren't doing anything or not much, then that's definitely the culprit. Those toxins that are created when the bacteria dies off can really increase our symptoms or even bring on new symptoms - as if we don't have enough to deal with, right?

Well, it only means that you have to help your body detox. As Little Bear said, we have a great list of detoxing suggestions in the "New to Lyme?" thread and there are some more suggestions in this link:
www.tiredoflyme.com/detox-methods.html

It will take a little while for you to begin to feel better, but it will help. Do be careful to not add in a bunch of things all at once - things like the detox full body soaks can release too many toxins for your body to detox out quickly and make you feel even worse as explained very well here: www.tiredoflyme.com/4-reasons-why-you-still-feel-bad-despite-detoxing.html#.VTWf5vAcSic

And one more thing - around the time of full moons, new moons and during your menstrual cycle your symptoms could all increase. All you can do is rest and increase your detoxing. We know that the hormones drive the increase of symptoms around the time of a woman's cycle, but we aren't sure about the moon's affect - we only know that it does happen for many.
Posted 12/7/2015 12:58 AM (GMT 0)
And I would like to add a change in the weather can cause weird symptoms to suddenly appear. I just had a cold front come in and at first my knees were aching so bad. It started raining and I was fine. Then as the front moved on by my elbows and wrist started aching. Weather can cause me problems.

As will altitude changes. Where I live at 4,000 feet my nearest store is 2,000 feet and oh can that cause me some grief going to the store. I have had to detox just to go grocery shopping.

Just remember that we are all so different and not one of us will have the same as anyone else. And who knows what exacerbates our symptoms. For me, it is always something new and different and such an unpleasant surprise.

Hang in there and keep on detoxing!!

~Annette

Just wanted to add that I will be going along fine and I can find no reason at all to have a symptoms come up. I always ask my husband, "what did I do to get this?" He is so sweet he just says, "it's just lyme honey." And we go about our day.

Post Edited (PeteZa) : 12/6/2015 6:01:33 PM (GMT-7)

Posted 12/7/2015 1:14 AM (GMT 0)

Lisa10/15 said...
I'm drinking lots of water and taking baths when time permits. It seems odd to me that if this a herx, why did it take 2 months to come on & so many days to pass? Lyme & co are the craziest critters! I can't wait to be over this!

You need to increase your detoxing. Very few people can get away with that little detoxing. Please see the suggestions in my previous post above.

The first month you were likely so overwhelmed with symptoms and trying to adjust to all the new things that you didn't really notice what might have been a minor herx, then when it hit on month 2, you felt that herx all too well.
Posted 12/7/2015 3:12 AM (GMT 0)
Lisa not sure how long you've been infected but you are early in your treatment. While we hope you recover quickly you should mentally brace yourself for a protracted battle with these critters. When I first found out after 6 months I was infected with at least Lyme and Babesia people would say to me whew aren't you at least glad you know what you have now you can do something about it! Thinking back I wish I had something else because for many this turns into a chronic illness that can last far longer than you think it can. I'm over 9 months into treatment and that's 14 months since symptoms first appeared and if you would've told me I'd still be suffering//struggling when I first got my diagnosis I would've told you you're nuts.

Not trying to depress you but you need to be ready for a probable long fight so listen to the great advice you'll get here and stay within your capabilities to function.
Posted 12/7/2015 10:35 AM (GMT 0)

Rikky1 said...
Thinking back I wish I had something else because for many this turns into a chronic illness that can last far longer than you think it can.

Not to mention the fact that you start feeling better, you think it's over, then it starts all over again, and sometimes even worse than before. It can be really depressing.

At least we live in times where there is increasing awareness of this disease (and even a bit of panic, in UK/US media there are lyme disease articles in the mainstream press almost daily www.dailymail.co.uk/home/you/article-3340875/Lyme-disease-spot-it.html ) . Governments seem to start pledging to allocate funds for it, etc... more serious research is kicking in. Companies start to become interested in finding drugs for chronically ill lyme sufferers goo.gl/a1lOs2

If i were to develop lyme disease 10 years ago, now that would have been much more depressing...
Posted 12/8/2015 4:06 PM (GMT 0)
"If i were to develop lyme disease 10 years ago, now that would have been much more depressing..."

Yep, I was infected 46 years ago (oops! Telling my age) at the age of 7. That's why I'm still here, still raising a ruckus over all of these infections everywhere I go, and helping anyone I can. I don't want anyone else to go through what I did. It's no life to have.
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