Posted 12/17/2015 3:26 AM (GMT 0)
I'm actually one of the patients in the trial - currently working up to the full protocol of Dapsone/Mino/Rifampin/Plaquenil/Malarone and pulsing Omnicef (M-W-Sat). It's a lot of meds and I'm nervous about it quite frankly. However, ive been on Dapsone/Mino for about 2 months now and have made noticeable progress. The initial herx with Dapsone was intense and I still have to spend every free moment detoxing heavily but there has been a slight shift toward improvement. There is definitely hope!!!!