Involuntary muscle jerking

Hmm, I have my appointment with my llnp in two days so I wasn't sure if I should just wait to ask her or if I should ask y'all for advice.

After getting Lyme, i noticed my right foot would jerk once in a while I was in bed. I don't mean it like I was doing kung fu kicks in bed, its more like when you idly tap your foot while you're waiting in line at the grocery. Or when a kid dreams about running and the toes in his feet twitch up and down.

After starting my nerve pain meds, I noticed the involuntary movement has gotten worse. The meds make me feel like a champ though #painfree haha. Both of my legs jerk pretty bad in bed now (like how people jump when they're startled), the fingers in my hands involuntarily twitch and clench, and I have this weird shoulder shrugging tic that happens on occasion. I looked it up on Google and I guess I have myoclonic jerking.

Does this happen to any one else and is this something permanent? This is pretty vain but I just don't want to look like a freak if it progresses to the point where Im trying to do a presentation at work and my entire body just starts involuntarily jerking. I just don't want people to laugh at me, you know? I want to be taken seriously and I want to keep my cool kid status.

I know for sure my brain MRI came back clear so its not coming from my brain (phew). I'm just not sure if this is due to the nerve damage progressing or if this is due to the neurontin and lamictal I'm taking (both can cause myoclonic jerking). Idk if I should just stop taking the nerve meds to see if I improve, but I guess it's something to ask my llnp on Tuesday. I'll sure miss being pain free if I go without them though

Right now I take 10 pinella & 10 burbur drops a day. I used to take chlorella but I was told to hold off on that. I also drink lemon water when I remember (okay I know I'm pretty bad when it comes to detoxing).

trumpet123 said...
There is something called unwinding. Here is an example youtube. Could it be this?

https://www.youtube.com/watch?v=WysHRgQFIlo

Nah, whatever I'm experiencing literally looks like the dude in the video on wikipedia:
https://en.m.wikipedia.org/wiki/Myoclonus

And this lady:
http://m.youtube.com/watch?v=gky4n3sAtJk

Girlie said...

I also think you should be doing more for detoxing.
Have you tried warm epsom salt baths? ..and dry brushing before the baths?
Are you taking something for your liver - like milk thistle extract?

What about a good probiotic?

My apartment doesn't have a bathtub, only a shower

I'm only taking the supplements my llnp suggested tbh, the only thing she said to take for my liver was the lemon water.

For probiotic I'm taking a 50 billion bacteria one and a 10 billion saccharomyces boulardii (yeast) one.

I've been having a fever the last two days, maybe this really is a super delayed herx. What do people usually take to bring a herx induced fever down?

Hi,
We are new to this but I will say DS, 14, had similar tics and twitches and they went away while he was on his first month of treatment.

Gummo,

It's an annoying symptom, but it's not permanent. mine got so bad I had to sleep on the couch for a few months. My wife said it felt like I was jumping hurdles or bouncing on a trampoline in my sleep. I was even known to involuntarily throw the remote a few feet into the air, to which it would typically land on my head.

Mines gotten much better. I sleep in beed with my lovely wife, still no cuddling as she states she isnot a fan of waking up being Heimliched :p

clonazepam helped me drastically, but if yours isn't bad and its just a twitch now and again, I would suggest waiting. Lord knows none of us need more medications in our body.

I've lived with the muscle jerking most of my life. It has been both light and severe, to the point that I would literally 'bounce' off of whatever I was sitting/laying on - including a doctor's exam table a couple of times. Hubby and the dogs slept on the other side of the bed, and I wound up giving myself a black eye about 4 different times in my sleep - so I don't blame your wife, Lymeinthecuckoonut!

For me, a certain amount of it was caused by myelin sheath damage, but a good portion was due to the toxins and infection as well it seemed. Most all of it is gone now that I've healed though, and the remaining gets less and less the longer I'm in the "healed" category.

While I didn't use it, the Lion's Mane (it's actually a mushroom) extract has been shown scientifically to repair the myelin sheath.

www.ncbi.nlm.nih.gov/pubmed/12675022

www.livestrong.com/article/509385-lions-mane-mushroom-for-nerve-damage/

I would also really encourage you to increase the amount you are doing to help your body detox. I don't have a bath tub either- so I did the foot baths. It's a great way to start using the Epsom Salt/peroxide soaks as it's much gentler, although it's still best to not keep your feet in the water more than 10 minutes the first few times until you can gauge your reaction. I also bought a large oval watering tank for livestock and would fill it with hot water - by the time it filled, it was not longer hot, but just about body temp! - and would soak in that when I thought I could tolerate a full body soak. I looked a little (okay, a LOT) like those old cowboy movies where the cowboy landed in the watering trough, but it worked!!

Dry skin brushing, oil pulling, activated charcoal, and several other detoxing routines won't usually cause any increase in symptoms, but will lower you toxin load so that symptoms will ease up.

In a high number of cases, there are environmental toxins that contribute to myoclonus. If I had that problem, I would search my environment very diligently to see what it was.

Same here. I had a ton of muscle twitching all my life and I've lived in many, many different situations without it doing anything other than get more frequent/more severe each year, until I reached the peak of it all after trying to use abx and was overloaded with toxins.

Detoxing and treatment has stopped nearly all muscle twitches for me - and they continue to get less and less. I rarely even notice them any more.

Here's an interesting article on how toxins use up all the magnesium in the detox process....Even though it's MTHFR deficient specific, I think it can apply to anyone with Lyme because we all want to boost our detoxification!

http://gotmag.org/mg-deficiency-affects-mthfr-really/

I would bet a lot of money that something you are eating is contributing to your problem. Environmental toxins also include what we ingest. I learned very quickly what was contributing to my issues and eliminated it.

Girlie said...
GH - Sometimes it is the infection... plain and simple. Do you not agree?

For me, treating the infection stopped the muscle jerking.

Reading this thread with interest.

Girlie, which infection caused your jerks and stopped when you cured it? Bart? Lyme? etc

Girlie said...
GH - Sometimes it is the infection... plain and simple. Do you not agree?

For me, treating the infection stopped the muscle jerking.

Having an infection can certainly induce a situation where myoclonus is more apt to occur. I often have a difficult time relating my thoughts as I don't think like most people on this forum. I'm thinking on a level lower, and that's not meant to sound negative towards anyone here, it's just different.

While someone may say an infection is causing jerking, my thought is "How?" I try to go to to root of the issue if possible. Is the infection allowing other pathogens to sequester metals which can reduce acetylcholinesterase and increase acetylcholine levels? Is the person eating metals or pesticides in addition to their infection which aren't being eliminated properly? Has the infection depleted or blocked vital nutrients essential in stabilizing the neuronal membrane? Is the infection reducing interstitial pH and creating an osmotic difference causing a direct stimuli to the nerves? There are quite a few plausible scenarios that may apply just in your situation.

An infection causes something to occur and what occurs is what actually causes the jerking. I'm just thinking a level lower and by doing that, I have a better chance of correcting the issue.

We all live in a toxic world and eat pesticides and chemicals that our body eliminates without us even knowing it. It's like a seizure threshold, we don't even know where it is until we reach it and have a seizure. That's the way our elimination system is for getting rid of these chemicals. We don't know where the threshold is until we are there and become sick.