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Posted 12/30/2015 12:59 AM (GMT 0)
I have been on abx now for 3 yrs! I have attempted to go off and within 2 weeks, my muscles start to ache terribly and fatigue sets in!! I'm not sure what to do. My Llmd has said some of his patients are on abx for many years!! Please help with any thoughts. When I'm on abx I'm about 70% better.
Posted 12/30/2015 1:06 AM (GMT 0)
Just some thoughts..

Maybe when you go on abx...the bacteria go hiding or dormant.

Perhaps you want to try herbs? Or a combination of different abx that's more intense at attacking the bacteria. ABX can shut off the immune system as well. Maybe the the bugs can't hide as well if the immune system were turned on?
Posted 12/30/2015 1:42 AM (GMT 0)
I'm really sorry to hear you're still dealing with the nonsense these infections can cause.

That said, what infections have you been dealing with? What treatments have you done?

Were you symptom-free for at least 2 months before stopping treatment?

What all do you do for detoxing?

Knowing the answers to these questions will help us help you better.
Posted 12/30/2015 3:10 AM (GMT 0)
If you're only 70% on the antibiotics - then you shouldn't be going off them unless you have another plan - ie herbs.

I wonder if there is an untreated infection? Have you treated all the three B's? (bart/borelia/babesia)

Treatment must be continued until symptom free and then several weeks after (I think Burrascano states 4-8 weeks - personally if I'd gotten to that point after 3 years...I would do 8 weeks)
Posted 12/30/2015 11:04 PM (GMT 0)
Hi guys, thanks for your replies. Other than rotation of abx over the past 3 years, I treat regularly for candida through diet and supplements. My endurance just will not come back 100%. I still need to take frequent naps and get worn down easily. My supplements are multi vitamin, vit c, vit d, magnesium, biotin, b-complex, aspirin, zinc, wobenzyme for bio films, pickled japenese plum puree for candida and lauricidan for immune system. I have labs done routinely and my labs always show I'm a picture of health shakehead Is there anything I'm missing? I feel like I do alot already! UUgh! I went off abx at the suggestion of my llmd at my last visit. He seems to be getting tired of me or maybe it's just me lol! For detox, I do epsom salt baths 3 times a week and drink lemon water. Thanks in advance for any suggestions
Posted 12/31/2015 1:27 PM (GMT 0)
ILADS (International Lyme and Associated Diseases Society) is cutting edge for Lyme diagnosis and treatment.

They recommend treating for 6-8 wks. past full resolution of symptoms. Your LLMD really shouldn't be stopping your treatment as he has.

That said, what exactly have you been treated for? Lyme? Babesia? Bartonella? Erlichia, etc.?

It's rare for someone to just get Lyme after a tick bite. Therefore, if someone was also infected with Babesia, for example, they will not heal until Babesia is treated (Babesia is a parasite similar to malaria and abx will not provide healing. Anti-malaria-type meds are necessary).

Also, the fatigue/endurance issues might be due to hypothyroidism which these infections are famous for causing.

Unfortunately, all too many doctors don't know how to properly interpret thyroid tests....and that's if they run the right tests.

Have you had Free T4 (T4 or thyroxine, free, direct) and Free T3 (tri-iodothyronine, free, serum) testing?

If yes, please share the results here (with reference ranges). If not, please get those tests done. I can show you how to interpret the results.

While epsom salt baths and drinking lemon water are excellent ways to detox, it's usually necessary to incorporate many more methods daily to continually clear the toxins created by the dead bug parts.

Perhaps you'll review the link below and find some new things to add to your detox protocol:

www.tiredoflyme.com/detox-methods.html
Posted 12/31/2015 1:50 PM (GMT 0)
can you give us more details about what antibiotics were you on ? It sounds to me there is a missing piece in the puzzle. Have you been tested for Babesia and/or Bartonella ? For example you will not recover with lyme abx if you also have Babesia, it requires antimalarial medication. If you have a hidden untreated parasite such as this, it does not matter how many years you take the lyme antibiotics, you will not improve.
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