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Lymes or Bebesia?

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Posted 1/18/2016 8:51 PM (GMT 0)
I greatly value my fellow Lymies opinions on the subject, and I know that this question is asked all the time, probably due to the fact that many symptoms overlap, but I thought I'd get your opinions on this one.

The short version is that I'm currently treating for Lyme after being clinically testing possitive and failing the hospitals version of treatment. I contract Lyme relatively early before treatment (perhaps a month or so), and had pretty severe symptoms with a list a mile long.

After seeing an LLMD, he has me on two different antibiotics, and I also take Buhners LB protocal, full dosage, among a slew of other detox methods. All together I take probably two dosen pills a day. I've been on this regimen for maybe two months now. I understand that Lymes treatment can take a year or more, but this is where I'm confused. I've had little to no herx reaction, and little change in symptoms. Some of the alleviation of symtoms I think are due more to my own management (tons of rest, a gallon of water a day, detox, vitamins, magnesium suppliments, etc). Personally, whatever my treatment course is, I'm prepared to wait it out for as long as it takes. However, I'm concerned at this point that my racing/pounding heart is still occuring pretty much all the time, and am worried that if I don't get this figured out sooner than later I might be facing serious problems (enlarged heart, heart failure, etc...).

As the subject states, I'm wondering if this is a case of Bebesia. Lot's of things to consider here, such that it was during my origional treatment that I began to show heart issues. I caught Lymes pretty early. Also, I have no muscle/join soreness, which I believe is one of the most common symptoms of Lymes. For this reason, I'm starting to think beating Lymes was the easy part, and now I'm left with Bebesia.

Also, reading the forums, it sounds like a lot of people had heart issues that were resolved once on Bebesia treatment. I hate bugging everyone with paranoid questions, but when we talk about the heart, it can be a scary beast.

Love ya guys!

     - Elliot

Posted 1/18/2016 9:12 PM (GMT 0)
Have you seen a Cardiologist to check out your heart?

I don't like to see specialists that aren't LL, but when it comes to the heart...that's a different story.

Have you discussed with your LLMD doing a Babesia treatment - either herbal or antibiotic and see what happens?
That may be the only way to find out...what you have in addition to Lyme.
Posted 1/18/2016 10:22 PM (GMT 0)
Our heart symptoms were all bartonella and resolved with bartonella treatment.
Posted 1/19/2016 12:00 AM (GMT 0)
Indeed, I've seen a Cardiologist. The first thing he told me is that it wasn't Lyme. (Like most doctors, probably convinced that the month of IV Rocephin was a success). However, he made an interesting point. He said that in his observations, Lyme infection of the heart causing an irregular and SLOW heart rate, which mine is the opposite. Regardless, he put me on a 48 hour holter monitor, charged me $300 dollars for it, and told me what I already knew; I have sinus tachycardia (rapid heart rate above 100 bpm). Apparently I needed to spend money for him to tell me that. Basically that was the last straw then had me go find an LLMD.

When Lymes was sending me to the ER, twice I had chest x-rays, heart ECHO, CAT scans, and of course EKG (ECG). The only thing they could tell me was that I had some minor valve regurgitation which they weren't concerned with.

Bartonella is an interesting thought. I always thought that when being treated for Lyme you don't usually consider Bartonella because it shares the same treatment regimen. I'm probably mistaken there though.
Posted 1/19/2016 1:29 AM (GMT 0)
"Bartonella is an interesting thought. I always thought that when being treated for Lyme you don't usually consider Bartonella because it shares the same treatment regimen. I'm probably mistaken there though."


No, it doesn't usually share the same treatment regimen.
(herbs or antibiotics)
Posted 1/19/2016 1:34 AM (GMT 0)
I'm not surprised the Cardiologist said it wasn't Lyme.

When i asked if you had seen one, it was only to have him/her check out your heart and do appropriate testing...but I wasn't expecting him/her to say that Lyme was the cause. I'm glad you've had tests done to check.

I'm not sure if that is true about lyme infection causing a slow heart rate - and not a fast heart rate.
My heart rate has risen since lyme and co's. I used to be at 78-82 bpm, and the last few months - since treating bart, it's risen to 92/93 bpm.

Mine may not be specifically lyme; it could be bart.
Posted 1/19/2016 2:34 AM (GMT 0)
I have constant chest pressure/tightness right in the middle between my breastplates. Sometimes my heart will race a bit then die down. I've been tested and confirmed to have Babesia Duncani by Igenex. It's possible I could have Bart and might start meds to treat it to rule it out or confirm, but right now it seems to be the Babesia causing it.
Posted 1/20/2016 3:08 AM (GMT 0)
I have just recently been diagnosed with dissemanted Lyme's. With babesia! I was mis Diagnosed for over forty years! On a scale from 1-150 I am 138.2. Scary, and so confusing! The worst is trying to find a veteran doctor that is educated enough to treat my symptoms. I feel it is hopeless. Your babesia will stay with you so you must treat the organs that it has affected. Look on line with LDASP.org they may find a doctor who can help you. Wish you the best!
Posted 1/20/2016 3:27 AM (GMT 0)
Hello Ferndog26 - welcome to our community!

Since you are new here, I'd like to point out the thread at the top of the page titled: "New to Lyme?..Start Here!" It's got a lot of useful information in it to read: symptom lists, info on probiotics, detoxing suggestions and more.
Maybe take some time and read through it.

"On a scale from 1-150 I am 138.2" - what scale is that? Could you explain, please? :-)

We can help you find a LLMD...just start a new thread titled: 'Looking for LLMD in/near_____" and fill in the blank.

That isn't true about babesia...it can be treated to symptom resolution.

My browser wouldn't open that site...what is it? (I'm assuming the LD stands for Lyme Disease?)

Is it LymeDisease.org?
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