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Negative for Lyme, positive for RA

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Posted 1/24/2016 12:34 AM (GMT 0)
My fiancee has been experiencing migrating joint pains for the past 2 months or so. She has seen doctors and rheumatologists who have run bloodwork showing her negative for Lyme (titer and C6 Elisa) but mildly positive for RA (rheumatoid factor of 40, anti-CCP mildly positive).

All of the blood work would point to RA, but after my own difficulties in receiving a Lyme diagnosis and reading stories about Lyme being misdiagnosed as RA I just can't help but escape the thought that she is also afflicted.

Everything apart from the blood work leads me to believe it is Lyme. She was on the hike with me this past Summer when I likely contracted it. Moreover, I asked my LLMD whether Lyme can be transmitted from partner-to-partner and his answer was "probably, but it's not likely." She has also experienced the classic "brain fog" associated with Lyme (e.g. walking into rooms without knowing why).

Would love to hear some thoughts on this. Should we trust what the bloodwork appears to be telling us?
Posted 1/24/2016 12:48 AM (GMT 0)
If it were my wife, I would have her trial abx for a month and get a Western Blot with full co-infection panel through Igenex for added peace of mind.

Post Edited (oatez) : 1/23/2016 5:51:11 PM (GMT-7)

Posted 1/24/2016 2:45 AM (GMT 0)
I agree with oatez except I wouldn't take Abx.
I am a newbie, but my story is similar to your fiancee's. I have been convinced that I had Lyme for the past 2 years. ELISA negative X2 this year, WB not done. Started having migrating swollen joints in October, Labs=elevated sed rate and positive ANA in November, rheumatologist aspirated fluid from my ankle joint in December...rheumatologist diagnosed seronegative RA. I disagreed and insisted it was Lyme; declined plaquenil and methotrexate rx.

January 2016:Repeat ELISA and WB: both positive.
Posted 1/24/2016 8:36 AM (GMT 0)
yes a challenge test with 3 weeks of Doxy is a good idea. Alternatively if you just dont want to take antibiotics, order some cat's claw or samento.
Posted 1/25/2016 2:55 PM (GMT 0)
You need to have your fiancée tested with a Western Blot, preferably Igenex Western Blot. The Lyme tests you named are not reliable.
Posted 1/25/2016 4:23 PM (GMT 0)
The internet has a lot of stories of people being misdiagnosed with RA instead of getting the correct diagnosis of Lyme.

As Sarah said, the tests that your wife has had performed are very very poor for finding Lyme. They are both ELISA tests and they have a record of missing up to 70% of those that actually have the infection. This is NOT a test to be relied on for diagnosis of Lyme, even though doctors still insist on using it. We can request/insist that we be tested with a better test and by a better lab - one that specializes in testing for these infections, like Igenex.

And despite your LLMD's opinion, there have been scientific studies done that have proven that Lyme can be sexually transmitted.

I would encourage you to have her do a trial of some herbs- as they don't require a doctor. Japanese Knotweed has shown to produce a reaction in many people with Lyme.
Posted 1/25/2016 10:46 PM (GMT 0)
What is RA & from where does it come?

Please take a look at this site:
www.roadback.org/dr-brown/

And then do a google search using the words bacterial & RA & see how many articles point to a root cause.

www.bjmp.org/content/bacterial-infections-and-pathogenesis-autoimmune-conditions
Posted 1/25/2016 11:59 PM (GMT 0)
One guy got it from a tear ...it can be transmitted via milk ,saliva and other body fluids....
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