Update

Hi, just to update mu investigation.

Yesterday I visit a LLMD in Romania.

We spoke about 2 hours - and he decide to test me first for viral infections. Mucoplasma, Epstein Bar, Mosaik Cossack, HHV 6 , and hlamidia pneumonaie. ( sorry if I write it wrong), also echo virus.
He put me on herbs for 14 day ( some of them I was taking before)
cats claw
knotweed
total cleance - olive leef extract + artemisinin+grape seed extract
vit c 2g
eulethero
echinacea
ashwaganda
and green tea extract

After 14 days i must check for the viruses...

He think that I have mucoplasma and HHV 6 virus. He saw something on my MRI in sinus.
He told me P41 band almost all the time is Lyme, but want to check. And say something strange - lyme can be pass from mother to children.

The interesting thing is that he is totally not expensive LLMD.
He have 2 Hiperbaric centres - in Constanta and Bucuresti and he charged me for 30$ for the visit.

But i`m not herxing, just feeling so tired and in pain.
I`m getting more tongue atrophy, tongue tingling, whole body trembling, FATIGUE and trouble swallowing - muslces are weak and obviously with neurological problems, whole body twitching and teeth chattering.

More scared of ALS - but tongue emg was clear and als doctors says NO... But I have read a stories of bulbar als with clear emg... SO I will wait 14 day and test.. ALS is uncurable but lime is threatable.

So wish me luck, to be something treatable :)

Sorry again for the bad writing , but i write via phone

So very glad you found an doctor! And one that is not super expensive.

Good luck and hope you heal.

Congratulations, Corwin! Looks like you have found a pretty good doctor!

You said that you were so tired and in pain - those can be from herxing. I agree with CD in that you likely need to increase what you are doing for detoxing. Many of us that have these infections have trouble with the toxins that build up during treatments. Detoxing is our only defense.

I'm also curious what your doc will have you do after 14 days - is this just when he will be checking things, or will you be changing protocols. If you are changing protocols at that time, I'd surely ask why! As CD said, it's more common to use herbs for a much longer time. These infections are incredibly complex and won't heal in the same amount of time as most infections, so we have to take treatments for a longer time.

Please try not to worry about your nerve issues. I speak from personal experience when I tell you that your nerves will heal. It takes time but it can happen.

Here is a link to the site of one of Buhner's recommended herb sources:

1stchineseherbs.com/shipping-returns/

As you can see, they ship to Romania.

Thanks, yes i know about that polish site that sells herbs.

corwin said...
Hi, to all :)
Second thing - yes Lyme can transform into ALS - he has some patients , but there must be 3 viruses + Borrelia.

Don't worry about that, nobody really knows what triggers ALS. Yes you have to have Borrelia and mycoplasma, but you must also have some genes that facilitate it, it's not just the co-infections and Borrelia.

I started Lion's Mane and Sida Acuta a few weeks ago. I am noticing more "tingling" now which I never had before. I am hoping this is signaling a nerve response. Fingers crossed...