Thoughts: H Pylori or Lyme

I have same ussues + some nerve pain, tongue wasting, tongue tingling and slurring.
I was treated for H.Pilory - they found it via biopsy. Blood and stool test ware negative WB for lye is P41 reaktiv. BUT! sometimes I think that lime can look like H.Piliry. If you have neg blood test, so why to have positive WB p41???

Hi ya Girlie,

Yes, I want to do Igenex, but cannot find a Dr willing to sign the order :( and I read that new studies have shown that H Pylori can indeed cause heart issues if gone long enough without being treated. It is a spiral bacteria, just like Lyme and can wreak havoc on the system if enough infection is present. The blood smear was neg for H Pylori, but again like Lyme, doesn't live in the blood...it lives in the tissues of the digestive system.

Here's a link to a thread - gkamom posts about how to get Igenex testing done, if you don't have a Dr. to sign the lab req.
So, scroll down to her post.


www.healingwell.com/community/default.aspx?f=30&m=3571722

Hi Girlie,

Do you have that link for IgeneX tested? I would greatly appreciate it.

It's funny how most NY Dr's go by the test results and not symptoms for Lyme??? According to the CDC, NY state has the highest reported number of cases :(

Isn't H pylori a breath test? I could be wrong.

Girlie, I am honored that you mentioned me. I'm glad to know I can help.

Beeperoni, if you don't have a doc that will sign for the testing I think this is a good option. It took me 3 months of arguing with my doc to get a signature on my Igenex order. I got positive test, but I am also getting push back because it is in my record.

Just make sure you select the Igenex tests and not the standard.

Kim

Beeperoni,

I was the one who started that thread and was so grateful for the information Kim shared!

I went and did the ordering because I don't have a doctor. Got the kit, the SIGNED requisition form...and am going in two weeks for the blood draw. So - so far, so good. Truehealthlabs has been very professional and helpful answering questions, explaining things to me, etc. It is a good option for those without a medical support willing to sign.

Haha, H-Pylori... Now that brings back memories....

Get a stool test. If it's negative, get another stool test later, if the second one is negative, then you don't have H-Pylori, you have "H-Pylori negative gastritis from Bartonella". That's what i had. No stomach issues now here.

Watch this from the pinned time: /youtu.be/8Rma1co2LCQ?t=174

Also, ignore the UBT (breath test) for H-Plyori, it is completely useless for lyme patients. We lymies have some form of SIBO and bacterial/fungal overgrowth all over the place. Your UBT will likely be off the scale, and you will NOT have H-Pylori ! We lymies are not good standard patients for the UBT, nobody researched UBT on lyme patients.

I had very positive UBT test, so my GI dr prescribed me amoxicillin with clarithromycin for 10 days, to get my "H-Pylori infection". Lol. That's when i had my first herx, i got really terrified, i thought im going to die from antibiotic intolerance. But guess what, after 4 days of herxing my "intolerance" started to disappear.

After the H-Pylori "treatment", i got another UBT and it was three times larger than the first UBT. So my poor GI doctor said "ok ok i give up, u have something else, not H-Pylori, this is not something i see daily"...

I've done 3 stool tests and all negative to H-Pylori, so i knew i don't have it and the UBT was just false positive. Again, ignore the UBT if you know you have lyme, do the stool test

If you treat your Bartonella infection all your gastritis issues will be gone. But it takes months...

Post Edited (mpost) : 2/11/2016 9:25:03 PM (GMT-7)

Bartonella is often treated with Rifampin plus one of: doxycycline, biaxin, zithromax, or minocycline.

Herbs: Japanese knotweed, Houttuynia, sida acuta, (and I think the newest protocol Alchornia cordifolia has been added)...along with support herbs...Hawthorne, Red Root.
There are more...but don't have my Buhner book in front of me right now.

I love seafood, but only cooked...

One more thing since we've hijacked the thread.

One of the options you have with True Health Labs is to have one of their functional medicine doctors go over your results with you. I think it is like a $30 add on. I haven't done that because for the most part the tests I've done have been straight forward.

For the Lyme panel, you can get better information on how to interpret the results here on the forum.

Kim