HealingWell
Search Close Search
☰

Lyme Psychosis, other bizarre symptoms- Anyone else?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
12
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/17/2016 12:07 AM (GMT 0)
Hi everyone, I wanted to know if anyone else out there is going through what I'm going through. It would be nice to know I'm not alone.

My symptoms began about 2 months ago when I began drinking more heavily than usual along with a diet very high in sugar. Because I already had some kind of pathogen infection my unhealthy lifestyle tipped the scales and I began having symptoms of psychosis: Depersonalization, brain fog, fatigue, no dreams, anxiety, paranoia and as time went on it developed into full blown psychosis with sensory and auditory hallucinations. Every time I cleaned up my diet and stopped eating my symptoms would improve dramatically. Every time I added food back in I would relapse. This happened several times and now I've been fasting for over 3 weeks and the symptoms have not gone away. I guess I waited to long and now whatever is causing it has progressed to the point where my immune system alone can't handle it.

I ordered Dr. Klinghardt's Neurotoxin protocol and have been using it for a couple days. I think the garlic is helping and the mineral water but other than that no significant improvement. Then I read that he recommends Niacin to kill of the bacteria. I took 1 gram the day before yesterday and had such a severe die-off reaction I thought I was going to have a heart attack. My heart was pounding for a bout an hour straight and I threw up and had diarrhea. Then suddenly I felt better- a whole lot better. Within ten minutes after this crisis I suddenly had a ton of energy and my mind was clearer. I tried to repeat this yesterday and I took 500mg but with less significant results. I woke up this morning feeling less myself again. I don't know what happened. Maybe the chlorella, bentonite clay and charcoal weren't absorbing like they were supposed to or maybe it's because I have a sore throat and congestion from this flu I've been fighting off for the past week. I don't know but I need to get well and I need to get well now.

Anyway, was just wondering if anyone else is experience this psychosis. I didn't know it was possible to feel this awful and unreal.

Wahwahwahwah
Posted 2/17/2016 1:08 AM (GMT 0)
luthien, I had some of your symptoms but not all. The annoying one was smell hallucinations. Oh my gosh, I could not trust my nose for a couple of weeks. It was horrible when I thought I smelled dirty socks and I looked under every bit of furniture in this house and found nothing. I thought my husband was going to call the guys and put me in a straight jacket. But, we laughed about it.

Have you been diagnosed with lyme? Are you in treatment?

Welcome here. We generally direct first time posters to the New To Lyme? .... Start Here! thread at the top of the list of threads. It has a lot of very useful information.

Any questions? There are great moderators and regular posters that are more than willing to help.

~Annette
Posted 2/17/2016 1:10 AM (GMT 0)
Yes. Both I and my daughter experienced many of the symptoms you list, although perhaps not as badly.

Here is a good overview of the psychoimmunology of lyme and the coinfections. I will never look at another homeless person with obvious mental issues and not consider the fact that they may have some chronic infection.

/www.youtube.com/watch?v=7kG7BHlByeQ

These symptoms have all resolved with bartonella and babesia treatment - my own was with herbs only.
Posted 2/17/2016 1:50 AM (GMT 0)
I beleive we are in very similar boats.THough youres may have a bit more water in it.I dont beleive i am in full blown psychosis but i do think i am having psychosis like symptoms...Everytime i eat i always think its been drugged.I still eat.But just having thoughts like that really bother me knowing i never had thoughts like that.I too have derealisation and sometimes depersonalisation.But i never use to really dream.And now i always dream when i sleep some dreams are weird,Some are scary.What is weird is my symptoms really showed there face after a week of binge drinking when before i was the weekend drunk as i considered myself.
Posted 2/17/2016 3:29 AM (GMT 0)
My wife has Lyme and I posted here about psychosis symptoms she seems to have. Based on what I know, it could very well be the Lyme or co-infections. My wife has gone into a state where she is very difficult to deal with. We had some success with treatment, but I think she herxed and needs to detox more. Her symptoms are vicious anger, says things that are more evil then anything I have ever witnessed in my life. Very paranoid, loss of memory, substitutes reality with her own version, anger, depression. This on top of all the other physical symptoms, numbness, pain, tingling, sensitive to light, temperature, altitude. It does not surprise me one bit based on what you are saying.
Posted 2/17/2016 6:59 AM (GMT 0)

rowingmom said...
Yes. Both I and my daughter experienced many of the symptoms you list, although perhaps not as badly.

Here is a good overview of the psychoimmunology of lyme and the coinfections. I will never look at another homeless person with obvious mental issues and not consider the fact that they may have some chronic infection.

/www.youtube.com/watch?v=7kG7BHlByeQ

These symptoms have all resolved with bartonella and babesia treatment - my own was with herbs only.

Hi, thanks for the post.

I also am treating myself only with herbs but it is a painstaking trial and error process. It's funny that you mentioned the homeless because that's how I feel most of the time, like one of those people you see on the street talking to themselves. I also will have a better understanding now of what they might be going through.

Would you be willing to share your herbal treatment protocol? I understand if it's too much work.
Posted 2/17/2016 10:50 AM (GMT 0)
luthien,

Same Dr. (Robert C. Bransfield) that rowingmom has shared, from a conference one year later

/www.youtube.com/watch?v=7BbEBb-SzIE
Posted 2/17/2016 8:15 PM (GMT 0)
yes....some of the same symptoms,they should get better.

keep moving foward)
Posted 2/17/2016 9:36 PM (GMT 0)
I am currently as we speak experiencing this. I haven't had any hallucinations but have extreme anxiety, depersonalization, paranoia
Feel like I'm going crazy or about to loose control depression and intrusive thoughts. The feeling of going crazy has become very severe and long lasting only used to last an hour or two now it's all day.

I've had this for the past 2 months but since I just started on antibiotics It's gotten worse. The only thing that somewhat helps is Xanax. I just ordered buhners basic protocol and some of the psych herbs he reccomends so I'm hoping something helps, I can't live this. So I really feel for you!! this is torture!!! It's the kind of pain you never knew existed!
Posted 2/18/2016 12:04 AM (GMT 0)

Sandra29 said...
I am currently as we speak experiencing this. I haven't had any hallucinations but have extreme anxiety, depersonalization, paranoia
Feel like I'm going crazy or about to loose control depression and intrusive thoughts. The feeling of going crazy has become very severe and long lasting only used to last an hour or two now it's all day.

I've had this for the past 2 months but since I just started on antibiotics It's gotten worse. The only thing that somewhat helps is Xanax. I just ordered buhners basic protocol and some of the psych herbs he reccomends so I'm hoping something helps, I can't live this. So I really feel for you!! this is torture!!! It's the kind of pain you never knew existed!

Hi Sandra, good to hear from you. I know how you feel and I never imagined I could feel like this, now I know how schizophrenics feel and I don't know how they go on living. Especially when they could probably be healed by taking the right herbs. It's also nice how on the surface we appear completely normal. I know EXACTLY what you mean by intrusive thoughts - I have had times when I am thinking of a memory and I realize its not mine and it never happened to me and every thought I have just feels so wrong and awful and I feel like I'm false, not me, alien, imposter - yeah.

The only thing I have found that helps is Niacin. Recommended dosage for treatment of psychiatric conditions like this is at least 1000mg 3 X/day. Please try it, I think I think it will truly help you. Xanax might temporarily help your symptoms but it won't treat the underlying cause. Niacin will, it's a powerful antimicrobial and it's been used to treat schizophrenia/psychosis for decades. I recommend the Solaray brand.

Good luck Sandra, I hope you feel better.
Posted 2/18/2016 12:10 AM (GMT 0)
Detoxing!! Detoxing will help you get through this. These symptoms are caused by the infections, but they are driven some by the toxins as well, so by detoxing we lower the amount of toxins, thus removing the influence they have.

Hang in there - you are far from alone in this! Here is the thread where Overwhelmed was explaining what was going on and I was explaining what I went through as well: www.healingwell.com/community/default.aspx?f=30&m=3585679

You both will likely find it helpful.
Posted 2/18/2016 2:22 AM (GMT 0)

luthien said...

rowingmom said...
Yes. Both I and my daughter experienced many of the symptoms you list, although perhaps not as badly.

Here is a good overview of the psychoimmunology of lyme and the coinfections. I will never look at another homeless person with obvious mental issues and not consider the fact that they may have some chronic infection.

/www.youtube.com/watch?v=7kG7BHlByeQ

These symptoms have all resolved with bartonella and babesia treatment - my own was with herbs only.

Hi, thanks for the post.

I also am treating myself only with herbs but it is a painstaking trial and error process. It's funny that you mentioned the homeless because that's how I feel most of the time, like one of those people you see on the street talking to themselves. I also will have a better understanding now of what they might be going through.

Would you be willing to share your herbal treatment protocol? I understand if it's too much work.

We are using low (1/4 of recommended) dosages of Buhner's full bartonella protocol (minus l-arginine) and some herbs from his babesia protocol (CSA, red root).

Organic Terry Wahls/PerfectHealthDiet diet.

Unfortunately, it is a trial and error process. Each of us has different infections, different loads, different ability to detox etc.
Posted 3/5/2016 10:23 AM (GMT 0)

rowingmom said...
Yes. Both I and my daughter experienced many of the symptoms you list, although perhaps not as badly.

Here is a good overview of the psychoimmunology of lyme and the coinfections. I will never look at another homeless person with obvious mental issues and not consider the fact that they may have some chronic infection.

/www.youtube.com/watch?v=7kG7BHlByeQ

These symptoms have all resolved with bartonella and babesia treatment - my own was with herbs only.

You said you and your daughter have experienced many of the same symptoms, can you be more specific? I have yet to find anyone who has the same response to food- i.e, when I eat my psychotic symptoms increase 100 fold
so there's a definite direct relationship between what I eat and my neurological condition.
thanks
Posted 3/5/2016 1:35 PM (GMT 0)
Here is my daughter's timeline:

K - Born 2001 with light/sound/touch sensitivity. Loss of speech/fine motor ability 2 weeks after 15 month MMR vaccination.

2004 - Dx ADHD, SPD (light, sound, touch), motor delay (with toe-walking), hypotonia, oral apraxia.

2008 - MMR booster and insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections.

2010 - Dx ADHD, Tourettes, Aspergers, motor delay, probable PANDAS.

Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, extreme fatigue, nightly fever.

June 2011 - Igenex PCR positive bartonella, Negative ELISA, Negative lyme (IND IgM kDa 41; IND IgG kDa 39, 34. kDa 41++). CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, methyl B12, methylfolate, P-5-P, herbal, homeopathic treatment with LLMD.

Jan 2013 - Bartonella IgG titers declined from 160 (Jun 2011) to 80. CD57 16.

April 2013 - Weaned from abx treatment at 80% improvement. Continued with Full Buhner bartonella herbal protocol, Terry Wahls/PerfectHealthDiet gf/cf/sf diet. Minimizing EMF exposure.

Sept 2013 - CD57 45.

Oct 2013 - All symptoms (PANS and pain/fatigue) 95% resolved. No flares with viral or other infections. Herxing remains with changes in herbal protocols.

Nov 2013 - Clinical babesia diagnosis. Improvement to 98% with addition of Buhner herbal protozoan treatment.

Dec 2013 - ANA titers negative. PANS symptoms resolved. Regular classroom requiring no accommodations. B+/A student.

Mar 2014 - Continued improvement in cognitive/executive function with increased dosages of cryptolepis/sida/alchornea (CSA) tincture.

Sept 2014 to present- Continued improvement with the addition of red root. Resolution of EMF sensitivities with low dose cilantro tincture and diatomaceous earth. 99%

After many attempts at various elimination diets (GFCF, low histamine, low oxalate, low salicylate, Feingold etc.), and at least a year of food charts, I was unable to find any real correlation. Sure her symptoms would flare within 2-24 hours of eating something (after all you do have to eat something), but I believe this was more of a response to her infections than it was to the intake any particular food; save the more pesticide laden versions of wheat, diary, meat and sugar (which will destroy gut microbiota and thus immune function).

people.csail.mit.edu/seneff/

Most of her psychiatric symptoms cleared with bartonella abx treatment; my own of derealisation, severe brain fog, suicidal ideation etc. with bartonella herbs. Herbal babesia treatment cleared remaining cognitive and executive dysfunction.

You are right that herbal treatment can be a tedious trial and error. However this is necessary because we all have different infections (including ones that either have not been tested for or that do not have tests available), loads, and detoxification capabilities.

There is no silver bullet.
Posted 3/7/2016 12:56 PM (GMT 0)

rowingmom said...
Here is my daughter's timeline:

K - Born 2001 with light/sound/touch sensitivity. Loss of speech/fine motor ability 2 weeks after 15 month MMR vaccination.

2004 - Dx ADHD, SPD (light, sound, touch), motor delay (with toe-walking), hypotonia, oral apraxia.

2008 - MMR booster and insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections.

2010 - Dx ADHD, Tourettes, Aspergers, motor delay, probable PANDAS.

Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, extreme fatigue, nightly fever.

June 2011 - Igenex PCR positive bartonella, Negative ELISA, Negative lyme (IND IgM kDa 41; IND IgG kDa 39, 34. kDa 41++). CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, methyl B12, methylfolate, P-5-P, herbal, homeopathic treatment with LLMD.

Jan 2013 - Bartonella IgG titers declined from 160 (Jun 2011) to 80. CD57 16.

April 2013 - Weaned from abx treatment at 80% improvement. Continued with Full Buhner bartonella herbal protocol, Terry Wahls/PerfectHealthDiet gf/cf/sf diet. Minimizing EMF exposure.

Sept 2013 - CD57 45.

Oct 2013 - All symptoms (PANS and pain/fatigue) 95% resolved. No flares with viral or other infections. Herxing remains with changes in herbal protocols.

Nov 2013 - Clinical babesia diagnosis. Improvement to 98% with addition of Buhner herbal protozoan treatment.

Dec 2013 - ANA titers negative. PANS symptoms resolved. Regular classroom requiring no accommodations. B+/A student.

Mar 2014 - Continued improvement in cognitive/executive function with increased dosages of cryptolepis/sida/alchornea (CSA) tincture.

Sept 2014 to present- Continued improvement with the addition of red root. Resolution of EMF sensitivities with low dose cilantro tincture and diatomaceous earth. 99%

After many attempts at various elimination diets (GFCF, low histamine, low oxalate, low salicylate, Feingold etc.), and at least a year of food charts, I was unable to find any real correlation. Sure her symptoms would flare within 2-24 hours of eating something (after all you do have to eat something), but I believe this was more of a response to her infections than it was to the intake any particular food; save the more pesticide laden versions of wheat, diary, meat and sugar (which will destroy gut microbiota and thus immune function).

people.csail.mit.edu/seneff/

Most of her psychiatric symptoms cleared with bartonella abx treatment; my own of derealisation, severe brain fog, suicidal ideation etc. with bartonella herbs. Herbal babesia treatment cleared remaining cognitive and executive dysfunction.

You are right that herbal treatment can be a tedious trial and error. However this is necessary because we all have different infections (including ones that either have not been tested for or that do not have tests available), loads, and detoxification capabilities.

There is no silver bullet.

Thank you for the information.
Posted 3/13/2016 5:24 PM (GMT 0)

rowingmom said...
Here is my daughter's timeline:

K - Born 2001 with light/sound/touch sensitivity. Loss of speech/fine motor ability 2 weeks after 15 month MMR vaccination.

2004 - Dx ADHD, SPD (light, sound, touch), motor delay (with toe-walking), hypotonia, oral apraxia.

2008 - MMR booster and insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections.

2010 - Dx ADHD, Tourettes, Aspergers, motor delay, probable PANDAS.

Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, extreme fatigue, nightly fever.

June 2011 - Igenex PCR positive bartonella, Negative ELISA, Negative lyme (IND IgM kDa 41; IND IgG kDa 39, 34. kDa 41++). CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, methyl B12, methylfolate, P-5-P, herbal, homeopathic treatment with LLMD.

Jan 2013 - Bartonella IgG titers declined from 160 (Jun 2011) to 80. CD57 16.

April 2013 - Weaned from abx treatment at 80% improvement. Continued with Full Buhner bartonella herbal protocol, Terry Wahls/PerfectHealthDiet gf/cf/sf diet. Minimizing EMF exposure.

Sept 2013 - CD57 45.

Oct 2013 - All symptoms (PANS and pain/fatigue) 95% resolved. No flares with viral or other infections. Herxing remains with changes in herbal protocols.

Nov 2013 - Clinical babesia diagnosis. Improvement to 98% with addition of Buhner herbal protozoan treatment.

Dec 2013 - ANA titers negative. PANS symptoms resolved. Regular classroom requiring no accommodations. B+/A student.

Mar 2014 - Continued improvement in cognitive/executive function with increased dosages of cryptolepis/sida/alchornea (CSA) tincture.

Sept 2014 to present- Continued improvement with the addition of red root. Resolution of EMF sensitivities with low dose cilantro tincture and diatomaceous earth. 99%

After many attempts at various elimination diets (GFCF, low histamine, low oxalate, low salicylate, Feingold etc.), and at least a year of food charts, I was unable to find any real correlation. Sure her symptoms would flare within 2-24 hours of eating something (after all you do have to eat something), but I believe this was more of a response to her infections than it was to the intake any particular food; save the more pesticide laden versions of wheat, diary, meat and sugar (which will destroy gut microbiota and thus immune function).

people.csail.mit.edu/seneff/

Most of her psychiatric symptoms cleared with bartonella abx treatment; my own of derealisation, severe brain fog, suicidal ideation etc. with bartonella herbs. Herbal babesia treatment cleared remaining cognitive and executive dysfunction.

You are right that herbal treatment can be a tedious trial and error. However this is necessary because we all have different infections (including ones that either have not been tested for or that do not have tests available), loads, and detoxification capabilities.

There is no silver bullet.

I haven't gotten tested yet because of cost and because the tests are reliable. I was wondering, did you start treatment without a definitive diagnosis?
Posted 3/13/2016 8:37 PM (GMT 0)
I'm not Rowingmom, but I have started treatment 3 times now without definitive testing, and I've been right in starting treatment all 3 times, backed by the best proof available in my eyes - herxing then symptom relief.
Posted 3/13/2016 9:27 PM (GMT 0)

Traveler said...
I'm not Rowingmom, but I have started treatment 3 times now without definitive testing, and I've been right in starting treatment all 3 times, backed by the best proof available in my eyes - herxing then symptom relief.

Yeah i think we know best what's going on just need to trust instinct, a lot more reliable than testing.
And yeah, herxing means somethings working. thanks.
Posted 3/15/2016 2:50 AM (GMT 0)

Traveler said...
I'm not Rowingmom, but I have started treatment 3 times now without definitive testing, and I've been right in starting treatment all 3 times, backed by the best proof available in my eyes - herxing then symptom relief.

I would echo all of this. I also have bartonella. My neuro symptoms were the same and have improved with antibiotic & herbal treatment.
Posted 3/16/2016 9:54 AM (GMT 0)
I have experienced all of the psych symptoms that you have described and at their most severe I would have described myself as experiencing psychosis. I really struggled with some detoxing issues, which thankfully I think that have now sorted out, and I honestly think that treating and not detoxing properly was a major issue - I would literally 'crash' out of reality and into a 'different state of being' fueld by anger, depression, suicidal thoughts and ideation and depersonalisation/derealisation. I couldn't make any sense of the world at all.

The GOOD news is that by addressing my detoxing issues and treatment of both Lyme and Bart, these issues are now, at worst, mild, and really only happen when I am herxing or around the full moon - I am in control of these issues now though and although I know that they are there sometimes, they do not get out of control and I can keep a handle on them!!

I should add that I have no 'definitive' testing through a blood test, I was clinically diagnosed for both Lyme and Bart.
Posted 3/16/2016 2:11 PM (GMT 0)
I had no definitive diagnosis.

K's LLMD stated that it was likely that I passed the infections to K while I was pregnant with her (implying of course that I carried the same ones). Other than that and various physicians, endocrinologists and heart specialists telling me that I was simply going through a very rough perimenopause, I had no specific lyme/co tests run.

Although I was drawn to more natural treatments after K had finished with 2 years of bartonella antibiotics, I was leary because of the mainstream attitude towards herbs, and because they were completely unknown to me. It would mean that I would have to depend on my own research, my own note taking, my own intuition. It was simply easier to rely on a doctor to tell me what to do. But unfortunately (or fortunately it turns out) our LLMD had run the course of her recommendations and could help me no further. There was no other course of action to be taken.

I refused to treat K with something that might potentially harm her without treating myself with the same dosages of everything. (I was of course perfectly fine with treating her for 2 years with antibiotics - HA!)

After herxing along with her on herbs, I improved along with her as well.

So now without definitive test results, and working with herbs alone, I am better. It was a trial and error, intuitive kind of thing.

If I had realized all of this in the beginning, I would have not been so hesitant to start out on a more natural route, resorting to antibiotics only if needed; and from the looks of things now, they would not have been needed.
Posted 3/16/2016 5:02 PM (GMT 0)
That sounds like what I'm going to have to do as well.
My issue with Buhner's protocols is that the treatments are general they aren't specific to me, the individual, and my individual symptoms- because we all have something slightly different. I do believe the right herbs in the right combination/dosage/time will heal me but because of the toxic reactions I've had in the past to herbs/vitamins I am going to be cautious and take my time.

I decided first to go see an experienced traditional chinese medicine doctor. Most all of Buhner's herbs are chinese herbs anyway so I know it has the potential to work. Also, this way the protocol will be specifically designed for me.

So I went to see this doctor on yesterday, on Tuesday 3/16/16, and he listened to my symptoms and diagnosed me with multiple ailments/imbalances of liver, spleen, kidneys, blood etc. Then he gave me acupuncture and a bag of a special mix of herbs for my symptoms. He wants to see me four times, once a week, over the course of one month. If I have not improved by then he agreed I may need to seek other treatment. So I will be seeing him every Tuesday until April 5th, while taking these herbs. I haven't noticed any difference yet and I'm struggling as much as ever with derealization, dissociation from reality and self and just generally awful feelings- but it's only been a day and I'm going to give it a week before I decide he needs to give me something else. I almost decided to screw it all and become a homeless bum on the street today but something was holding me back lol. I don't know why I don't just do it. Maybe i want to see if i feel differently when I get well.

If this TCM doctor doesn't help me by April 5th I am going to start the Buhner protocols. One at a time until I'm better. I already bought the book. if THAT doesn't help, nothing will and I just need to check out because this is NOT a life and this does not count as living. I'm not looking for sympathy from anyone, please no I'm just rambling now.
Posted 3/16/2016 10:30 PM (GMT 0)

silly sheep said...
I have experienced all of the psych symptoms that you have described and at their most severe I would have described myself as experiencing psychosis. I really struggled with some detoxing issues, which thankfully I think that have now sorted out, and I honestly think that treating and not detoxing properly was a major issue - I would literally 'crash' out of reality and into a 'different state of being' fueld by anger, depression, suicidal thoughts and ideation and depersonalisation/derealisation. I couldn't make any sense of the world at all.

The GOOD news is that by addressing my detoxing issues and treatment of both Lyme and Bart, these issues are now, at worst, mild, and really only happen when I am herxing or around the full moon - I am in control of these issues now though and although I know that they are there sometimes, they do not get out of control and I can keep a handle on them!!

I should add that I have no 'definitive' testing through a blood test, I was clinically diagnosed for both Lyme and Bart.

that's great i'm really happy for you, maybe someday i'll be on that magic island called normal again.

How did you heal? was it with buhner's protocol?
Posted 3/17/2016 10:28 AM (GMT 0)
I have been taking buhners herbs since my diagnosis (March 2015) and began with his original protocol (knotweed, cats claw -tormentossa- ashwagandha and eluthero) I have since expanded this since his new book came out with his other core protocol herbs.

Since october 2015 I have also been taking his bart protocol too.

I have also been doing rife treatments since my diagnosis (I started these at the lyme clinic and subsequently bought my own machine)

Both of these have been the core of my healing protocol. I also take other supplements, like CoQ10 and SAMe (which incidently are also part of buhners expanded protocol)

I also pulsed flagyl (metronidazole) and have taken short courses of plaquenil and biaxin, which were prescribed by my doc. Personally I had no desire to take long term abx, but this is my own personal choice, I am not saying that it was a better option, just what worked for me.

I did have some real bad setbacks periodically which I discovered at the end of ladt year were a result of gene mutations affecting my detoxing ability. Honestly I think that this problem attributed to my psych problems as I was essentially on one massive herx and had to keep halting all meds to get through the psychosis like issues. I have addressed these with l-arginine, methylfolate and adenso B12. Now that all the puzzle pieces seem to be in place I am making real good progress and have no doubt that I will be fully healed.....and back on that magic island called normal for good :)

Honestly, I know that it feels like it is impossible (I thought about throwing in tbe towel many times!!) but you too can heal from this, it is a helluva journey but you can get through it. You know that you have a great support network here and we all need each other. Just remember that in the future someone else will be in your shoes and they will need your advice, your encouragement and your support so that they know it is possible. In this we all stand or fall like dominoes. I got through it because of the folks here. That is why I am still here - so that I can pass that same message on to you. Never give up, never lose hope. You can get through this!
Posted 3/17/2016 12:12 PM (GMT 0)

luthien said...
My issue with Buhner's protocols is that the treatments are general they aren't specific to me, the individual, and my individual symptoms- because we all have something slightly different.

Have you read Buhner's newer books?

He provides herb and supplement recommendations and it's up to the individual to craft a protocol based upon the suspected infections and individual symptoms.

Many here on this forum are following Buhner's protocols and none of us is using the same herbs nor supplements.

No matter what you decide, I wish you the utmost success. I believe everyone has the potential for healing - the body has amazing capabilities and we "just" need to listen to them.
✚ New Topic ✚ Reply
12