Has ANYONE healed completely? Sorry, sort of negative post

I'm sorry for such a negative post, but I'm becoming very discouraged despite my treatment going well.

I've been in treatment since late December and already have some totally symptom free days. I've been on a mix of pulsing doxy, Pinella, Banderol, Mapalo, Colloidal Silver, Biofilm Defense, ParaGaurd, and plenty of other detox aids, vitamins, and supplements. My CD57 has gone up from 48 to 70 in that time and my Doctor is very pleased with my progress.

However, when I attempt research, I end up just making myself extremely depressed. All I can see are stories of endless treatment and relapses. People think they get better, but are really only asymptomatic, and then they relapse.

Has ANYONE or anyone you know gotten totally well? Is there any hope for me? Because right now all I can imagine is a life of constantly worrying about relapsing and in constant fear of infecting loved ones. And that's a hard future to imagine at 20.

I've been talking to my therapist extensively about this, but I'm still just distraught. I was better for a while, but now it's all I can think about. I know positivity and attitude are a big part of getting better, but right now I'm in a hole that I can't seem to dig my way out of.

Honestly, any success stories would be appreciated. I can't seem to find any.

I have. I got reinfected, but I was completely healed once and had the best year of my life. You can read about it in the link at the very bottom of my post, in my signature line.

Edited to remove the same thread that Girlie just shared!

Amanda, I feel your words. I wondered if I would be like this forever. I cried thinking about it. There are cured stories and that sure perked me up. I hope those that you read will do the same for you.

Those symptom free days will become more and more, I just know they will!

I know the pain. I was infected at 16, and I'm 24 now. It's been one long, downward spiral. I didn't notice it for a couple years, because the effects were mostly mental, and very subtle at that (slight personality changes, followed by nerve issues, balance disturbances). Looking back, it's very obvious to me now, but I brushed it off then. I brushed off the ticks that bit me too, not knowing what they were at the time.

I do not know why it was so slow-growing at first. Though, that's how this stuff can be, different for everybody.

No, I haven't had it as long as some of the others, but it's been awhile, not to mention there are those who got it younger as well. I want to mention that I don't say that to imply that the suffering those who acquired the illness(es) later on in life is lesser, but it really does suck missing out on your youth.

While total health and amends for all the time lost is what my heart most desires, I've realized that I might just have to take what I can get and deal with it.

Now, I'm not saying that is the mindset that's best for you or anyone else, because, in a lot of ways, it isn't. Yes, it may be the more realistic of the two scenarios, because total freedom with no signs of scarring from the binds these conditions have placed on us is such an incredible feat.

But, even so, in spite of that, the idea is to never settle, and always push for more, a better life not only for yourself but those you care for. If you want perfection, strive for it, but be prepared for the very real possibility that you will never have it. Though, it's all about perspective. Perfection does not have to mean "perfect," as backwards as that may sound.

It's hard, I know. Some days, it seems downright impossible. You want to rush things, but you can't. You're in pain, you can't stand it, you want it to be over. Hurry up and heal already! Why won't you work, body? Why won't you cure me, medicine?

Sadly, that's life sometimes. The tides rarely bend to your will.

All you can do is weather the storm and try to make sure your ship stays afloat long enough to see the shore again, to see home again.

I won't say you can be cured, at least not completely, because that is a very tall hill to climb and there are often many factors involved, and a lot to incorporate into one's healing protocol, but I will say that it is possible, at least to some degree.

Ever heard that song by the Stones?

You can't always get what you want, but if you try sometimes you just might find you get what you need.

Sorry if this post is of no help to you or anyone else.

Best wishes.

my simple 2 cents......short due to end of day,minor eye issues.

There are many great people (Drs/Scientists)keep in mind,You found out what is wrong with Your health....many people never even get tested for Lyme,focus on getting as well as possible...Science will catch up to this....treatments will get easier to figure out and take.

just an opinion

Just to clarify, this is only the case in a very few states at this point in time: "I read that it is being put into law that Lyme Drs. cannot be charged any longer for treating Lyme patients." - but it is starting to happen!

I was wondering the same thing as IM STILL not getting better after being on treatment since june 2014...Im SO tired of being sick & tired ALLBTHE TIME....SO tired of bein alive but barely living!!!!

With that said, Ive learned to really treasure the good days.

- the bad news: there is no cure for the chronic lyme right now.

- the not-so-bad-news: you can reduce the number of bacteria to such extent that you can have very little symptoms and live a normal life.

- the good news: research is much more active these days than it used to be, i've read all major lyme research articles published in the last 4+ years and please take my word for it... things are changing!. There will be a cure soon, the problem was lack of research, researchers have been mislead by the fact the antibiotics seem to kill it completely, so they just ignored it. "Ah, doxy kills it, piece of cake". This is no longer the case, the number of research articles showing resistance to antibiotics is overwhelming.

So there is a lot of hope on the horizon. I'd say our best bet is get the infection under control using the "traditional" methods - antibiotics and/or herbs. Then continue taking herbs indefinitely to prevent a relapse. Maybe do a short antibiotics round once in a while (say twice a year). And wait 5-10 more years until a cure will be available. Then go for the cure to remove that darn spirochete once and for all.

Denikeef said...
Thank you, Traveler for the clarification! But even that is good news. We will get there.

Agreed!!!

sweetpeaisme said...
I was wondering the same thing as IM STILL not getting better after being on treatment since june 2014...Im SO tired of being sick & tired ALLBTHE TIME....SO tired of bein alive but barely living!!!!

That is showing that whatever protocol you are using or have used hasn't been the right one for your body to heal, or there may be an asymptomatic infection you are dealing with, or your body isn't getting enough support to heal. Don't give up hope and keep on trying, Sweetpea! We are here to help provide support and suggestions!!

magoo2, then there are people like me - no heavy metals, excellent diet, no breast implants, no food allergies and the rest of the list no, no and no.

I got bite, I got lyme. The tick gave it to me and it was just the luck of the draw.

Just like the child that gets cancer. No one ever in her family ever has had cancer. Why this child? Sometimes it is just your turn and there is no reason. We can ask God when we get there.

Hi amanda,

Im feeling the EXACT same. Im 20 years old too, turning 21 next month and its just heartbreaking:( its good to know that people my age have it too and im not on my own! So just want to let you know i know exactly how you feel and its so crap having this disease at this age. I had to drop out of university:( BUT, our benefit here is that we are young! Our systems are stronger to fight it! If you want to talk privately just message me if youre feeling low cause i know its nice to talk to someone in the exact same boat being the same age. Its going to take time but i know someone our age too who had it and after a year of treatment and following the diet etc shes now back to normal and how she used to be! She just has to carry on taking her supplements etc and try stay as healthy as possible! Im not saying this will happen to everyone cause it doesnt, everyone is different, but there IS hope because ive seen someone recover with my own eyes from being completely bed bound. Stick to your protocol, stick to your diet, keep exercising, keep detoxing, do everything you can and hopefully we will get there! Stay strong, we can do this :) x and just remember TIME is key! This will take a while, could be months, could be years. But the more you do now with the most up to date research, the better chance you and i will have! So dont give up. We will become stronger after this!!

Post Edited (leelee112233) : 2/28/2016 6:13:27 PM (GMT-7)