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Posted 3/6/2016 2:29 AM (GMT 0)
Hello, I'm a new member, 21 years old, and would like help with probiotics and advice. I have had Lyme disease for 2 years and I feel I'm getting better, but extremely slowly. I also have hashimotos, Candida, and have a good amount of food sensitivities (Alcat tested). My llmd started me with the parasite protocol and had me go aggressive on antibiotics. My recent meds are:
2 3x/day nystatin
5days / month pulse Xifaxan
1 2x/day ceftin
1 2x/day neomycin
1/4 grain nature thyroid
1 Vitamin k2-45
2 1x/day Gastromend
1 2x/day butyrex
1 1x/day inflammazyme
1 2x/day calcium
1 2x/day amino acid
2 act charcoal
1 3x/day biocidin
3 2x/day - 5 MC bab
2 2x/day Adrenal manager
1 2x/week Diflucan
1 2x/day Tindamax
From my last appt. my llmd felt I still have babesia, that's why she put me on Tindamax. I feel she forgot to give me any sort of probiotics during my course of the treatment. I'm currently taking culturelle. Just recently, She advised me to take bio-k but it has soy in the probiotic and I'm not sure if that's wise to take. I'm very confused with which probiotics to take and want my gut flora to be back on track. I saw a post stating vsl3 is not good bc it has some type of sugar.
Thank you
Please help😊




I have read the latest forums on the many probiotics recommended, but I am still confused as to which brands, strains to use.

Post Edited (Naner) : 3/5/2016 7:43:05 PM (GMT-7)

Posted 3/6/2016 2:51 AM (GMT 0)
Hi Naner, welcome to our community! I am glad you found us here (but sorry for the reason you're here) - we can help you.

I have some questions:

Have you been in treatment for 2 years?

What is neomycin for? It's an antibiotic that I don't recognize.
Bio-K is available in non-soy, too.

i'm not familiar with vsl3. I have heard it mentioned on this forum, though.
I take a few sources of probiotics: One my LLND sells me is HMF Forte by Genestra. I also take Kefir, along with another probiotic (capsule) from my local health food store.

Because you are new here, it would be helpful for you to take a look at the thread at the top of the page titled: "New to Lyme?...Start Here!" It's full of good information.

I also have another question: Are you detoxing? And with multiple methods? It is crucial when we are in treatment.
Posted 3/6/2016 3:37 AM (GMT 0)
I like Ultimate Flora - 50 million. No soy, wheat, gluten, dairy, GMOs, eggs, shellfish, tree nuts. I have not noticed that it has sugar, but now you have me wanting to investigate.

Oh and it is expensive and needs refrigeration. So it isn't convenient for being out and about.
Posted 3/6/2016 8:51 AM (GMT 0)
Prescript-Assist, Garden of Life's Ultimate Care, VSL #3, HMF Forte, Ultimate Flora. Those have all gotten positive mentions around here.

I've heard it's best if you can alternate between at least a couple of the good ones, to ensure you get a nice mix of strains (make sure that none of them have too many overlapping). That is, if you can afford it. These ARE somewhat expensive, at least to the average person.

Also, as was mentioned, the fermented goods. I'd stick with the kefir and sauerkraut.

Keep your food sensitivities in mind though (it's kind of hard not to, isn't it). I know the pain. lol

Best wishes.

edit: I should mention that Prescript-Assist is said to be shelf stable, meaning doesn't require refrigeration. I refrigerate it anyway, but I am inclined to believe it would be fine. The manufacturer seems like a fair outfit. I could be wrong though.
Posted 3/6/2016 1:07 PM (GMT 0)
Welcome Naner!

Sorry for the reason you're here but glad you found us.

Please do take a peek at our New to Lyme thread and let us know what you're doing for detoxing.

Sorry to tell you this but, Tindamax doesn't treat Babesia - it's used to treat the cyst form of Lyme. Popular Babesia treatments include Mepron/Malaron, Alinia, Artemisinin, etc. Is it possible there was a misunderstanding?

Please understand I'm not trying to pry with my questions but, instead, point out the things I've learned along the way that are part of getting good care. We only want the best for our members.

No matter what, best of luck to you and hope you'll keep posting!!

And, yes, probiotics should be taken whenever someone is taking abx (and it's a good idea to take them anyway)

Has your LLMD mentioned the possible increase in your NatureThroid dose? That is truly a tiny dose and most people need much, much higher doses. (Thyroid meds doses do need to be slowly titrated - usually every 3-4 wks.)
Posted 3/6/2016 9:44 PM (GMT 0)
I kn0w that Floristor is a very aggressive against candida, and is great to take while on antibiotics because it is a friendly yeast based one, not killed off by the said antibiotics.

The other one I just discovered, also pointed out here, is HMF Forte. It is based on actual human derived strains, so it is theorized that it colonizes better and tolerated better for leaky gut/IBS. I am very sensitive to probiotics, so as most things start slowly if you are like me! I finally worked up to full dose!

The biggest probiotic I have ran across is Is Super 250 my LLD had me one for a while. It includes quite a few strains, and is powdered so you can start small. VERY POTENT....
Posted 3/6/2016 10:18 PM (GMT 0)
Hello, my llmd has me taking the neomycin because I believe it's another form of an antibiotic. I started treatment Feb 2015, but I believe I've had chronic lyme since 2014.
Thanks for info on "new to lyme". It's very informative. Where can I buy kefir? Should I also have fermented vegetables?
thanks for probiotic info! To clarify, do I take 1 capsule per day of either one of the probiotics: prescrip assist, ultimate flora, garden of life HMF Forte, vsl#3? And rotate, once I'm finished with one box, pick another thats recommended?? Do I need to take another strain of probiotics with any of those mentioned above? Confused! yes, My llmd has me on Tindamax bc she felt I still have some sort of cyst form, she feels I still have babesia. Her treatment is: biltricide, ivermectin, albenza, alinia, followed with almost 100+ bicillin shots.
Also, she has not increased my nature thyroid, I'm still at 1/4 grain.
I still have brain fog and im extremely fatigued.
I think I need to get a second opinion, I live in Southern California in Malibu. Can you pleasssse recommend another llmd that is highly qualified, I'm willing to travel and get help from a well qualified llmd.
I signed up on ilads for a doctor referral, but I am skeptical on the few docs that were recommended, bc I don't one one that will take all of my parents $$ and take advantage of retesting when not necessary.
Thanks so much 😊
Posted 3/6/2016 10:37 PM (GMT 0)
Naner, you might want to make a new thread that says "Need LLMD recommendation in Malibu, CA" I think it will be seen better.

As for Kefir, look in the refrigeration section of your store. It will absolutely be there in the health food store. Fermented vegetables are awesome. I just had some beets mixed with sauerkraut and they were yummy. I sometimes heat mine up in the microwave on a cold day. Kefir is fun to put in a bowl and freeze it for an ice cream type treat.

As for the probiotic, just go with what it says on the label until you can ask your doctor.
Posted 3/7/2016 2:29 AM (GMT 0)
I buy an organic Kefir from my grocery store. I take a few Tbsp. daily, along with my HMF Forte and the one from my health food store. I take them at separate times during the day.

So, I don't finish one and start another. I take three different ones everyday.

As PeteZa said - start a new thread to look for LLMD recommendations, as it could get 'lost' in this thread.
Posted 3/7/2016 2:40 AM (GMT 0)
I have not heard of neomycin or biltricide for lyme and/or co treatments.

I think ivermectin is an anti-parasitic medication - I see you are on alinia - which is fore babesia, so maybe that's what the ivermectin is for.

You are on a lot of meds at the same time...how are you feeling on them?

I would get those probiotics in you a.s.a.p. Your digestive track needs them.
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