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Seeking LLMD near Ottawa

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Posted 3/7/2016 3:40 PM (GMT 0)
Hello all,

I am seeking a LLMD to treat my husband. He is currently seeing a LLND, however, we are beginning to think that abx are going to be needed and realize that the US is likely our only option, so would like contact information for any doctors close to the Canadian border.

As we are in Canada, we have had the usual runaround seeing expert after expert unwilling to acknowledge the IGenex test ("you pay for a positive result") without providing any diagnosis of their own for his ever growing list of symptoms.

I understand that even while being treated in the US, a Lyme 'friendly' doctor is needed in Canada to undertake blood tests etc, so any recommendations in that regard are also GREATLY appreciated.

Thanks so much!
Posted 3/7/2016 4:31 PM (GMT 0)
Hi Sockboy!
Welcome to our community! I'm so glad you found us.

Even though you and your husband aren't "new to Lyme", if you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html


For information on finding a​n ILADS LLMD in your area, you can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.​


You can email the Tick-Borne Disease Alliance at [email protected]​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/

And a new resourcewww.LymeDoc.org


​ You will want to find an ILADS trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.ilads.org/lyme/treatment-guideline.php
Posted 3/7/2016 6:20 PM (GMT 0)
Hi Sockboy - welcome - I am Canadian, also. But, I live in BC and ND's are able to be licensed to prescribe antibiotics.

I don't have any recommendations of U.S. LLMD's, but just wanted to let you know that there is another option if you wish to stay in Canada.
My LLND does Skype or phone appointments after the initial consult. I realize flying to BC is expensive...but after that it would be quite reasonable.
So, you would fly for the first appointment to see him...and then do follow up Skype or phone appointments.

I don't know what type (if any) extended health care you have...and if it covers out of province. We have Blue Cross and 80% of the appointments are covered for approx. half the year in our case.
Also, the prescription meds - 80% covered as well (for entire year).

He has quite a bit of experience, but not as much as some of the U.S. Dr.'s. And, it also depends on whether you want all the appointments to be in-person. Just wanted to let you know that you have this option.

You can shoot me an email if you like for more information.

So, your husband's Western Blot is positive?
Posted 3/7/2016 8:20 PM (GMT 0)
Thanks Traveler for your email!

And thanks Girlie for your note about the BC option. In my research I did learn that Naturopath's in BC can prescribe antibiotics but figured that a BC option would be just as expensive as going to the US, however, I had not factored Skype appointments into the equation - and it would make filling prescriptions easier - I don't think my insurance cares where in Canada something was prescribed (they don't pay for naturopaths either way). I will send you an email.

Yes, his Igenex Elisa and Western Blot are both positive (by Igenex standards, but not CDC). I believe that his Canadian Elisa was also positive as his Canadian western blot was automatically triggered when a reluctant doctor ordered the Elisa, but as Canada uses the CDC guidelines it means they consider his western blot to be negative. One doctor looked at those results and actually said "well the good news is that you don't have Lyme!"

Sigh.
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