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Low Ferritin, High Iron? Contradiction. Also High Hemoglobin. Anyone know what this might point to?

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Posted 4/18/2016 5:57 PM (GMT 0)
Make sure you don't have hemochromatosis: www.mayoclinic.org/diseases-conditions/hemochromatosis/home/ovc-20167289
Posted 4/18/2016 6:39 PM (GMT 0)
Hi Cincolo - welcome to our community!


Are you here because you have Lyme Disease...or think you may have it?

Or...did you post only to provide the information in your post about hemochromatosis?
Posted 4/20/2016 11:40 PM (GMT 0)
I have found the same blood test results and did research last year.

Have you checked copper levels or other heavy metals?

I read on the Stop The Thyroid Madness website that higher iron levels with low ferritin can mean an overload of heavy metals including copper.

If indeed you do find heavy metal or high copper levels, this may help...

"Vitamins and minerals antagonistic to copper include: zinc, manganese, vitamin C, B-6, B-3, B-5 (pantothenic acid) and A. The amounts, types and combinations of these nutrients that should be taken must be determined individually according to the amount of excess copper in a person's tissues and his or her symptoms and risk factors. Sulfur-based alpha-lipoic acid also helps copper overload because it enhances detoxification. The following are typical daily amounts of supplements suggested for copper overload by Gittleman: 25-50 mg. zinc; 15-30 mg. manganese; 100-300 mg. vitamin B-6; 1000-3000 mg. vitamin C; and 30-60 milligrams lipoic acid. In addition to the specific nutrients listed, Gittleman also recommends a complete multi-vitamin/mineral complex without copper. [Editor's note: Most multi-vitamin/mineral supplements contain copper."

http://www.melissadianesmith.com/Articles/CopperOverLoad.html
Posted 4/20/2018 1:52 PM (GMT 0)
Hi guys,

I have the same result: low ferritin, high iron.

I've had episodes of fatigue for months and am wondering these are related.
What are your symptoms with this?


Ferritin: 15
Iron, serum: 222
iron binding capacity: 407
iron saturation 55

The doctor says it's normal because of "normal" ferritin, but I'm not convinced.
Posted 4/20/2018 6:26 PM (GMT 0)
You should post the ranges of your tests...so we can see where they stand.


I've not had iron tested (as far as I know/remember) but my ferritin has been low.
Posted 12/7/2019 9:08 AM (GMT 0)
Hi, just wondering if anybody got answers as to why they had low ferritin but high iron. My dd13 has a history of lyme and co (babs, bart, ehrlichia, myco) plus PANDAS. She was very sick between ages 9-10 until we finally figured things out. She is doing way better but has exaggerated responses to allergens and she still has dermatographia. Her recent results show ferritin at 14 (range 14-79) and her iron total is 189 (range 27-164) and her saturation is 52% (range 15-45). She has been a vegetarian since age 8 but this past summer declared herself a vegan. Her zinc was low for a couple of months but it is finally back up with the right supplements. She also was on abx for 3 years and we weaned her off of them about a month ago. She is having stomachaches, leg pain, fatigue and sometimes headaches. Because of her hives, dermatographia, wheezing I suspect MCAS as well but we have not been to a specialist for that. I'm just wondering if MCAS could cause all of these symptoms or even if this could be the after-effects of Babesia or maybe her lyme is not gone??
Posted 12/7/2019 3:40 PM (GMT 0)
Twin2jb. I have low ferritin. Tested IgM pos for Lyme in 2014, treated for six mos. Then experience recurrence of similar symptoms in May 2019. Tested IgG POS for band 18.

My ferritin was low in 2014 and now in 2019. No, clear cut answer. Normal colonoscopy and normal hemoglobin, hematocrit, etc...etc.
Posted 12/7/2019 7:54 PM (GMT 0)
ElizaKA

Did your ferritin go into range after the 2014 treatment?

I also had (maybe still have) low ferritin. Not really low - bottom end of range.
But my hemoglobin is always in range and I don’t suffer with fatigue.
Posted 12/8/2019 3:58 AM (GMT 0)
It did only with supplementation with Gaia Liquid Iron. Super expensive and not so great tasting.

Stopped doing and last reading, was a low 9. LLMD wants me to do Iron IV's. After what I've learned about doing that through the ACC heavy metal detox community protocol. That won't be happening.
Posted 12/8/2019 9:15 AM (GMT 0)
I also have low ferritin and normal/high iron. I have asked docs about it and no one has given me an answer. I also have very many similar symptoms to what’s been mentioned and am stuck in what to do. I am 5’9” 128 lbs and have always had a low BMI. I also though was diagnosed with CMV, EBV, Mycoplasma, and Mold issues when I was diagnosed with Lyme and then Bartonella and Mycoplasma just 2 years ago. Besides the Hashimotos this year I have been displaying symptoms of possible other autoimmune issues and it freaks me out. I’m stuck and don’t know what to do and so I get feeling frustrated and stuck!
Posted 12/8/2019 5:19 PM (GMT 0)
SavedbyGrace12- you sound like me. 5'6" and barely 102 lbs on a good day. I have Hashi antibodies, EBV in 2008-12. Dx IgM Lyme pos 2014 & treated for but negative Bartonella test. Pos ab test for early Sjogren's in Aug. 19. But my sister and mother both have low iron. So may be familial.
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