HealingWell
Search Close Search
☰

Ill son - information/help needed

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
12
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/17/2016 10:14 PM (GMT 0)
My son is critically ill......tons of Dr.s......tests....meds......holistic.....we need help. I lived in Mexico for almost 8 years and have no problems with returning. Have had him there for holistic Dental work. Any information will be helpful.

Post Edited By Moderator (Girlie) : 3/17/2016 4:56:21 PM (GMT-6)

Posted 3/17/2016 10:49 PM (GMT 0)
Welcome! There is a bunch of information about lyme for newbies which I will try and track down for you. In the interim, all I can do is say congratulations for seeking answers. All I can share is my experience. My boss suggested I do my own research and go in armed with information. I began to track my symptoms, and did my own research, googling symptoms, and came up with possible scenarios. Dr. Horowitz's book on treating lyme and the chronically ill is excellent with regard to the system he has created to diagnose chronic illness. Perhaps your public library has this.

His quiz convinced me I needed to not rule out a tick borne illness.

http://lymeontario.com/wp-content/uploads/2015/03/Horowitz-Questionnaire.pdf

You might do this and see if your son scores in such a way that indicates a tick borne illness.

Here is a book review of his book.

https://www.lymedisease.org/book-review-horowitz/

I'll try and find the new member welcome.
Posted 3/17/2016 10:49 PM (GMT 0)
Welcome to our community, Micahsmom - I am so sorry your sn is critically ill.

Could you provide us with some information? Is your son in Mexico with you, or in the U.S.?

Has he ever been seen and treated by a LLMD?

Has he been diagnosed with LD?
Posted 3/17/2016 10:49 PM (GMT 0)
Michasmom I am so very sorry. There is nothing sadder than seeing you child be so very ill.

Has he been diagnosed with lyme?

Is he in treatment currently?
Posted 3/17/2016 10:57 PM (GMT 0)
Micahsmom - I edited your post to put a title to the thread.
Posted 3/17/2016 11:01 PM (GMT 0)
Duh - right in front of me - top of the page - here is the link to it.. new to lyme overview. https://www.healingwell.com/community/default.aspx?f=30&m=1606610
Posted 3/19/2016 7:02 PM (GMT 0)
I'm new at this.....thanks Girlie for putting a title.

multifacetedme.....thanks for all the links

My son lives in North Carolina. Very difficult to find a dependable lab that will test for the Lyme. Seems you have to have a Dr's prescription....we were hoping that we could find a lab either close to him or that we could send samples for testing. All his symptoms he has been dealing with for 20 plus years and some news varieties points to lymes. He was tested a couple times years ago when his symptoms started after having Rocky mountain spotted Fever. The migraines have been the most intense symptom though there are many other things. Any suggestions as to Labs ?
Posted 3/19/2016 7:12 PM (GMT 0)
The lab that is the most reliable is called Igenex. You can research them online.

My LLMD took my blood sample and sent it on to them. It took about 3 weeks to get my results.
Posted 3/19/2016 7:28 PM (GMT 0)
Micahsmom - You can get the Igenex Western Blot Igm and IgG for $210 for both.

You can call them and order the test kit and take it to any Dr. to sign the lab req.

If you don't have a Dr. willing to sign, you can go through here:

www.truehealthlabs.com/How-It-Works-FAQ-s/1884.htm
Posted 3/19/2016 7:31 PM (GMT 0)
I went to the site (link posted in previous post) - but I don't see where you can choose the Igenex test.

Sorry, I thought this was the lab that you could use - even for Igenex if you don't have a Dr. willing to sign.
Hopefully someone will be along that knows...
Posted 3/19/2016 7:37 PM (GMT 0)
Here is the thread about the True Health Lab:

www.healingwell.com/community/default.aspx?f=30&m=3571722

Scroll down until you see gkamom's post.

So - it looks like you take the req. to a hospital lab for the blood draw.
Posted 3/19/2016 7:39 PM (GMT 0)

PeteZa said...
Michasmom I am so very sorry. There is nothing sadder than seeing you child be so very ill.

Has he been diagnosed with lyme?

Is he in treatment currently?

after many years and many Dr's ...tons of tests.......drugs.....blahh ..blahh.......we have pretty much concluded that it's lyme, He had rocky mountain spotted fever and that's where this all started over 20 years ago. He is now pretty much at a point of no quality life what so ever. It's become a crap shoot to try and get him tested. We no longer have the $$ to waist on tests and Dr's who know nothing. I personally feel just confused. He is miserable. Everyday I spend scouring hundreds of posts...articles.....etc......every hour of every day he is sick. often times living in the bathroom floor. Thanks so much for your caring.
Posted 3/19/2016 7:41 PM (GMT 0)

PeteZa said...
The lab that is the most reliable is called Igenex. You can research them online.

My LLMD took my blood sample and sent it on to them. It took about 3 weeks to get my results.


Do you know any LLMD in Hickory North Carolina area? could include Charlotte or Raleigh..
Posted 3/19/2016 7:53 PM (GMT 0)

Girlie said...
Welcome to our community, Micahsmom - I am so sorry your sn is critically ill.

Could you provide us with some information? Is your son in Mexico with you, or in the U.S.?

Has he ever been seen and treated by a LLMD?

Has he been diagnosed with LD?



Thanks for your help ! I am presently in Dallas Texas as my oldest son just had a pituitary brain tumor removed.

my son that's so sick is living in Hickory, north Carolina.

He has never been diagnosed with lymes......2 tests after having rocky mountain spotted fever came negative...that has been over 20 years ago. He has been to Dr after Dr. All kinds of Dr's ......a plethora of tests...and of course all the drugs they want to 'test" out. While living in Tijuana, we brought him there to go to a Dr. that said maybe Fibro.....but again....nothing has helped. Had him on "The Gerson therapy" for 2 years. What we are coming to grips with is that this is Bacteria related.

Do you know of any LLMD Dr's in Hickory North Carolina....Charlotte or Raleigh Durham area ?

To use the "Igenex" lab do you have to have a recommendation from a LLMD ?
Posted 3/19/2016 8:00 PM (GMT 0)
To use the Igenex lab you do not have to have a recommendation from an LLMD. You order the test kit from Igenex directly and then you will need someone to draw the blood and a doctor to sign the lab request for Igenex.

Here is the thread about the True Health Lab:

www.healingwell.com/community/default.aspx?f=30&m=3571722

Scroll down until you see gkamom's post.

So - it looks like you take the req. to a hospital lab for the blood draw.
Posted 3/19/2016 8:12 PM (GMT 0)

Girlie said...
Micahsmom - You can get the Igenex Western Blot Igm and IgG for $210 for both.

You can call them and order the test kit and take it to any Dr. to sign the lab req.

If you don't have a Dr. willing to sign, you can go through here:

www.truehealthlabs.com/How-It-Works-FAQ-s/1884.htm


So the Igm & the IgG are the most accurate to have done?
Posted 3/19/2016 8:14 PM (GMT 0)
There's a LLMD in Asheville, which I believe is not far from Hickory. I will enable my email if you want to email me, I can send the names to you. I live in Greensboro, NC and go to an Integrative Practice in Winston Salem. I would not recommend them as they are only lyme friendly. I am looking to switch to a LLMD this summer.

Sorry you are dealing with all this. It sounds like Lyme especially if he had Rocky Mountain and his troubles started after that. Hopefully this will be the key to getting him better and living a healthy life.
Posted 3/19/2016 10:29 PM (GMT 0)
Yes.....that is only 1 1/2 hours away. Please give me any information you have to share.
Posted 3/19/2016 10:52 PM (GMT 0)

Micahsmom said...
Yes.....that is only 1 1/2 hours away. Please give me any information you have to share.

On order for her to email you, you will need to make your email option available.

go to My Profile
go to Edit Profile
put in your email address
bull's eye the option to Show Email Address
click Submit at the bottom of the page
Posted 3/19/2016 10:58 PM (GMT 0)
I hope I did it right...lol.....
Posted 3/19/2016 11:10 PM (GMT 0)
I emailed you the names I had.
Posted 3/19/2016 11:14 PM (GMT 0)
Thank you sooooooo very much
Posted 3/19/2016 11:58 PM (GMT 0)

Micahsmom said...

Girlie said...
Micahsmom - You can get the Igenex Western Blot Igm and IgG for $210 for both.

You can call them and order the test kit and take it to any Dr. to sign the lab req.

If you don't have a Dr. willing to sign, you can go through here:

www.truehealthlabs.com/How-It-Works-FAQ-s/1884.htm


So the Igm & the IgG are the most accurate to have done?

The Lyme WB IGM and IGG are the best ones...but they still often produce false negative test results. But, even if the overall result is negative, there are often bands specific to lyme disease showing a + and that is indicative of lyme disease.
So, the IGM and IGG are the 'best bang for the buck'.
Posted 3/20/2016 12:09 AM (GMT 0)
Thank you
Posted 3/20/2016 1:09 AM (GMT 0)
Unfortunately lyme testing tests for only that - Lyme. With severe headaches, I would have him tested for bartonella and the babesias as well.
✚ New Topic ✚ Reply
12