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Posted 3/20/2016 11:46 AM (GMT 0)
Thanks for telling me this as I thought they were part of the Lyme testing. What would be the treatment for these ?




quote="rowingmom"]Unfortunately lyme testing tests for only that - Lyme. With severe headaches, I would have him tested for bartonella and the babesias as well.

Posted 3/20/2016 12:12 PM (GMT 0)
If you are trying to save money, I think it would be best to see a LLMD first. LLMD's will diagnose clinically - based upon symptoms.

That's even what the CDC advises:

www.cdc.gov/lyme/

"Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks."

The same applies for Babesia and Bartonella.

Truly, there are more strains of Babesia, Bartonella and Lyme than tests available....and new strains are being discovered every few months.

These infections suppress the immune system so a test that measures antibody response (such as the Western Blot) could very well have false negative results.

Just because someone tests negative for any one of these infections does not mean they aren't infected. We keep coming back to the need for a clinical diagnosis.

The problem with mainstream doctors is that they don't have the education to recognize and treat these infections and that's why seeing a specialist in the form of a LLMD is really best.

Antibiotics are used to treat Lyme and Bartonella....and anti-malarials are used to treat Babesia. This applies to both pharma and herbal treatments.

Best of luck to you in your quest for answers!!!
Posted 3/20/2016 4:12 PM (GMT 0)
Because Bartonella and Babesia have even more false negatives than lyme, often LLMD's don't test for them...they clinically diagnose based on your symptoms, and response (or lack of) to different protocols.

Many of us only get the Lyme WB IgM and IgG testing done...and leave the rest of the testing decision to the LL Dr.
Because the testing is expensive...sometimes we just want to save that money to spend on treatment.

Or...you can not test at all...and wait until you see your LL Dr. who will order the tests he/she wants.

I chose to test before...as I wanted my test results to accompany me to my first appointment.

If I had a ton of money available...I would test for the co's...but I don't, so I won't.
Posted 3/20/2016 10:37 PM (GMT 0)

Girlie said...
Micahsmom - You can get the Igenex Western Blot Igm and IgG for $210 for both.

You can call them and order the test kit and take it to any Dr. to sign the lab req.

If you don't have a Dr. willing to sign, you can go through here:

www.truehealthlabs.com/How-It-Works-FAQ-s/1884.htm


So the Igm & the IgG are the most accurate to have done?
Posted 3/20/2016 11:23 PM (GMT 0)
Girlie, so did you go thru Igenex for the tests? or True Health Labs? I am trying to find a starting point. Is it good to go ahead with parasite removal even before tests? Antibiotics.....what and where.....my head is spinning....




Girlie said...
Because Bartonella and Babesia have even more false negatives than lyme, often LLMD's don't test for them...they clinically diagnose based on your symptoms, and response (or lack of) to different protocols.

Many of us only get the Lyme WB IgM and IgG testing done...and leave the rest of the testing decision to the LL Dr.
Because the testing is expensive...sometimes we just want to save that money to spend on treatment.

Or...you can not test at all...and wait until you see your LL Dr. who will order the tests he/she wants.

I chose to test before...as I wanted my test results to accompany me to my first appointment.

If I had a ton of money available...I would test for the co's...but I don't, so I won't.

Posted 3/20/2016 11:29 PM (GMT 0)
I went to a LLND - I phoned ahead of time to make sure she would do the testing and had the test kit.
Then she did the blood draw in her office and sent it to Igenex.

When I got the results, I found another LLND that I wanted to see.

(I am Canadian...and I had access to quite a few LLND's. The one that did the test for me..I had decided I didn't want to see her for treatment - as she didn't have enough experience.)

The antibiotics are prescribed by your treating Dr. So, you need to find a LLMD and schedule an appointment. You can wait until that appointment and get testing done then...or get the test while waiting for the appointment. Sometimes there is a wait (sometimes a few months) to see the LLMD.

i think you could do a parasite cleanse prior if you wanted. I don't see a problem with that.
You could start a new thread about that...and get some more opinions from other members...as I don't know much about the cleanses and if they may affect the test results. The thread could be titled: "Parasite Cleanse - before lyme testing?"
Posted 3/20/2016 11:39 PM (GMT 0)
How do I start a new thread ? this is all new to me sadly. I appreciate your help. May I ask why you went to LLND before seeing a LLMD?




Girlie said...
I went to a LLND - I phoned ahead of time to make sure she would do the testing and had the test kit.
Then she did the blood draw in her office and sent it to Igenex.

When I got the results, I found another LLND that I wanted to see.

(I am Canadian...and I had access to quite a few LLND's. The one that did the test for me..I had decided I didn't want to see her for treatment - as she didn't have enough experience.)

The antibiotics are prescribed by your treating Dr. So, you need to find a LLMD and schedule an appointment. You can wait until that appointment and get testing done then...or get the test while waiting for the appointment. Sometimes there is a wait (sometimes a few months) to see the LLMD.

i think you could do a parasite cleanse prior if you wanted. I don't see a problem with that.
You could start a new thread about that...and get some more opinions from other members...as I don't know much about the cleanses and if they may affect the test results. The thread could be titled: "Parasite Cleanse - before lyme testing?"

Posted 3/21/2016 1:48 AM (GMT 0)
To start a new thread - you click on the button (top left ) "Post New Topic" and then give it a title.



I went to a LLND that could take me almost immediately...who was quite close to my home and had the testing done.
After that I went to a LLND (not a LLMD) - who was experienced in treating lyme disease, but had to travel a bit further for my appointment.

We don't have options of LLMD's here in Canada...in my Province - there is one, but I just recently found out about her...and she's not taking any new patients anyway.
Our Naturopathic Dr.s here in my Province are licensed to prescribe antibiotics.
Posted 3/22/2016 4:02 PM (GMT 0)
I called an LLND yesterday 1 1/2 hours from my son that had been recommended to me. They told me that the Dr. can give a "clinical"diagnose after the initial visit. Wonderful!!! So I asked about him signing the paper work at that point to send in to Igenex for lab work and they said he WOULD NOT....ONLY.....if he agrees to be a patient of the this Dr and go thru HIS protocol under his care.

So it's as one person said ..."like going thru Bull Dogs".....so frustrating. We need to get him going NOW on something in hopes to make him feel a bit better and then perhaps proceed to the next step.

Does Canada ship Antibiotics without a DR. prescription?

How are you doing now ? Did you do a Parasite remover?

Thanks for all your emails, I really do appreciate it.







Girlie said...
To start a new thread - you click on the button (top left ) "Post New Topic" and then give it a title.



I went to a LLND that could take me almost immediately...who was quite close to my home and had the testing done.
After that I went to a LLND (not a LLMD) - who was experienced in treating lyme disease, but had to travel a bit further for my appointment.

We don't have options of LLMD's here in Canada...in my Province - there is one, but I just recently found out about her...and she's not taking any new patients anyway.
Our Naturopathic Dr.s here in my Province are licensed to prescribe antibiotics.

Posted 3/22/2016 6:11 PM (GMT 0)
Wow - the LLND wouldn't sign the test....not even with a consult fee? That's too bad. You could always say that he will be a patient....get the test done...go for one appointment after to see results, get a copy of the results...and then see "See ya later".

It would cost you two appointments, though.

No, I can't get antibiotics in Canada without a Dr. Prescription. I think there are online sites that you can order antibiotics without a prescription - maybe from China or India (sorry, I can't remember)

I have not done a Parasite cleanse. thinking about it, though.

I'm doing alright...keeping on....

I haven't emailed you...(not that I know of...or remember?) or...are you talking about the posts on here?
Posted 3/22/2016 6:54 PM (GMT 0)
Posts on here.....
Nope.....you have to totally commit to him......if you back out....you still have to pay him.....grrrrrrr.





Girlie said...
Wow - the LLND wouldn't sign the test....not even with a consult fee? That's too bad. You could always say that he will be a patient....get the test done...go for one appointment after to see results, get a copy of the results...and then see "See ya later".

It would cost you two appointments, though.

No, I can't get antibiotics in Canada without a Dr. Prescription. I think there are online sites that you can order antibiotics without a prescription - maybe from China or India (sorry, I can't remember)

I have not done a Parasite cleanse. thinking about it, though.

I'm doing alright...keeping on....

I haven't emailed you...(not that I know of...or remember?) or...are you talking about the posts on here?

Posted 3/22/2016 7:08 PM (GMT 0)
If you back out you only have to pay for the visits you went to. Not for anything else.

You do not have to stay with him/her forever! You are in charge and you pay for a service from a doctor. They are there to serve you. In other words you hire them and you certainly can fire them! I have done it many times.

What Girlie is saying is play along and act like you are picking him as your doctor. Get the test done and then you can leave and there is no consequence for doing that.

It will just cost you for the visits. And they cannot deny you a copy of your test results. That is against the law if they do not provide you with access to your test results. You are the patient and have access to all test results. I am talking about my state. I would hope that all states have this, but I am not privy to other state laws.
Posted 3/22/2016 7:16 PM (GMT 0)
As a retired Paramedic I familiar with patients rights. This is what I was told yesterday. I have to sign a co tract stating that the treatment MUST be with this Dr. A payment plan can be arranged she said......HAAAAA I specifically asked about after the initial visit would he sign the papers to allow for the labs to. E sent to Igenx.....she flat out said ONLY if you sign a contract stating that he obligates himself to Dr. Bidders treatment.






PeteZa said...
If you back out you only have to pay for the visits you went to. Not for anything else.

You do not have to stay with him/her forever! You are in charge and you pay for a service from a doctor. They are there to serve you. In other words you hire them and you certainly can fire them! I have done it many times.

What Girlie is saying is play along and act like you are picking him as your doctor. Get the test done and then you can leave and there is no consequence for doing that.

It will just cost you for the visits. And they cannot deny you a copy of your test results. That is against the law if they do not provide you with access to your test results. You are the patient and have access to all test results. I am talking about my state. I would hope that all states have this, but I am not privy to other state laws.

Posted 3/22/2016 7:28 PM (GMT 0)
MM-Edit your post to remove the Dr's name. No names are allowed to be posted.

I would look on yelp to see if there are reviews of the Dr. There will always be a negative review. That's normal. Someone who thought they would get well instantly and didn't etc. If the Dr has an overall good record you should be able to tell and vice versa.

The dr is wanting you to buy his protocol upfront. If that doesn't work for your son you are out of luck. That's total crap. I'd find someone else. Even if it means your son has to travel.
Posted 3/22/2016 7:32 PM (GMT 0)
Not to worry....wasn't his real name....lol.......yeah it is crap...so NO.....he's not in the mix.......




jrpsf said...
MM-Edit your post to remove the Dr's name. No names are allowed to be posted.

I would look on yelp to see if there are reviews of the Dr. There will always be a negative review. That's normal. Someone who thought they would get well instantly and didn't etc. If the Dr has an overall good record you should be able to tell and vice versa.

The dr is wanting you to buy his protocol upfront. If that doesn't work for your son you are out of luck. That's total crap. I'd find someone else. Even if it means your son has to travel.

Posted 3/22/2016 7:51 PM (GMT 0)
Ah...Your sneaky...love it.

Sadly I know from being around this site for so long that there are not many or any good options in N.C. I know you mentioned that you are in Dallas now with another son or child. Texas is also an area that is in great need of Lyme doctors.
Is there another area that you have family in or is convenient for him to fly to? I understand that the last thing he wants to do is travel but imo finding the right doctor is key to getting well. The Hansa center has an excellent reputation. It's in Kansas. There are other cities that have options when choosing Dr's
Posted 3/22/2016 8:01 PM (GMT 0)
Micahsmom I sent you an email. I hope it helps.
Posted 3/22/2016 8:45 PM (GMT 0)
We may not be able to be picky as to location. Possibly New York...



jrpsf said...
Ah...Your sneaky...love it.

Sadly I know from being around this site for so long that there are not many or any good options in N.C. I know you mentioned that you are in Dallas now with another son or child. Texas is also an area that is in great need of Lyme doctors.
Is there another area that you have family in or is convenient for him to fly to? I understand that the last thing he wants to do is travel but imo finding the right doctor is key to getting well. The Hansa center has an excellent reputation. It's in Kansas. There are other cities that have options when choosing Dr's

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