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QUESTIONS ABOUT MEMORY

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Posted 3/24/2016 10:24 PM (GMT 0)
I am a newbie and had a question regarding memory loss. I have just started Plaquenil and Abx and was wondering if our memory's are ever restored with treatment. It's so frustrating to me. I appreciate any feedback or ideas of what would help. Thanks!
:-)
Posted 3/24/2016 10:30 PM (GMT 0)
Most definitely! I had a horrible time with words, thoughts and spelling. So much better with treatment. I am so happy because it was like dementia. I was very frightened. I so understand your concern.

Hang in there! And welcome.
Posted 3/24/2016 10:35 PM (GMT 0)
I actually got tested for Alzheimers! It is very scary. My words get all jumbled sometimes too. I almost sound drunk. It's like my mind and my mouth are on different schedules. I used to be a very organized person and now I forget about bills, can't remember 2 hours ago and get lost easy. It's so frustrating. :(
Posted 3/24/2016 10:42 PM (GMT 0)
KC the first thing I got was google calendar. It shows up on my home page. What a lifesaver. I am a bookkeeper Type A personality and a perfectionist and I had to do math 3 times to check myself and that was with a 10 key! I lost words like crazy. Luckily I have a husband that loves a funny wife because it was hilarious how I would describe something because I could not remember the word. I had to laugh or I was going to cry.

I am the type that so dislikes to get frustrated so I make many lyme things a joke. I have announcements for when I get a new symptom. I would yell "New Symptom - right elbow bruised feeling." It was a way of not complaining and whining, but being heard that I hurt.

And my silly wonderful husband will yell back "that's nice dear." And then I laugh. We had to make it all a joke or I would be a sobbing mess.

Besides I really believe in the healing power of laughter.
Posted 3/25/2016 1:24 PM (GMT 0)
I lost all working memory at one time, yet it does seem to be doing just fine for most things now. I had to admit that I do usually need some kind of a "trigger" to remember some of the longest held memories, but who knows if I would have remembered those details anyway, even without Lyme.

Mostly this is due to the toxins that have found their way to your brain, and my understanding is that it mostly ammonia. Detoxing very well will help, but continuing on in your treatment is what is needed most.

As PeteZa said - use whatever you can for notes. Many of us with memory issues have notes all over the house! LOL! But it's better than forgetting too many things. When I was at my worst, I had 4 notebooks I used and lived by them. I used a calendar, my phone for pill time reminders and more.

Here are some apps that you might find useful for your phone or tablet:
/www.lymedisease.org/phone-apps-for-lyme/

campother.blogspot.com/2011/03/free-or-cheap-iphone-apps-for-lyme.html
Posted 3/25/2016 2:21 PM (GMT 0)
Decided yesterday to start writing things down but seem to have forgotten it until now. Did I have something to write down? Hmmm.

Last fall we were packing to go camping and for the life of me I couldn't come up with the word pajamas, so I said "do you want these..... sleeping pants?" That seemed to be a big hit with the DH and to this day we don't have pajamas, we have sleeping pants.

I'd have to say that my memory seems to have improved even when the foggy depression/malaise kicks in I don't seem to struggle as much for words. Small victories! (now watch, tomorrow I won't remember my name since I had the nerve to actually talk about improving out loud)
Posted 3/25/2016 2:36 PM (GMT 0)
Funny how I could remember the words to songs that I sang years ago but could not remember my grocery list. In our house if you want me to buy it, it has to be on the list or you wait until next week. I used to be able to just go and shop and get everything.
Posted 3/25/2016 11:46 PM (GMT 0)
I am glad I'm not alone. It's so frustrating.
Posted 3/26/2016 12:11 PM (GMT 0)
PeteZa, that would be the difference between short term and long term memory. Usually the long term memories are more "protected" and will remain 'available' even when the short term memory issues are there. I lost both at one point in time - that was really scary. I didn't know if I would ever remember the day I brought my kids home from the hospital after they were born, or my own childhood memories. But I'm happy to report that so far so good!! Of course there are things I don't remember - but doesn't everyone go through that? We can't necessarily remember every moment of our lives.
Posted 4/3/2016 12:39 AM (GMT 0)
I started having memory problems this past year. My doc said it was because of my thyroid problems and I've since read that a lack of B12 can contribute to it too. I've been on B12, but I wasn't good at taking it every day, so now I'm getting it down every day. I was getting pretty worried since 2 family members had dementia the last few years of their lives. Both had thyroid issues and B12 problems too.
Posted 4/3/2016 2:01 AM (GMT 0)
I think there is so much that contributes to the memory, fog, and word recall issues. Its symptoms causing symptoms basically. The anxiety, possible candida, thyroid issues, detox issues, all of it contributes.

3M post it notes are all over my house!! That said, most days I am way better now , but its a very slow process.
Posted 4/3/2016 2:55 AM (GMT 0)
Probably. I just wanted to mention the 2 in case it would apply to someone else. We'll see how I do whenever I get my thyroid functioning again. The B12 helped a lot with my energy. I moved a lot of compost today. It cleared up my head quite a bit too.

I haven't started post it notes yet, but may have to in the near future! I just hope my next doc will be thyroid savvy.
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