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New problem, multiple hip labral tears and a partial labral detachment

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Posted 4/13/2016 2:34 AM (GMT 0)
I have had very severe joint pain since getting my diagnosis of Lyme Carditis in November 2015. I have been on azithromycin 500 mg M-W-F and Ceftin 500 mg BID since November as well. I have seen a slight increase in my energy level since adding cytomel 37.5 mg (divided dose) daily but still having a lot of popping in my joints (L shoulder, right knee, and right thumb) I also will have intermittent muscle twitching in my eyelids, cheeks, arms and abdomen. Continue to have 'brain fog' and impaired ability to word find and express myself verbally at times. Also very moody and noise and activity stress me out. I need peace and quiet.

The biggest problems continue to be the heart palpitations and severe joint pain in my right hip (left hurts too, but not as bad) and the top of my left shoulder. I had an MRI last week that I got results of today that showed "multiple labral tears in the hip as well as a partial detachment and degenerative changes". The have to send me to an ortho doc 120 miles away for arthroscopic hip surgery/debridement and it is unknown when that appointment will be. I asked for a copy of the MRI reading and X-rays to be sent, but probably won't get them til the end of the week.

I didn't have trouble with my hip(s) or left shoulder prior to get the Lyme Carditis. Is it possible this is all caused by Lyme or an auto-immune disease? A rheumatologist started me on plaquinil Jan 1 of this year as I have a history of Hashimotos but all the other AI lab tests came back normal. Any advice? Thanks in advance.
Posted 4/13/2016 5:40 AM (GMT 0)
I am wondering the same thing myself. I was told that I have likely had Lyme's since 2009 and in 2013 I had to have a repair of the minniscus in my right knee and last year the hip on that side started to really bother me. I have been waiting till I am done with treatment before having the MRI on right hip but I suspect the same with the labral tears as it feels simaler to the torn minniscus.
I will be interested to see what others have to say
Posted 4/13/2016 11:01 AM (GMT 0)
It sounds like you might be herxing.

What all are you doing for detoxing?

And, has your LLMD talked to you about switching up your treatment?
Posted 4/13/2016 12:56 PM (GMT 0)
I missed my last appt the end of March with my LLMD as I had the flu so I don't see him until May 5th. We haven't changed anything at all other than stopping atbx a few times due to herxing and adding the cytomel.

Honestly, I haven't done any active detoxing for a couple months as everything seemed to be at a plateau. After starting the cytomel I had an increase in energy, body heat and metabolism and felt somewhat better but that plateaued too. He just told me this week I could increase the cytomel by 12.5 mg this week so i started that.
Posted 4/13/2016 2:22 PM (GMT 0)
I asked for a second opinion when I had issues with my right hip...the MRI and first reading indicated degenerative changes and a labral tear. They did another test, with different imaging, and concluded it wasn't a labral tear. One Dr. told me to stop dancing, I pressed for a referral to a specialist 2 hours away from where I live, and she had a different view. NOT to say your troubling journey isn't something that will need repair, but, second opinions are REALLY wise when it comes to something major if it doesn't resonate as what is going on. If it resonates as - yes, that seems right, I tend to flow with it, if not - I question and keep seeking. The herxing thought makes sense - so sorry for your pain and aggravation. I hope balance restores to your life.
Posted 4/13/2016 4:52 PM (GMT 0)
I don't know if my experience is comparable or not...

But I used to be a runner. The lyme & coinfections (unaware of them at the time) brought everything to a halt. Too sick to do anything. Then I developed a nasty chronic sinus infection and bronchitis. For 13 months I was in/out of MD's offices and urgent care trying to deal with it - and no one ever bothered to culture me, just kept giving me rounds of various antibiotics (turned out it was a fungal infection... but that's a different story).

Getting to the point of my post: I developed several distinct symptoms due to all of the antibiotics that year and these symptoms, combined together, made it really easy to suspect lyme. One of these symptoms was that walking and any movement in my hips became so painful that I was nearly wheelchair-bound. I used to do insane yoga poses and stretches and almost overnight I couldn't walk, sitting hurt, and lying down hurt. Sometimes it was one hip or the other or both. I also had severe muscle pain in my large muscles.

Once I started on antibiotics (I am on IV Rocephin) I had significant relief with my hip pain--took about a month. I never had any imaging as my LLMD automatically assumed it was lyme-related so I'm not sure if there is any damage--just going by my symptoms.

Agree with multifacedme - second opinions are wise. It can get confusing for us, seeing so many specialists who are not educated about lyme so it's still important to bring all information back to "home base" and discuss w/ your LLMD.

Plateaus are common - our bodies are constantly changing. The illnesses, treatment and healing are very dynamic and it is very common for LLMDs to switch up treatment. This is why it is so important to keep good records of your symptoms and how you are responding to treatment.

Hope you get some relief soon -

-p
Posted 4/14/2016 1:41 AM (GMT 0)
I also have hip, shoulder, and left knee pain & stiffness. I havnt had any imaging as its assumed the pain is due to the infections...

For joint pain and stiffness I take a product called 'Flex Now'. Its made from the shea nut. It takes about 30 days of 3pills taken SAME TIME every day, to notice results. I also take Meriva, a curcumin product for antiinflammatory.

Something interesting: after getting a VERY RARE strain of Salmonella, called 'Poona', I was prescribed cipro and flagyl for 2 weeks. I read the pharmacist leaflet warning on those and there's def. Cases of joint and ligament damage caused by the antibiotics!!! Ive been treating my chronic infections w/herbals only due to the toxic effects that pharmaceuticals can have on the body.
Posted 4/14/2016 1:46 AM (GMT 0)
Oh also, Id like to add that the moodiness, agitation, sensitivity to noise and movement,lightheadness, heartpalps, air hunger, etc etc, were highly exacerbated those two weeks that I used cipro and flagyl. I just cannot tolerate those antibiotics!!!
Posted 4/14/2016 1:52 AM (GMT 0)
Shoot, one more thing-Spirochetes, mycoplasmas, as well as Chlamydohilia bacterium cause degenerative damage....so YES according to all Ive researched If you have Lyme and Co's, then thats the culprit. Better to try and kill the buggers first before surgery!
Posted 4/14/2016 2:09 AM (GMT 0)
So frustrating! I have been on Curcumin (Terry Naturally 1500mg daily), motherwort, fish oil (with high EPA, DHEA), vitamin D, probiotics and an excellent multivitamin since last November. After starting the antibiotics and the first couple herd's when the joint pain was severe I wondered if the antibiotics I was on could cause damage. As far as I can tell, the types I am on are not known for that.

Now with spring in full force I worry about getting 're-infected' by a tick bite (is that even possible?...it probably is).

On one hand I am kind of relieved to know that there is a pathological cause to the pain that can be identified because after months of this it starts to mess with your head. I just can't seem to get ahead and my hopes of returning to work get dimmer every day.
Posted 10/25/2022 2:47 AM (GMT 0)
I believe I’ve had Lyme disease for 1-2 years and I also have 2 torn labrum’s. L Hip and L shoulder. I have extremely bad bursitis and tendinitis and my R shoulder. These issues came out of nowhere in addition to brain fog, fatigue, cognitive decline, neck pain, and insomnia. I was the happiest Id ever been and on top of the world. And then this happened…

I tried PRP injections on all 3 joints and it didn’t help. I want to do surgery because I am a bodybuilder and a surfer and want to return to my sports but I’m scared how recovery will be due to the Lyme disease.
Posted 10/25/2022 5:30 AM (GMT 0)

gregcairefit said...
I believe I’ve had Lyme disease for 1-2 years and I also have 2 torn labrum’s. L Hip and L shoulder. I have extremely bad bursitis and tendinitis and my R shoulder. These issues came out of nowhere in addition to brain fog, fatigue, cognitive decline, neck pain, and insomnia. I was the happiest Id ever been and on top of the world. And then this happened…

I tried PRP injections on all 3 joints and it didn’t help. I want to do surgery because I am a bodybuilder and a surfer and want to return to my sports but I’m scared how recovery will be due to the Lyme disease.

Hi greg - welcome to the forum.
This is an old thread - so you may not get replies from the members who posted on this thread.

Are you currently treating Lyme disease. ?
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