Update

Hi again...
Just to share.
I`m desperate.....
I`m feeling worse and worse - yesterday I lost abillity to swallow.
Tongue has a bilateral atrophy and weakness.
Whole body twithching.
Doc`s told me no als but what the f.ck it is...
Elisa Lyme still neg IGG -10 points - for possitive I need more than 20 points
My LLMD test me today thruth real LAB about Lyme and I will see the results in Tuesday..
Just so tired , my wife hates me - told me I`m a simulant - i cannot swallow - no reflex, how can I be simulant...
After taking isoprinosine I feel much better with much more energy and no brain fog. Isoprinosine is for the imune system,but the tongue numbness and tingling an atrophy continues...
In ALS there are no sensory - so told me the doc but from what is this atrophy....
I feel so tired and lost.
Today they test me for celiac, lyme, myastenia gravis and lupus. I will see the result in 5 days so i will update soon.
So wish to everybody feel healthy and I hope there will be no ALS ( 2 moths ago EMG was clear..... but i will see..)

Corwin - remind me - have you been treating Lyme and co's?

Sending hugs to you....hang in there.

I had most of those symptoms and was tested for als. It was one of the scariest time of my life. My first treatment for lyme did not go well. I found a llmd a couple months ago. The first thing she had me do was an elimination diet to eliminate symptoms caused by food sensitivities. Many of my symptoms went away during this period. Then she started me on my lyme treatment. Things are going really well this time. I am still on a very restricted diet and I strongly believe this is helping with my treatment or at the very least it mskes it easier to see which symptoms are related to lyme. It might be worth a try. Good luck!

Sorry, Opiath - I edited your post to remove your email address. We don't post them because the public (non-members) have access and it will attract spammers.

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