severe air/gas pressure in ears, head, teeth - please!?

hi everyone, it's been a while since i have posted. I hope you are all slowly healing. I thought i was, and then - boom - a huge flare. you know the intense pressure in the eardrums when the plane takes off? I have that, for hours, especially at night. there is actual gasses, just like when you depressurize by pinching your nose in the plane. But my pressure doesnt go away. It increases, it cracks and pops in my head, ears and teeth. I have heard actual gas released in my mouth.
This pressure mounts in my body at the same time. especially in the sacrum and knees.
It is so intense and painful. I dont sleep - at all.
Exhausted and very worried. I thought i was slowly healing from lyme. now my llmd says this isnt lyme - it must my bart (or babs, or mycotoxins).
does anyone recognize this symptom??
xxCharlotte

So sorry to hear of these issues!

I agree with Traveler that Babesia could be to blame.

And, I definitely agree about the need for you to increase your detoxing. Do you take Japanese Knotweed or Resveratrol? If yes, a dose increase could help clear those neurotoxins faster.

Hope you feel better soon!

head related issues I usually ask if you have any dental work?
It could also be lyme or probably a half dozen other issues
So do you have any dental work-if so on what teeth?

thank you guys xxx - I am taking all kinds of detox remedies, but not Japanese knotweed. Going to get some right now.
I am treating Bart anb Babs and Lyme... Though only tested pos for Lyme. (VERY positive, strongest test LLMD had seen in 20 years) had bullseye rash 13 years ago, and slowly got worse, until my husband got brain cancer in 2010 and i bottomed out with pain, spasms, you name it. Finally diagnosed in Jan 2015.
But i was doing better - and then, suddenly, this nose dive?
I sweat at night, completely wet chest and neck. but no air hunger. still babs? or "just" lyme?
And I have foot pain, hair loss, teeth pain... bart? i have bad muscle pain, spasms...

How are you all doing - has anyone beat this crap? or do we have to learn to manage it/live with it??

Hi Traveler, I just now saw that you are treating Bart and Babs. Sorry to hear.
What are your symptoms of each?

Hi Swede,
I'm so sorry - hubby swept me away for a 2 day belated anniversary get away! We ended up at a really nice motel that had internet access, but it wasn't secure enough for my tablet, so I couldn't even get online!! Grrr.

Let's see, Bart and Babs symptoms. They, like many of these infections, have symptoms that overlap - a great deal at times!

Bart:
Previously, Bart & Lyme destroyed my teeth and jaw bone has been badly damaged from being infected for such a long time without treatments. So I have to attribute dental issues to my previously held infections. Otherwise, this is what I'm dealing with now:

Small joint pain/swelling (hands and feet), vision weirdness, blood shot eyes, sensitivity to light, inflamed spine (particularly upper back/lower neck for me), heal pain, zero appetite (having to eat just because it's time), spleen pains from time to time, livedo, spider veins, unexplained bruising

Babesia for me means - a certain type of frontal headache; I don't have drenching night sweats, but I do have night sweats; a bit of air hunger.

I'm not sure where to categorize the extra fatigue, or muscle pains, as both of the infections cause those things. I know I have too many symptoms to ignore, so I'm back in treatment as I refuse to allow these infections to take any more of my life from me than absolutely necessary!

I think that's the list, at least that's all that I'll allow myself to consider at this point! LOL! No need to scare myself!

Awww! Thank you, Swede! It really was a wonderful time.

While I agree that there are many out there that don't have Bart or Babs and are suffering, I believe that there are many more that have it and don't realize it. Many doctors (even LLMD's!) will only focus on Lyme and as many of us have had to find out on a personal level, those infections are not only very real, but will stop a person from being able to heal their Lyme infection.

And that doesn't take into account those that have asymptomatic infections that still have to be treated before they can completely heal - it might be the reason so many 'Lyme only' patients relapse! We just don't know yet, and one of the main reasons we don't know yet is because the testing for these infections is so poor and there is so little support from those that control the purse strings for the gov't science funding (my daughter works in this field as well, is how I know).

For me personally, I've agonized over this question - am I sure it's Bart and Babs? I've become symptomatic for both Bart and Babs in the last few months, and I've poured over some personal accounts of infections from people I trust, and have spent hours making lists of my symptoms and going over different symptom lists and realized that I have too many key (or classic) symptoms of Bart and of Babs to ignore. Honestly, if I didn't know what air hunger felt like, I might have dismissed Babesia - but it's there, I'm sure of it even though it's not strong.

Teeth/jaw bone pain can be from Bartonella, and if you have Bart (I'm not a doctor, so I'm not saying for sure that you do) it would actually make sense that you could only get so far into your healing of Lyme before the Bart symptoms started becoming stronger. As we lower the bacterial load of one infection, another infection that we have will become the one with the higher bacterial load - and so will be the infection producing the stronger symptoms.

And, if your insomnia doesn't respond with Bartonella treatment, or if you wish to just do the test, I would greatly encourage you to get your adrenals tested. Battling these infections is very stressful on our body, and so it's very hard on our adrenals. Low functioning adrenals can also be something else that can prevent us from healing.

And maybe you should consider some more support, like from a face to face support group, or even some supportive supplements for depression and anxiety? There are some really wonderful supplements available, depending on just what you may need. There is no shame in doing what you need to do in order to get through what is likely one of the toughest times in most anyone's life!

And hang in there!! We are all here to help you through this! And you can feel free to email me if you wish since I'm not on here as much lately.

Remember that there is a LOT of symptom overlap, but for most people this is what I've seen or experienced myself:

We can never, ever forget the emotional toll these infections have on us for many, many reasons, but the 'extra' emotional feelings can be a sign of Babesia for some, as well as sweating (although several tick-borne infections can cause this) - although when they appear with chills, it's usually from Babesia from my understanding.

Floaters are usually associated with Lyme, but Bartonella just loves the eyes, so it could be from Bart as well.

Gas, or digestive upset can be from Lyme or Bart.

Depression can be from just dealing with being chronically ill, but we usually have a "little extra" help from either Bartonella or Babesia, as they both can cause depression. Babesia is usually the one to blame for severe depression though.

Sounds like your herxing pretty good. How's your detoxing going? I bet you knew I'd get around to asking that, right?

thank you so much for letting me know. did you feel pressure in your teeth? I can actually feel gas releasing. do you have lyme?

Hi happyjo, and thank you for reaching out. I dont understand what this is. I have been treating with IV rocephin and tinidazole pulsed with clindamycin and Cowden herbs for months. I was getting better - and then fell off a cliff. I had started Babesia treatment with Artemisinin and Malarone and it had been weeks, maybe a month and I was tolerating it. for no apparent reason i had TERRIBLE head pressure, gas releasing in my teeth, muscle spasms and couldnt sleep at all. I detox - i go to sauna, i take lymph drainage and all kinds of other detox supps. nothing helps.
Can lyme break through all those abx and herbs or is this a co-infection making itself known? My llmd says its impossible for lyme to survive all i was throwing at it. but what is it then??? It is horrible. I dont know what to do, what to fight, anymore.