What is your worst lyme symptom?

WITHOUT A DOUBT...
even with over 3 dozen specific sx including pain and being unable to walk, trouble with every meal I ate every day, sleeping 2 hrs max a night for months on end...

the absolutely worst sx I have had were psych-neuro related that flared once I started treating lyme w/ IV abx. The drugs were crossing the blood/brain barrier and I could not keep up with the required detox. I felt crazy, out of control, anxious, fearful, morose, panicked, the cognitive problems kept me from being able to maintain my protocol or understand what I was doing or communicating effectively with anyone about anything. I was an absolute wreck. Took about a month for the herx to calm down.

I've had lyme & co for 18+ years and through it all, all of the unbelievable sx that people really don't believe you could have... losing your faculties was by far the worst. I can often meditate through pain but losing the ability to process thought or control your emotions was a deal-breaker for me.

-p

The depression was by far the worst, and the term 'depression' barley begins to capture it. Of all my symptoms it was the quickest to come and go. But I remember going to bed some nights hoping to not wake up in the morning. It made me go a little crazy and it really scared me. I was in a dark, dark place. Joint pain comes second because I'm still dealing with that a year after infection.

Head pain was the worse. All the other weird and painful things were nothing compared to the head pain.

definitely nerve pain and numbness. I had muscle and joint pain too, but the nerve pain was much harder to tolerate.

Balance issues and fatigue for me

Pirouette hit it ...plus muscle wasting , searing joint pain..eye socket pain and twitching, vertigo is not fun.

wow! a great question, and somewhat complicated one as well.....a variety of symptoms since Sept. 2013, but the worst (before correct diagnosis and treatment) had to be the indescribable head sensation along with constant dizziness/light headedness. To a lesser extent, the visual and audio disturbances along with chest pains and heart palpitations and fear and anxieties. As of now, it's the dizziness/lightheadedness (not as intense) and constant 'floating' sensation. To a lesser extent, it's the dry mouth, sensation of not being able to swallow sometimes, and slight anxieties. I've had the really bad headaches and some muscle spasms but for me, I think the worse symptoms have greatly diminished, and now I'm left with a lot of dizziness everyday and some sensations of hypoglycemic episodes where I feel I haven't eaten anything and am going to pass out. This has been a scary and debilitating disease for sure, and without a doubt the absolute worst disease I've ever experienced. I'm off my herbal supplements this week to see if that could be causing some of my strange sensations, but right now the only med I'm on is minocycline.

Yup, Ditto again what Pirouette mentioned....ughhh cant take the extreme mental flares/herxes..


-Courtney

Thank you everyone for your replies. Lyme is such a mixed bag of symptoms. :( so sorry all you good people are going through this. I'm sorry I am too. Sigh!!!!

I think my sister would say her worst symptom is the never-ending noise in her ear and neck. She has sometimes said that the noise is so loud that it's hard for her to hear the television. Next horrible symptom would be all of the vibrations and pounding sensations. She gets very upset (almost crying) when she gets pounding and bouncing sensations, especially down her back and in her neck, which apparently feel like someone is hitting her. The symptoms that bothers her the least is the "popping" (feels like tapping) on the bottoms of her feet, but she gets a bit freaked out when she feels the popping on her stomach.