You have had Lyme D. for 40 years

Wow! Amazing!

Lol - thank you Multifacetedme. It's been quite the ride, to say the least. An interesting tidbit is that I was reinfected in June 2014 and I was showing only Lyme symptoms, so that's all I treated (with the same herbs as the first time). I didn't start showing symptoms of Bartonella and Babesia until mid 2015. It's taken me some time to figure out what was going on, as I have severe adrenal fatigue and hypothyroidism, so I wasn't sure what was causing what symptom as there is a lot of overlap even with those things.

I should be starting treatment for Bartonella next week if things stay on plan (HA!). I intend to treat Bart with the same herbs I used last time, which include my Lyme herbs, so if there is any leftover Lyme, I'll get that too. about 3 weeks after I start treatments, I usually herx pretty good for 3 weeks, so shortly after that is when I'll start the Babesia herbs.

Wish me luck? I think I'm going to need it!! LOL!

Dear Traveler.
I just found your post, although it's months old. I HOPE you're doing well. Our stories are so very similar, but I was 10 in 1970:) I have/had the same host of TBDs topped with mold and heavy metal toxicity. I am now a disabled Dental Hygienist for four years now. I have greatly improved but expect to be plagued with set backs. My list of herbs and supplements is as long as BOTH my arms. Traditional medicine didn't work. Your story, as well as the other members who responded, lifted me up this morning. Unfortunately a younger sister recently was treated for breast cancer. Friends and family understand cancer. They haven't understood my illnesses/ailments in the same capacity. I consider myself healthier now because of how I feed and take care of this vessel I call my body. My biggest battle at present is mold. Mold is very controversial, but my treatment is working. My TBD doctor believes once I tackle this mold issue I will have found the missing piece of my mystery medical puzzle. I so hope you are well and out there, somewhere. I'd be honored to help in any way by comparing notes. My head explodes with this wealth of new found knowledge that goes against the grain of traditional medicine.

I'd love to see your story in a book format - even short story - self publish it for free through Amazon's KDP. Would be a FABULOUS resource. You are a FABULOUS resource here, but I get this sense, that the story -- well, it is just so amazing.... thanks for sharing!

Multifacetedme, thank you for your words of encouragement - who knows? Maybe one day? Right now I feel like I have more important work trying to help people find their healing and getting laws changed - but thank you.

My story, pretty much as it appears here, will appear in print this summer though! I don't really want to advertise a book, but I'm not sure how else to explain it! LOL!

It will appear as a 1,000 word essay (hard to cram 40 years into 1,000 words! LOL!) so that many stories can be highlighted in the appendix of "Lyme Madness" by Lori Dennis, a Psychotherapist, whose son has chronic Lyme. We met because I reached out to her on Facebook when she was looking for some information to help her son.

Aime, I look forward to interacting with you whenever it's convenient for you!!

aime - I know you were talking to Traveler...but I wanted to ask you a question or two.

I was hit with menopause at the same time I got lyme symptoms.
My estro, progesterone, dhea are very low.
My cortisol is good a.m.,noon, and a little high late afternoon and evening. (but just over range - and I sleep well so it's probably fine)

My LLND has prescribed pregnenalone - and progesterone. I told him I didn't want to go on estro...before he even mentioned it. I have read a lot of information on progesterone...and feel fine doing that. I have used the bio-identical cream before...and am going to give it another whirl.

My LLND says the pregnenalone will help with the low progesterone and estrogen...but I'm leery of taking it.
He never mentioned giving me a script for DHEA.

I have told the compounding pharmacist to NOT fill the pregnenalone for now...I just want to try the progesterone on it's own first...see how I feel.

(my estro is very low...but the range for menopause IS very low...so not sure we should be raising it)
What are your thoughts on that?

Don't worry if you're too busy to reply...I understand...and it certainly can wait until after the week-end of you do want to respond.

Hi Girlie,

about 10 years ago, while in what we thought was perimenopause, I used a compounded yam based progesterone cream. I'm usually good natured and have patience but the cream made me short and aggravated. It was stopped.

Four years ago I found my TBD doctor. This is when we tackled the adrenals for the first time.

I started with cortisol, DHEA, and pregnenolone. I was suppose to start estrogen and progesterone at the same time but didn't until months later.

We have a prevalence of breast cancer in our family so I didn't want estrogen either, that's the reason for the delay in taking them. I proceeded to take oral progesterone and estrogen for 2 to 4 weeks. It was determined that the estrogen and progesterone caused my legs to ache and my knees to feel weak (fluid retention?). Sex was wonderful again, but at what price. Estrogen and progesterone were stopped. I also took testosterone for a short time with no complications. Had my doctor known that I delayed taking the estrogen and progesterone she would have tested me prior to starting them. My bad.

When tested, after I had stopped the estrogen and progesterone for several months, levels were within range. It was determined that the pregnenolone was doing it's job in raising my estrogen and progesterone naturally. I purchased the pregnenolone and DHEA on line at Vitacost. They both worked and did their job.

Knowing what I know now, I'd try the pregnenolone first for your low estrogen and progesterone. This by rights should elevate them. How you feel is always the best test. Don't expect wonders from it (if anything at all), pay attention to the negative. Your body will tell you if it's wrong.

If your doctor feels your progesterone continues to be low after trying the pregnenolone, then try the progesterone cream. Resort lastly to oral progesterone if levels still remain low. Don't forget to monitor the estrogen.

Over time you will notice change. If you're treating other illnesses at the same time it's going to be a while before everything jives.

Now! if your adrenals are out of whack, it's important to get the right amounts of each. For instance, DHEA is the balancing hormone to cortisol. Each is good together. Too much of either one is not good, but we need them both. If your cortisol is higher later in the day it's b/c DHEA didn't come to the rescue. If your DHEA is low, then this theory makes sense. A DHEA supplement should help. This is where testing is imperative.

Nothing's simple or easily said when it comes to these subjects:) Hope you made sense of my long winded explanation.

Thanks, I went ahead and started that new thread. You can follow the link I provided in my last post.

I do understand about Lyme and company, but I was first infected at the ripe ole age of 7, or maybe younger. I know that at age 7 I had RMSF, by age 8 I had chronic Bart symptoms, and by age 9, Lyme arthritis and I had become "good" friends. At that age, I was still eating good, getting plenty of exercise (I'm a massive tomboy!) and was in good health up until then, but of course, we know that seemingly good health can be a misnomer.

I don't know if you've seen it yet, but I've healed from that set of infections, only to have my adrenals crash, taking my thyroid down with it and then got reinfected again. I'm currently fighting those reinfections now using the same protocols that healed me last time.

I'm learning the hard way that everything that's not working at top performance in the body needs to be supported while we heal due to all the strain that is put on the body and the body systems as we go through this.

Oh how I wish we had the little emo guy that rolls on the floor, holding his belly and laughing!

Rich and famous? Bwahahahaha! Even if I did, I wouldn't keep it - you know it would go to housing Lyme patients or something - once our bills were finally paid off though.....

But thank you, as always, Mister Mike! You are much too kind.

I'll lock this thread to be sure that doesn't happen. (I wonder how often someone gets to lock their own thread?)

For those that wish to talk to me - please, just start a new thread, or you can email me directly!

I'm very much still around!