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Hope and encouragement for those who feel there is no end to this!

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Posted 5/19/2016 2:14 AM (GMT 0)
I want to write this as an encouragement to anyone that is feeling like they are in a dark tunnel and there is no light at the end of it.

I have been under my LLMD treatment for one year now. The windows of 'feeling like myself again' are getting longer and wider all the time and the bad periods are lessening in severity and duration. Doc tells me he considers me ahead of schedule and says cleaning up my diet has been a huge factor in this. He graduated me from every 2 month visits to every 3 months now!

Still have symptoms but can feel the scales are tipping more and more in favor of my immune system getting the upper hand.

Intravenous UV light treatment starting in July.

Oh, and seriously consider colon hydrotherapy if you are reading this. I give this a giant amount of credit for my dramatic overall improvement in the last month. Not kidding, it's been really, really helpful.

You can get better. You CAN get better. Just keep putting one foot in front of the other and detox, detox, detox. Time will pass and you will improve. It sucks and seems like forever but it will get better. The only reason I can say this is because I've been where you are and I'm now able to see the light at the end of the tunnel, just like you will one day.

God Bless every one of you that is reading this and remember that He will walk with you through this if you but ask.
Posted 5/19/2016 2:34 AM (GMT 0)
Thank you Tillybear! God Bless you too. It is good to hear.
Posted 5/19/2016 3:23 AM (GMT 0)
Awesome and I would like to also encourage everyone too.
Posted 5/19/2016 3:55 PM (GMT 0)
Nice post tilly bear
very encouraging!
=]chloe
Posted 5/19/2016 4:26 PM (GMT 0)
Wonderful news, Tillybear!
Posted 5/19/2016 6:17 PM (GMT 0)
She's right.

The people we were before are somewhere in there, buried beneath the illness, just waiting to come home.

There will be changes, of course, for better or worse, but, the thing is, you will be you, you won't feel foreign to yourself. It'd be better to be without scars, but that's just a part of life.

There have been brief moments where I've seen me, felt me, as I was before I got sick. A little glimpse, or a slight touch.

It's just the matter of getting there that is the problem.

Not impossible, just feels darn close to it sometimes. There are some obstacles that aren't matters of will or time spent, but manmade constraints like money..

But, gotta keep trying.

Post Edited (NotQuiteAntonio) : 5/19/2016 12:20:05 PM (GMT-6)

Posted 5/19/2016 8:21 PM (GMT 0)
Great Post Tilly.

I'm feeling pretty crappy right now with some serious herxing, however I do pay attention about how much time goes by in between feeling really bad (like legit herxing, not just some mild symptoms here or there).

That is what is keeping my spirit up during this "legit" herxing period. A good couple months has gone by. Hopefully the time span continues to grow.
Posted 5/19/2016 9:02 PM (GMT 0)
The biggest challenge in getting better for most of us is the amount of time it takes. Find me other illnesses that can take literally years to get significantly better where every single day of that journey you are dealing with a myriad of symptoms? Find me other illness where you improve only to be thrown backwards and feel worse than what you started and not just once but many times?

It's a lonely, frustrating place to be as you see everyone else living their lives and complaining about the most trivial things and thinking you couldn't walk one week in my shoes!

Those feelings while true do not help you have the positive mental attitude to keep going and reach that goal of getting back to being healthy. If we all had a fixed date we'd know we'd be healthy even 6 months out we'd gird down and get there but the open-endedness of this disease makes it that much harder to stay mentally tough.

I've personally been in treatment for 14 months and am pretty bad but I'm not going down and giving up as many have tread this path before and spent far longer to get to full recovery.

Great to hear your story Tilly.
Posted 5/20/2016 2:46 AM (GMT 0)
Absolutely wonderful news Tillybear! So glad to hear your feeling better smilewinkgrin Thanx SO MUCH for sharing and spreading hope for others! I personally always LOVE to hear ANY successes/victories whether small or large when treating these infections--its very encouraging!...I guess I just love hearing anything involving stupid lyme, bart or babs getting their BUTTS KICKED!! yeah


-Courtney
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